FRONT PAGE AMPYRA AUBAGIO AVONEX BETASERON COPAXONE EXTAVIA
Stan's Angels MS News Channel on YouTube GILENYA NOVANTRONE REBIF RITUXAN TECFIDERA TYSABRI
 Daily News for Neuros, Nurses & Savvy MSers: 208,152 Viewers, 8,368 Stories & Studies
Click Here For My Videos, Advice, Tips, Studies and Trials.
Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
Click here to read my columns
Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
CLICK ON THE RED BUTTON BELOW
You'll get FREE Breaking News Alerts on new MS treatments as they are approved
MS NEWS ARCHIVES: by week

HERE'S A FEW OF OUR 6000+ Facebook & MySpace FRIENDS
Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


Click to view 1280 MS Walk photos!

"MS Can Not
Rob You of Joy"
"I'm an M.D....my Mom has MS and we have a message for everyone."
- Jennifer Hartmark-Hill MD
Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
"This is how I give myself a painless injection."
Heather Johnson

"A helpful tip for newly diagnosed MS patients."
"Important advice on choosing MS medication "
Joyce Moore


This page is powered by Blogger. Isn't yours?

Wednesday

 

‘Clinic Speak’ Helps People With MS Take Control




























By Trevis Gleason

The past couple of weeks have been exhausting for me, but at the same time, I’ve been rejuvenated with great information about living our lives with MS.

Two weekends ago I was at MS Life 2016, an event in London for people with MS and their families, and this past weekend I attended two days of presentations (one for healthcare providers and the other for people living with MS) as part of MS Ireland’s annual patient conference.

The presenters at both of these events have given me mounds to digest regarding medical research, coping strategies, and advice on general well-being. I intend to share much of what I have learned over the coming months.

One thing that really impressed me each time it was mentioned is the new Clinic Speak website.

Putting Neurological Tests in Patients’ Hands

Clinic Speak is an ongoing project of Gavin Giovannoni, PhD, a professor of neurology at the Center for Neuroscience and Trauma, Blizard Institute, Barts and the London School of Medicine and Dentistry.

In its early stages at this point, the website helps us understand some of the tests we may be given by medical professionals and provides some tools to help us monitor our own disease progression. In the future, many more tools will be added to the site, with the goal of enabling those with MS and their families to feel more empowered and in control of their medical care.

Inviting Patients to Medical Conferences

This idea of having people living with MS evaluate their own level of disability or to have a 9-hole peg test (a test that monitors arm and hand function) in their possession might be radical, but Dr. Giovannoni has been shaking the current standard tree for quite some time. In his latest blog post, in fact, he called upon the organizers of MS medical conferences to start inviting people living with multiple sclerosis.

“Patient involvement in academic medical conferences is an important step to bring patients closer to the conversations driving the future of healthcare,” Giavannoni writes.

How bloody novel! Let’s get the people who are the benefactors (as well as often the funders) of MS research into the conversation at the level of the medical professionals.

Having Patients Rate MS Centers

Giovannoni is even in the process of developing a patient review system for MS centers that would function much like Trip Advisor does for tourists and diners. Talk about shaking up the system!

Story Source: The above story is based on materials provided by EVERYDAYHEALTH
Note: Materials may be edited for content and length


Go to Newer News Go to Older News