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Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
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Monday

 

Which of Your MS Symptoms Are Difficult to Describe?

























By Trevis Gleason

The more I get out there and talk about my MS during this book tour, the more I’m finding that I have my own way of describing the disease itself and my symptoms of MS. I suppose 12 years of writing the Life with Multiple Sclerosis blog — yes, we had a birthday on March 14 — have given me plenty of opportunity to hone my description skills.

Still, every once in a while I come across an MS symptom that I’ve not had to relate to someone, and I have to really think about how to couch my experience in a way that someone wholly unfamiliar with this disease might understand.

We started the MS Symptom Thesaurus nearly four years ago to help give you words to explain MS symptoms when your own seem to fail.

Many of you have jumped in and offered your take on how to explain one symptom or another in words that work for you. Sorry to say that those comments may have been lost forever, so we’ll start fresh once the blog platform transfer takes place later in the year.

As I continue to give radio and print interviews while promoting the European version of my memoir, Chef Interrupted, I’m wondering what symptoms you’ve found most difficult to explain or describe to your family, friends, colleagues, or even to your doctors?

What part of living with MS seems the hardest to relate to someone outside of your MS bubble?


Story Source: The above story is based on materials provided by EVERYDAYHEALTH
Note: Materials may be edited for content and length

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