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Timothy L. Vollmer, MD
Department of Neurology
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Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

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Weill Medical College of Cornell University

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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
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Tuesday

 

Caregiver Perspective: Feeling Alone or Maybe Just Left Out

















































Image Source: LOLASRECOVERYSITE

By Donna Steigleder

I always have guilt feelings when I write about any negative emotions I feel in being a caregiver but the fact is, I have them and I expect most other caregivers have them as well. It doesn’t mean we don’t love the person we care for but it means that providing care is not always a piece of cake. If you’re a parent, it’s similar to loving your kids but being angry at them for scratching the car and sometimes seriously thinking of selling them to the lowest bidder. You would NEVER actually do it and would miss them beyond words if they were not around but the fantasy…well, sometimes the fantasy helps to get past the moment.
Read more »

 

Woman's Doctor: Progress being made on MS treatments: VIDEO
























Women three times more likely to get disease than men, experts say

Like most auto-immune diseases, multiple sclerosis is more prevalent in women than men, three times more prevalent to be exact.
Read more »

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Jim Kenyon: Disabled Lebanon Couple Get Eviction Notice After Marijuana Bust



























Lorraine Sevigny, 61, and Brian Cardinale, 59, are facing eviction from their Village at Crafts Hill apartment after Lebanon police searched their home on tip from an unknown source and found a small quantity of marijuana early in May.
Image Source: VALLEYNEWS-JAMESM.PATTERSON

Getting caught with a small amount of marijuana is supposedly not a big deal anymore. Even in New Hampshire — the only New England state yet to decriminalize pot — first-time offenders just have to appear in court, plead guilty and pay a fine. Then they are free to move on with their lives.
Read more »

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Underestimated burden: Epilepsy, MS, Parkinson’s impair sexuality




























Image Source: HEALTH-AND-BEAUTY-INFORMATION

Neurological disorders can impair sexuality on a much more massive scale than frequently assumed, leaving loss of desire, erection problems and infertility in their wake. Both men and women are affected. A person's self-esteem, love life and relationship with a significant other can all suffer. But as Prof David B. Vodušek from the University of Ljubljana, Slovenia, pointed out at the Second Congress of the European Academy of Neurology (EAN) in Copenhagen, people do not have to simply acquiesce to this situation: "There are ways of helping affected individuals, provided neurologists actively address possible problems with the patient's intimate private life. Many patients have the impression that this aspect is given too little attention," the Chairman of the EAN Liaison Committee noted.
Read more »

 

Transient hair loss during treatment with Tecfidera (dimethyl-fumarate) for MS: STUDY























Image Source: GUANGSHUCHEMICALFACTORYC.LTD
Read more »

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Monday

 

Fighting addiction no simple matter

























Alison Scofield, who has been afflicted with multiple sclerosis since 1989, in her Stratford home on Friday. Scofield has pain in her legs and arms from the disease and takes a low dose of oxycodone to manage her pain.

All the talk about opioid painkillers contributing to America’s heroin and prescription painkiller addiction crisis has Alison Scofield worried.
Read more »

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Get Inspired: Man with MS out to 'put smiles on faces' through golf






"I'm not brave, I just get on with it. What else can I do?"
Read more »

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Zinbryta (Daclizumab) Approved to Treat Relapsing MS


























Image Source: MAINENEWSONLINE

By Editorial Team

On May 27, the U.S. Food and Drug Administration (FDA) announced the approval of Zinbryta (daclizumab) for relapsing multiple sclerosis. Zinbryta is a monthly, long-acting, self-administered injection.
Read more »

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MS could be reversed with calorie-restricted diet, study suggests



























A calorie-restricted diet which mimics the effects of fasting may reverse the symptoms of multiple sclerosis and help repair the damage caused by the disease.
Read more »

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Maternal and perinatal outcomes in pregnancies with MS: a case-control study: STUDY


































Image Source: UPDATETRENDS
Read more »

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Sunday

 

