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Timothy L. Vollmer, MD
Department of Neurology
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Co-Director of the RMMSC at Anschutz Medical Center

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Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
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Weill Medical College of Cornell University

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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
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Sunday

 

MS Patients in US and UK Face Very Different Treatment



























We may have international cooperation and worldwide this and that, but the fact remains that countries vary drastically from one another in all sorts of ways. Take healthcare as an example, and the costs of treatment.
Read more »

 

Cognitive Toll of MS Can Include Ability to Handle Personal Finances, Study Finds



























People with multiple sclerosis, especially those with cognitive disabilities, have more problems managing their personal finances — paying bills on time or using a credit card — than those without this disease, researchers report in the study, “Money Management Activities in Persons With Multiple Sclerosis,” published in the journal Archives of Physical Medicine and Rehabilitation.
Read more »

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Saturday

 

Invisible Illness: The pain of not looking sick



















Living with an “Invisible Illness” can be mean living with a number of terrible symptoms. Severe pain, trouble walking, speech difficulties, cognitive impairment, and emotional problems are just some from a large list of potential issues we must deal with. While any one of those would be enough to make life hard, even unbearable at times, I’m here to say that our biggest challenge is actually the fact that many of these symptoms are invisible.
Read more »

 

Remyelination Studies Abound, But How About a Workable Therapy?








































Remyelination at the moment is the buzzword to beat all buzzwords in the world of research into, and treatment for, the vicious disease that is multiple sclerosis.
Read more »

Friday

 

Husband Surprises MS-Stricken Wife With Flash Mob Show for 10th Anniversary: VIDEO






















After an unforgettable 10 years together, Carl Gilbertson knew he had to treat his wife Laura to a memorable anniversary, too.
Read more »

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There’s a Lack of Communication by MS Healthcare Providers, Study Indicates




























New research from England indicates that healthcare providers do not communicate enough with their patients about the possible outcomes for their MS.
Read more »

Thursday

 

MS & Independence

































Image Source: HONEYMOONBABYBRIULOTTA

The theme for World MS Day 2016 was Independence and it resonates with me not just because of my own multiple sclerosis but because of other recent experiences. Merriam Webster’s dictionary lists ‘Independence: freedom from outside control or support; the state of being independent.’ One of my greatest concerns of having MS is that someday I might be dependent on others for my basic care and much more, but I have come to realize that independence isn’t just a concern for people affected by a chronic disease but rather it affects us all and we gain independence or lose it, in many different ways.
Read more »

 

SafeGait 360 Balance and Mobility Trainer



























Many patients with multiple sclerosis have difficulty with balance and gait and are prone to falls, which can be injurious. The SafeGait 360 Balance and Mobility Trainer from Gorbel Medical is designed to aid individuals with balance and gait through training exercises. Offered as a complete system, the SafeGait 360 provides a rail system, an actuator, a strap & spreader bar, a harness, and a software management kit to facilitate 1:1 interactions between therapists and patients to help patients regain their independence.
Read more »

Wednesday

 

A lesser-known MS issue — money problems


























Patients with multiple sclerosis struggle with daily financial tasks

MS is often thought of as a physical disability. But the cognitive aspects of the disease can affect daily financial management tasks.
Read more »

 

Studying How People with MS Experience Prognostic Uncertainty




























Image Source: THESLEUTHJOURNAL

Through interviews with patients, researchers found that MS patients don’t necessarily appreciate prognostic forecasting, and that healthcare providers may need specific training in order to decide when or whether to share such information. The study, conducted by Laura Dennison and colleagues from the University of Southampton in the United Kingdom, was published in PLOS One in July 2016.
Read more »

Tuesday

 

Some of This and Some of That: MS and the Art of the Trade-Off



















In light of this year’s presidential election cycle, has it ever struck you that managing MS has some major parallels with American politics? Picture the smoke-filled backroom deals, compromises made, disappointments partially assuaged by pork barrel projects. We could even draw on business for a further analogy, where hiring requires striking a balance between education and work experience when employees rarely possess both in desirable quantities. With MS, we, too, must often choose between two things that cannot be had at the same time.
Read more »

 

Action Is Needed: Costs Limit MS Patients’ Access to DMTs


























A recent survey of more than 6,000 multiple sclerosis patients in the United States found that health insurance coverage can decide their access to disease-modifying therapies (DMTs), and that that coverage is worsening, leaving a good number struggling to be able to pay for their treatment.
Read more »

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Monday

 

Low-Quality Generic MS Drugs Can Be Both Toxic and Ineffective, Study Reports



























Low-quality unauthorized generic versions of approved MS drugs can expose patients to danger, both through their toxic properties and a lack of efficacy that allows the disease to progress, researchers reported in the study, “Clinical implications for substandard, nonproprietary medicines in multiple sclerosis: focus on fingolimod,” published in the journal Drug Design, Development and Therapy.
Read more »

 

Man with MS finds motivation from Pokemon Go: VIDEO















































SUBMITTED
Trevor dives at the Georgia Aquarium in Atlanta in 2011 prior to being diagnosed with multiple sclerosis.

