FRONT PAGE AMPYRA AUBAGIO AVONEX BETASERON COPAXONE EXTAVIA
Stan's Angels MS News Channel on YouTube GILENYA NOVANTRONE REBIF RITUXAN TECFIDERA TYSABRI
 Daily News for Neuros, Nurses & Savvy MSers: 208,152 Viewers, 8,368 Stories & Studies
Click Here For My Videos, Advice, Tips, Studies and Trials.
Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
Click here to read my columns
Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
CLICK ON THE RED BUTTON BELOW
You'll get FREE Breaking News Alerts on new MS treatments as they are approved
MS NEWS ARCHIVES: by week

HERE'S A FEW OF OUR 6000+ Facebook & MySpace FRIENDS
Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


Click to view 1280 MS Walk photos!

"MS Can Not
Rob You of Joy"
"I'm an M.D....my Mom has MS and we have a message for everyone."
- Jennifer Hartmark-Hill MD
Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
"This is how I give myself a painless injection."
Heather Johnson

"A helpful tip for newly diagnosed MS patients."
"Important advice on choosing MS medication "
Joyce Moore


This page is powered by Blogger. Isn't yours?

Friday

 

What People SHOULD Say to Someone Living with MS























Image Source: TALKINGHEADSTUDIO

By Cathy Chester

There’s a marvelous piece written by Ashley Ringstaff called “MS & Things People Should Not Say.” It provides a solid list of statements people should never say to someone with MS. It garnered a lot of attention from readers, and deservedly so.

A few commenters asked the same question that caught our eye: What about writing an article on what people should say?

What a fabulous idea. This is a way to open the lines of communication between one another, a chance to use our voices to let others know what we need. Through education and awareness comes compassion, tolerance, understanding, and kindness.

Let’s begin.

What to say to someone who has MS

  • I am here for you.
  • I care about you.
  • I’d really like to help as best as I can. You choose how often. I feel helpless and don’t know how to help. Is that okay with you?
  • You can always lean on me.
  • It’s okay to show your emotions to me. There’s no shame in that.
  • I want to give you a great, big hug because I care.
  • Let’s talk about how you really feel.
  • Let’s figure out the best way to spend time outdoors, move around, get to appointments, see loved ones (fill in the countless ways to help.)
  • I want to know what you’re going through. What does MS feel like?
  • What does MS fatigue feel like?
  • Why is MS sometimes called an “invisible illness” and why does this apply to some people and not to others?
  • What’s a typical day for you? I want to learn about your struggles and successes.
  • Please educate me on MS: What’s a lesion? Myelin? Autoimmune disease? Exacerbation?
  • Are you getting enough emotional support? If not, how can I help?
  • I’d like to come for a visit. Let’s schedule a date.
  • Let’s go to a movie/lunch/coffee/dinner/comedy club (fill in your own choices.) I’d love to spend quality time with you.
  • Would you like to make plans to get together with a group of friends?
  • Would you like me to accompany you to your next doctor’s appointment? Would you like me to drive?
  • Are you taking any MS medication? Can you tell me the name and how it’s supposed to help?  
  • Is it difficult physically/emotionally to inject? (If the person’s medication is a different one fill in the blank, such as infusions)
  • What other medications are you taking? What are they for? How are you tolerating them?
  • Are you happy with your MS specialist? MS Center?
  • What tests do you need to have on a regular basis? Is the facility nearby? Would you like me to drive or go with you?
  • Can I help with housework or chores?
  • Do you want me to make purchases for you when I do my own shopping?
  • I’d like to make dinner for you. Tell me what day works best for you and I’ll bring it over.
  • What gives you hope?
  • What inspires you?
  • What gives you courage?
  • What frightens you?
  • What research are you hoping will be approved? Why?
  • Is your housing accessible? If not are you looking to improve/move? How can I help?
  • What daily/weekly exercise do you get?
  • Can I be your exercise buddy?
  • Can I help you find an exercise class that suits your needs? Would you like me to go with you?
  • Would joining a chat room or support group be helpful for you?
  • Would you like me to watch your children so you can have some “alone” time?
  • Would you like me to drive your kids to activities to give you time for yourself?
  • What hobbies do you enjoy? Do you want to learn a new one? Do you want to learn together?
  • What movies do you like?
  • What books are you reading?
  • Don’t worry about canceling our social engagement. We can reschedule or let’s see how I can better accommodate you to suit your needs. No problem at all.
  • Would you like to go with me for a manicure/pedicure/massage/haircut?
  • And, the most important statement you can say to someone living with MS is (drumroll, please):

I BELIEVE YOU.

Story Source: The above story is based on materials provided by MULTIPLESCLEROSIS.NET
Note: Materials may be edited for content and length
Click here to read more


Go to Newer News Go to Older News