Stories to Inspire: MSAA Client Swims for MS











































Image Source:TWITTER

By Multiple Sclerosis Association of America - MSAA

“I actually hugged my doctor when I found out I had MS,” explained Simone Sanders of Seaside, California. “After having so many symptoms for so long, I was relieved they found out what was wrong with me and that something could be done to help. But then, I was also frustrated that I had a chronic illness that had no cure.”
Read more »

 

Sanofi Genzyme Launches vs.MS Global Campaign to Raise Awareness on MS’ Physical and Emotional Burden



































Image Source: SANOFIGENZYME

Sanofi Genzyme recently launched vs.MS, a global initiative to raise awareness of the often unspoken physical and emotional burden of relapsing multiple sclerosis (RMS) on people living with the disease and their care partners.
Read more »

 

Multiple Sclerosis Creative Research on Behance


























I began exploring invisible disability for a self initiated brief which then lead on to creating material to help children aged 7-11 understand the diagnosis of multiple sclerosis. The aim was to illustrate the often invisible illness and answer their questions. Below are different research techniques which lead me to this point.
Read more »

 

FDA Approves Zinbryta (Daclizumab) for MS






















Image Source: ILLEGALLYHEALED

The US Food and Drug Administration (FDA) approved daclizumab (Zinbryta, Biogen Idec) today for treatment of patients with relapsing forms of MS, according to an FDA news release.
Read more »

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Current treatment status and medical cost for MS based on analysis of a Japanese claims database: STUDY

































Mount Fuji Japan
Image Source: MADHUMITRA0528
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Saturday

 

Dealing with MS with Laughter: VIDEO
























Author Louise Bonnett-Rampersaud lost her husband to a rare disease in 2014 and started exhibiting signs of MS shortly after. Instead of dwelling on her diagnosis, she started bits and bobs a humor blog that puts a comedic spin on life's dark turns, or as she calls it "One Widow's Attempt to Un-Suck Her Life."

Story Source: The above story is based on materials provided by WJLA
Note: Materials may be edited for content and length

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MS and Marijuana: The story of a skeptic turned believer































Image Source: ZMESCIENCE

By Devin Garlit

I’ve waited to discuss a certain topic because it can be a rather sensitive issue to some folks. This issue is the use of marijuana to treat symptoms of multiple sclerosis. While some people still scoff at the idea of using this plant as medicine, I’m here to tell you that it’s been life changing for me. With the legalization of marijuana becoming more and more prevalent across the country, it may be able to help you too.
Read more »

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ANKRD55: A new gene involved in MS is discovered

























MS is a neurological disease, characterised by demyelination and the onset of chronic, neurodegenerative damage of the central nervous system. Right now, its causes are unknown although various self-immune mechanisms are known to be involved.
Read more »

 

Stories of an invisible illness: MS: VIDEO

























It's estimated that more than 2.3 million people have MS worldwide, and about Arkansans 3,000 have it. MS is a chronic, unpredictable disease that targets the nervous system. Today, medical researchers are making progress toward finding a cure.
Read more »

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Newly Identified Gait Patterns in Patient With MS May Be Related to Push-Off Quality: STUDY
































Image Source: ALTOCASERTANO
Read more »

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Friday

 

My MS Stages


















By Meghan Pcsolyar

They say the five stages of grief are:

  1. Denial
  2. Anger
  3. Bargaining
  4. Depression
  5. Acceptance
Read more »

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Jack Osbourne Pens Touching Open Letter To De-stigmatise MS



























Jack Osbourne has written a heartfelt open letter about what it’s like to live with MS in order to raise awareness about the disease.
Read more »

 

Mary Jordan is fighting MS with dressage, an equestrian sport: VIDEO






















Mary Jordan often has a full day: train to become a Paralympian, and fight multiple sclerosis.
Read more »

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Fasting-like diet reduces MS symptoms




























Evidence is mounting that a diet mimicking the effects of fasting has health benefits beyond weight loss, with a new USC-led study indicating that it may reduce symptoms of multiple sclerosis.
Read more »

 

Multimodal evoked potentials follow up in MS patients under Gilenya (fingolimod) therapy: STUDY

























Image Source: SEARCHHOMEREMEDY
Read more »