This time last year, Trevor Nurse lost feeling in his right foot, losing the ability to balance and walk properly. This has been his biggest setback since being diagnosed with multiple sclerosis.
Read more »

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Sunday

 

An Unexpected Side Effect of My MS Advocacy: Self-Empowerment
























By Regina Boyle Wheeler

Teresa Wynne shares her “can-do” attitude through support groups, fund-raising, and MS advocacy.
Read more »

 

Antibody Created in Lab Treats MS in Mice by Preventing Immune Cells from Piercing Blood-Brain Barrier




























Building on work began in stroke studies and applying it to multiple sclerosis, researchers in France report that an antibody they developed kept the blood-brain barrier intact in cellular and mice MS models despite the presence of inflammation, preventing immune cells from entering the brain.
Read more »

Saturday

 

Biogen’s CEO Is Out After Management Changes, Stalled Sales































George Scangos
Photographer: David Paul Morris/Bloomberg
  • George Scangos to leave in ‘coming months’; search beginning
  • Adjusted earnings beat estimates; share buyback announced
Biogen Inc. Chief Executive Officer George Scangos, who helped build the U.S. drugmaker into a powerful player in multiple sclerosis treatments, will leave the company after a series of top managers were replaced and sales of its biggest product stalled.
Read more »

 

Change to MRI Criteria Would Diagnose MS Earlier



A new proposal to change the current imaging criteria for the diagnosis of MS to include the symptomatic lesion has been put forward, after a preliminary study has suggested that this would identify patients earlier.
Read more »

Friday

 

Study of Potential Therapy for Relapsing MS That Targets B-Cells Now Recruiting Patients in US

































Patients with relapsing MS are being recruited for a clinical trial evaluating an experimental monoclonal antibody called ublituximab, the National MS Society announced in a recent news release. The study, being conducted at seven U.S. sites, will enroll at least 24 patients, but this number can go up to 100.
Read more »

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‘My Super Diet Cured My MS! Buy My Book!’











































There seems to be general agreement that achieving and keeping an overall level of good health is very important for people living with multiple sclerosis, or with any chronic illness for that matter. And one way to reach that goal, many will say, is to eat a healthy, well-balanced diet.
Read more »

Thursday

 

Beat the Heat and Chill!










































Image Source: UMPATTIRE

By Laura Kolaczkowski

Polar Products, the company that makes a full line of various cooling vest products, wrist and ankle wraps, neck coolers and more, was one of the exhibitors at the recent Consortium for MS Centers 2016 annual meeting and I had time to talk with the company’s owner, William Graessle, owner and CEO, about their product line. Bill is one of those guys who will talk with anyone about his product because he has a real passion for being a good corporate citizen and has become a friend of the MS community. His company sells the large majority of their products to commercial and government customers such a road construction and airport workers who spend long hours in the heat. The market to help people with multiple sclerosis and other diseases that make the affected person sensitive to the heat is much smaller, but for him it is much more satisfying.
Read more »

 

More Evidence Links Season of Birth and Risk for MS































Image Source: DERBYSHIRENC

A new study of more than 21,000 patients with multiple sclerosis (MS) in the United Kingdom (UK) provides further evidence that season of birth can influence the risk for MS and that this association cannot be explained away by "background patterns."
Read more »

Wednesday

 

An antibody-based drug for MS


















































Image Source: MEDCITYNEWS

Inserm Unit U919, directed by Prof. Denis Vivien ("Serine Proteases and Physiopathology of the Neurovascular Unit") has developed an antibody with potential therapeutic effects against multiple sclerosis. The study, directed by Fabian Docagne and published in Brain, paves the way for a new strategy to control the disease.
Read more »

 

MS Cures in the News, Again





































Image Source: HONEYBEES-BEESWAX

You know you are in for a story when someone, usually a stranger or the next best thing such as a very casual acquaintance, tells you ‘my aunt had MS but she cured it with ________ (fill in your choice of ‘cures’).
Read more »

Tuesday

 

Finally, Attention Switches To Progressive MS


















































Gray matter atrophies in primary progressive MS

A surge of new MS treatments have been for the relapsing-remitting form of the disease. A new drug that targets CD20-positive B cells may change that.
Read more »

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How Caregivers Can Help With MS Tests and Medical Appointments





























Learn what you can do to help a loved one with multiple sclerosis deal with medical tests and treatments.
Read more »

Monday

 

8 Tips for Talking About Your MS





























The who, what, when, where, and how of explaining your MS diagnosis to others.

