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Saturday

 

MS on the Web: How to Find the People and Information You Really Need





















This past weekend, we had the great pleasure of hosting an old friend and his wife. They were in for a bit of hiking and seeing the sights. We enjoyed some good food, and it was a great chance to catch up.

I’m paying for the energy expended, but it was worth the effort.

This old friend Andrew Schorr is, among other things, the founder of Health Talk, which was eventually folded into the Everyday Health that we know today. Along with Everyday Health’s executive managing editor, Rose, Andrew was partly responsible for getting me to start the Life with Multiple Sclerosis blog back in 2006.

I’ve had a chance to read his book, The Web-Savvy Patient, and it reminds me of how important it is not only to know that a map of living well with a disease exists, but also to know how to read the map — in this case, the Internet.

Andrew’s book, which is available as a paperback, e-book, and audio book, offers tips on connecting with other people who have your same condition, and on finding the right doctor, hospital, or other medical care provider for your situation.

From my own online explorations of sites related to multiple sclerosis (MS), I have found the following resources to be helpful when it gets a bit foggy out there:

  • MS Friends, a service of the National Multiple Sclerosis Society (NMSS), offers one-on-one peer connections.
  • Shift.MS is an online social network for people living with MS.
  • The MS Navigator program, also a service of NMSS, is a helpful group of professionals who can guide us on the journey.
  • And of course, there is this blog and the thousands of wonderful readers who contribute their comments and ideas to the conversation.

What are some of the other helpful places you’ve turned to when you couldn’t figure out what it all means, and where to go next?

Photo Credit: Corbis

Story Source: The above story is based on materials provided by EVERYDAYHEALTH
Note: Materials may be edited for content and length


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