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Thursday

 

Roanoke County man has message for people with MS: VIDEO






















Being diagnosed and living with Multiple Sclerosis is extremely tough, but one Roanoke County man has a message for those who have been recently diagnosed with the disease.
Read more »

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A Great Big World Addresses Fighting MS With Powerful Song: VIDEO























Rebecca Granet, Chad King and Ian Axel

A Great Big World is addressing the struggles of living with multiple sclerosis through a powerful ballad.
Read more »

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MS: experts speak about challenge of neurological disorder
























KARACHI: Hundreds of youngsters are getting disabled every year in Pakistan at the hands of rare neurological disorder, MS due to lack of diagnostic and treatment facilities at district hospitals in the country.
Read more »

 

JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML

































A mutation in a mouse model of the John Cunningham (JC) virus, which causes progressive multifocal leukoencephalopathy (PML), allows the virus to evade the host immune responses in people with MS, according to a study into the mechanisms of PML.
Read more »

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Difficulties in adjustment to MS: vulnerability and unpredictability of illness in the foreground: STUDY

























Image Source: SRXAWORDONHEALTH
Read more »

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Wednesday

 

Celebrating 30 Years of Collaboration, Research and Commitment to Change the Face of MS











By Cathy Chester

Collaboration. Teamwork. Focus. Dedication. Commitment. Influence. Accomplishments. Advocacy. Compassion. Leadership. Research. Professional Outreach. Education. Role Model. Purpose. Understanding.

I take great pride in my association with The Consortium of Multiple Sclerosis Centers (CMSC) which will be celebrating 30 years of serving the multiple sclerosis community. Through its support for clinical care, research, education, new and ongoing projects, advocacy, influence on healthcare policy, disseminating information to the community and building external relationships with like-minded sponsors, partners and professional organizations, the world of MS is changing for the better.
Read more »

 

ReWalk tech to help stroke, MS victims get moving























Prime Minister Benjamin Netanyahu (left) and US President Barack Obama look on as disabled IDF veteran Radi Kaiuf demonstrates the ReWalk exoskeleton system. Kaiuf, who was formerly nearly fully paralyzed, completed the Israel Marathon in 2012 using the system (Kobi Gideon / GPO /FLASH90)

Israeli-developed exoskeleton technology will be applied to help millions who can’t walk by themselves but are not paralyzed

The ReWalk system has done wonders for quadriplegics, providing them with a method of being able to walk again – or even run a marathon, as several paralyzed individuals have done while wearing the ReWalk exoskeleton suit. Now, a version of the system will be used to help a much larger cohort – individuals who have difficulty moving about due to stroke, MS, old age, or other reasons
Read more »

 

Relapses Prevented in MS Mouse Model





























Researchers at the University of Heidelberg, Germany, recently showed that peripheral blood cells loaded with a drug that resembles the myelin protein are able to inhibit harmful immune responses and prevent relapses in a mouse model of relapsing-remitting MS.
Read more »

 

International MS treatment allows Ga. woman to dance at son's wedding































A South Georgia woman's battle against her incurable, debilitating disease sent her to the other side of the globe looking for a cure. Saturday, her journey culminated as she danced at her son's wedding.
Read more »

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Predictors of Fatigue Impact in Persons With Long-Standing MS: STUDY

























Image Source: BETTERHEALTHPRACTICE
Read more »

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Tuesday

 

Sensational Headlines and False Hope

























Image Source: LIVELUVCREATE

By Stephanie Buxhoeveden, RN, MSCN

I think of myself as an optimistic-realist. I know that there is no cure for my MS, but I am certain that there will be one someday. I am confident that we will soon be able to treat all types of MS more effectively, and to even repair some of the damage that has been done. I am optimistic that, within my lifetime, we will learn why and how this disease has latched on to so many of us, and finally be able to protect future generations from it.
Read more »

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The Secret Life of Carla Basante: Fighting for independence, self-esteem on World MS Day: VIDEO






























Carla Basante gives her son Joseph 16, a hug at her home in Lebanon Township on May 11, 2016. Image Source: Alexandra Pais/Courier News