Revealing and talking about a health condition or medical problem can be a highly emotional undertaking. Many people feel afraid or anxious about their listener’s possible reaction — and sometimes that anxiety is justified. On the other hand, a positive or supportive response can be reassuring and bring the listener and teller closer together.
Read more »

 

Steroid Use Lowers Oxidative Stress in Cerebrospinal Fluid of Progressive MS Patients in Pilot Study


































A pilot study in patients with progressive MS found a steroid treatment of benefit by decreasing oxidative stress in the cerebrospinal fluid. The study, “One-time intrathecal triamcinolone acetonide application alters the redox potential in cerebrospinal fluid of progressive multiple sclerosis patients: a pilot study,” was published in the journal Therapeutic Advances in Neurological Disorders.
Read more »

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Sunday

 

In the End Everything Will Be OK




















By Matt Allen G

Living with a chronic disease like MS is not easy, even if it looks to be that way to those around us. There are so many different types of struggles MS can bring about in our lives and so many different types of pain be it physical or emotional. The stress can be overwhelming! What really sucks is that because the disease is chronic so is the struggle; well, it may seem that way to many at least. Never-ending… There is a quote, I cannot figure out who originally said it (there is too much debate online), that I have always used as my sort of motto after being diagnosed with MS; it’s what I have to always remind myself of when times get tough. It goes something like this;
Read more »

 

Nanobionic Clothing Seen to Help Clear Body of Free Radicals Associated with MS and Other Diseases

















































A recent study in the Journal of Medicinal Chemistry and Toxicology reported that the impact of disease-causing free radicals on the human body may be mitigated by wearing special, high-tech “Nanobionic” clothing for just a few hours a day. These clothes are designed to protect the body from the free radicals it produces, which, when in excess of the its natural protective abilities, can result in oxidative stress and lead to cellular damage.
Read more »

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Saturday

 

Patients Need To Know What Drugs Do Inside Our Bodies


































Oral therapy Tecfidera (dimethyl fumarate) seems to be emerging as a first-line treatment for relapsing multiple sclerosis – according to Biogen, the company that developed it. That’s good news, and something we need to know.
Read more »

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6 Things MS Nurses Wish Their Patients Would Do — And Why





















From more exercise to better communication, here's what nurses think would help people with multiple sclerosis the most.
Read more »

Friday

 

New software tool could help routinely measure brain atrophy in MS patients

































Image Source: TECHNOLOGY.ORG

The loss of brain tissue, called brain atrophy, is a normal part of aging, but multiple sclerosis (MS) accelerates the process. Such atrophy is a critical indicator of physical and cognitive decline in MS, yet because measuring brain atrophy is expensive and complicated, it's done primarily in research settings.
Read more »

 

The Importance of Having a Support Network When You Live With MS





























By Trevis Gleason

First, thank you all for your kind messages of support as I try to find my literal and figurative balance again. Your comments on the blog and social media, along with emails, have been heartening.
Read more »

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Thursday

 

The Adaptive Yoga Book For People Living With MS


















































Image Source: YOGAFORDEPRESSION

By Cathy Chester

I met many fascinating and brilliant people at the recent Consortium of Multiple Sclerosis Center’s annual meeting, including those I met in the exhibit hall. One such person manning (or is it “womaning”) a booth was Mindy Eisenberg, yoga therapist, author and a woman who dedicates her life to helping people with multiple sclerosis. After watching her mother battle a downward spiral with the disease she knew she had to do something to help others.
Read more »

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Side Effects and Convenience of MS Therapies Seen to Determine Patients’ Adherence to Them




























Image Source: RUANGIDEA

Despite the existence of several disease-modifying drugs for people with relapsing-remitting multiple sclerosis (RRMS), patients’ satisfaction plays a critical role in their adherence to treatment. Improving adherence should be a major concern in the clinic to prevent patients from evolving to more debilitating stages of the disease.
Read more »

Wednesday

 

Telemedicine Can Make Life Easier for MS Patients





























For people with MS, the growing field of telemedicine could offer quick relief from a disease known for its inconveniences.

People living with MS find they can use new technology to obtain information and receive physical therapy without having to leave their homes.
Read more »

 

Hematopoietic stem cell transplant (HSCT) for MS from the Inside: A Patient’s View
































Image Source: PAINMANAGEMENTINSTITUTE&AESTHETICS

Editor’s Note: The opinions expressed in this blog article are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Multiple Sclerosis. 

