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Wednesday

 

Doctor, It Hurts When I Do This: My Mystery MS Pain













































Illustration: Getty Images

May is flying by. We’re already into week 21 of the year, the days are long, and there’s even a bit of warmth in the sunlight. Better make sure we get our monthly “How’s your MS?” check-in posted.

For all of the stuff going on in my life right now, I’m surprised at how relatively well I’m feeling. We launched the European version of Chef Interrupted, my memoir, to great press reviews, and it’s selling well.

We’ve had house guests coming out our ears, and a new publishing project is in its final stages, with a release date set for September 29 (more to come on that).

You’d think that my difficulties related to multiple sclerosis from this past year would be continuing, but I seem to have leveled off.

On our Life With Multiple Sclerosis Self-Evaluation Scale (LWM3S), I’d say I’m down to about a 5, which is significantly better than last year.

LWM3S is a simple 1-10 scale in which:

1 = The best my symptoms have felt since my diagnosis with MS

10 = The worst my symptoms have felt since my diagnosis with MS

Mysterious New MS Symptom

One new thing I have noticed is a very localized pain in my leg that doesn’t hurt unless I touch it.

It’s like that old joke: “Doctor, it hurts when I do this.” “Well then, don’t do that.”

But it does hurt to the touch. No bruising, no trauma (that I can remember), no injury at all. The spot is on my affected side, so I don’t really feel much on that leg. When I touch it, however, I feel intense pain on the skin and a different, aching pain below the skin and into the muscle. It’s a rough circle, about the size of a silver dollar (boy, am I aging myself there …), and there is no sensation outside of that circle.

Weird.

Being at Baseline Feels Good

Other than that, I’m about as fatigued as I “normally” am, my pain levels are at baseline, and I seem to be getting around without any additional (it’s all relative) difficulty.

It’s good to feel better even if better isn’t great.


Story Source: The above story is based on materials provided by EVERYDAYHEALTH
Note: Materials may be edited for content and length

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