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Department of Neurology
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Thursday

 

Difficulties in adjustment to MS: vulnerability and unpredictability of illness in the foreground: STUDY

























Image Source: SRXAWORDONHEALTH



Abstract

Purpose:
Multiple Sclerosis (MS) is a progressive neurological disease characterized by an unpredictable risk to develop relevant disability over time. Few studies focused on the core psychological features of difficulties in adjustment to MS. This qualitative study aims to explore the illness experience of people with difficulties in adjustment to MS, paying more attention to both illness representation and shifting perspective.

Method:
Nineteen persons with difficulties in adjustment to MS participated in the study and their interviews were analyzed using thematic analysis.

Results:
Considering the Shifting Perspective Model, illness is rigidly placed in the foreground, and wellness decisively pushed in the background, with a lack of flexibility in shifting between the two perspectives. The thematic analysis delineated three main topics: illness representation; coping strategies; relationships with others. The illness representation is characterized by invalidating symptoms; unclear cause; sudden onset; unpredictable course and uncertain prognosis; severe impact on person’s functioning; and low sense of internal control. Participants reported to mainly use emotion-focused coping strategies.

Conclusions:
Adjustment can be supported activating psychological intervention addressed to patients’ illness representations and more flexibility in the shifting between illness and wellness in the foreground.

Story Source: The above story is based on materials provided by TAYLOR&FRANCISONLINE
Note: Materials may be edited for content and length

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