Anyone considering HSCT for MS might like to know what they can expect. But let’s remember that, while such transplants for MS patients are available in clinics worldwide — from Mexico to the Philippines and Singapore, and from Israel to Russia — HSCT remains an experimental treatment that lacks formal approval from health authorities.
Read more »

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Tuesday

 

New jab that creates 'killer cells' could help fight against MS: VIDEO































The new jab might be the hope to those suffering from multiple sclerosis

A NEW drug that creates natural ‘killer cells’ in the body has been hailed as a great leap forward in the fight against multiple sclerosis.
Read more »

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MS Patient’s Pick of the Week’s News: Tremors, Tecfidera, MRI, Progression, and Caregivers






















Image Source: LEHIGHACRESGAZETTE

There have been plenty of interesting stories on Multiple Sclerosis News Today over the last seven days. Here is my Pick of the Week’s news.
Read more »

Monday

 

Brain Atrophy in MS Patients May Soon Be More Easily and Routinely Examined




































Detecting brain atrophy in multiple sclerosis (MS) patients requires high quality scans, too expensive and complicated for routine clinical use. But this may change with a new software that simplifies the calculation of brain atrophy based on data from routine magnetic resonance images (MRI).
Read more »

 

LI scientist finds new way to detect MS








































Dr. Eitan M. Akirav, at his Mineola lab on July 5, 2016, has found a new way to detect multiple sclerosis that holds promise for earlier diagnosis. Photo Credit: Newsday / J. Conrad Williams Jr.

HIGHLIGHTS
  • A biomarker, or signpost of the disease, seen in DNA in blood
  • Autoimmune disorder causes neurological disability
Read more »

Sunday

 

Have Your Say About Disease Modifying Therapies for RRMS

































You have just one week from today to have your say about the effectiveness of various disease modifying therapies (DMT) used to treat relapsing remitting multiple sclerosis (RRMS). Public comments are welcome in response to an early draft paper that is planned to be the basis for a future report to evaluate the health and economic outcomes of multiple treatment regimens for relapsing remitting MS.
Read more »

 

The link of inflammation and neurodegeneration in progressive MS: STUDY































Image Source: OXFORDJOURNALS
Read more »

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Saturday

 

MS Stem Cell Therapy: What Would YOU Like to Know?





























By Trevis Gleason

Research on stem cell therapy for MS shows promise.The past couple of weeks have seen the Life With Multiple Sclerosis inbox and social media pages loaded with people sharing “news” of the latest MS stem cell research out of Canada. I’m sure many of you have had similar experiences.
Read more »

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Lessons in How to Cope with MS




































Dr. Barry Farr

Dr. Barry Farr remembers his first inkling of Multiple Sclerosis as a day when he was 20, doing push-ups in his bedroom in Mississippi and his arm spontaneously collapsed under him. There seemed no explanation for it. Many years later came another episode, a foot drop stumble as he was walking to his office at U.Va., where he was a professor of medicine, an expert on infectious disease. That time his medical advisors said it wasn’t enough info to go on for a diagnosis.
Read more »

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Friday

 

Brain inflammation linked to depression in MS




























Image Source: UPLIFTCONNECT

Patients with multiple sclerosis have higher rates of depression than the general population, including people with other life-long disabling diseases. Symptoms of multiple sclerosis arise from an abnormal response of the body's immune system. Immune response has also been linked to depression, leading researchers to think it could be a shared pathological mechanism that leads to the increased rates of depressive symptoms in patients with multiple sclerosis.
Read more »

 

Brain Health: Time Matters in MS

























Gavin Giovannoni, MD, and MS specialist, is a favorite doctor of mine, even though he can’t treat me as a patient. He resides in England and treats people there and works extensively in the research field of multiple sclerosis and patient centered research and treatment. If there were someone to clone and bring here to the United States for MS work and patient care, my choice would be Dr. Giovannoni. At times when I read his Barts MS Blog, “A Blog for People Affected by MS Interpreting Good, Bad and Other Research News”, I picture him as the Spaniard Don Quixote, battling the windmills. He is outspoken and doesn’t hesitate to challenge that the way we are treating MS is not good enough and doesn’t shy away from any argument on the behalf of people with MS.
Read more »

Thursday

 

Using stem cell treatments, some MS patients see reversal, easing of disease symptoms





























Image Source: THESCIENCEBEHINDSCIENCE

Eatontown, N.J.-based American CryoStem Corporation (CRYO) says it's seeing a growing number of people storing their own stem cells, in case they encounter a neurodegenerative disease or orthopedic injury

For the 400,000 Americans with MS, using their own harvested adult stem cells to reset their immune systems may help reverse some of the symptoms that often come with the disease.
Read more »

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Tremors Linked to MS Poorly Treated with Symptomatic Medication, Study Finds

































Disabling tremors can affect as many as half of all people with MS, but they are inadequately treated because of limited therapeutic options and are not sufficiently being studied, researchers at the University of Alabama at Birmingham reported.
Read more »

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