Lebanon Township woman feels empowered after participating in a Kessler Foundation study

Carla Basante may wake up and take her dog for a walk before returning home for a cup of tea, a gluten-free cookie and a little time in front of the Hallmark Channel.
Read more »

 

MS vs. stroke, differences in symptoms, causes, and treatments





























Multiple sclerosis and stroke may seem like they don’t have much in common, but they both affect the brain and the nervous system and so they have a lot more in common than you think. Multiple sclerosis is an autoimmune disease in which myelin becomes damaged. The nerves are exposed as a result, lending cause to the variety of symptoms to arise.
Read more »

 

In MS, urinary tract infection symptoms seen in more than half the patients: STUDY


























Image Source: BIANOTI

In multiple sclerosis (MS), urinary tract infection symptoms are seen in more than half of patients, according to research. The study found that nearly 70 percent of multiple sclerosis patients had urinary tract problems, adding to their disability.
Read more »

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Pregnancy outcomes in Lebanese women with MS (the LeMS study): a prospective multicentre study: STUDY

























Image Source: LEBANESEEXAMINER
Read more »

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Monday

 

Dealing with MS: One Man's Story
















































Dan Melfi, diagnosed with MS in 2009, is still getting the hook in the water and considers exercise to be part of his medicine. 
Image Source: NORTHAMERICANPRECISSYNDICATE

MS is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain and between the brain and body. More than 2.3 million people are living with MS worldwide.
Read more »

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MS doesn't keep Ohio congressman's chief of staff from making mark































Stacy Barton

Stacy Barton was 35 and a rising star on Capitol Hill when reality crashed down on her.
Read more »

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ReWalk and Wyss Institute Working to Develop Soft Exoskeletons for MS and Others with Limb Disabilities




























ReWalk Robotics, Ltd., announced it is partnering with the Wyss Institute for Biologically Inspired Engineering at Harvard University to further develop and test lightweight exoskeleton systems for people with disabilities affecting their lower limbs, including those with multiple sclerosis (MS).
Read more »

 

MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says























Previous studies suggested that multiple sclerosis (MS) and Hodgkin lymphoma might share underlying causes, including exposure to microorganisms in childhood, such as Epstein-Barr virus (EBV) infection. In the study “Multiple sclerosis and risk of young-adult-onset Hodgkin lymphoma,” published in the journal Neurology: Neuroimmunology and Neuroinflammation, researchers suggested that common inherited or acquired risks for these conditions do exist.
Read more »

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Gut microbiota in early pediatric MS: a case−control study: STUDY



































Image Source: UNIVERSIDADPABLODEOLAVIDE
Read more »

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Sunday

 

Woman with PML Linked to MS Therapy Successfully Treated with IL-2 Cytokine




























A case report of a woman with relapsing-remitting MS, who developed progressive multifocal leukoencephalopathy (PML) after natalizumab therapy, found that the immune-boosting molecule interleukin-2 (IL-2) might be a viable therapeutic option to fight this life-threatening complication although further study is needed.
Read more »

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Understanding A Social Security Disability Denial






















Image Source: DISABILITYBENEFITSTODAY

By Mariah Z. Leach

After the long, confusing process of applying for Social Security disability benefits, it is understandably very frustrating to receive a denial. While the Social Security Administration (SSA) has no official policy to deny first-time applications, it is fairly easy to see why some people might think they do! Though the rate of denial varies from state to state, nationwide about 65% of all disability claims are denied on the first application.
Read more »

 

Inequalities in MS care leave Colchester patients feeling abandoned - the MS Trust discover

























IN 1993 Jay Denton’s life changed forever.
Read more »

 

Woman receives experimental treatment for MS: VIDEO























An afternoon by the pool is typical for Heather and her kids, but there was a time when  such an activity wouldn’t have been possible.   The mother of two didn’t feel comfortable watching her kids on her own.
Read more »

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Rationale and design of a randomized controlled clinical trial of functional electrical stimulation cycling in persons with severe MS: STUDY




























Image Source: AMSVANS
Read more »

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