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Timothy L. Vollmer, MD
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Multiple Sclerosis Institute
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Weill Medical College of Cornell University

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University of Colorado Health Sciences Center
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Wednesday

 

Yoga: My life after 50 is fabulous despite Multiple Sclerosis by Cathy Chester

 

Researcher Receives NIH Grant to Explore Possible MS Therapy | Miller School of Medicine

 

JCNBC's Jim Cramer's: The Go-To Medical Marijuana Stock

 

Gastrointestinal Tolerability Study Of Tecfidera In Participants With Relapsing-Remitting Multiple Sclerosis: ClinicalTrials.gov

 

Multiple Sclerosis Patient Kristen Marr Shares Her Stem Cell Treatment Results

 

Heat Regulation Dysfunction May Stop MS Patients from Exercising

 

VIDEO: Female hormone estriol reduces Multiple Sclerosis relapse rate by nearly 50%, Dr. Rhonda Voskuhl, UCLA neurologist reports

 

Rural and Urban Hospitals Differ in Patient Care

Tuesday

 

MS nurse has 5 tips for dealing with the cognitive impacts of MS

 

Wheelchair bound woman killed in kitchen fire

 

SINGER DIDN'T KNOW SHE HAD MS “I was belting something out on stage and then my leg went so I took a dive”

LEADING Perth music identity Donna Greene, of Camillo, knew something wasn’t right her leg started to roll while performing on stage with her band Lady Zeppelin at a show last year.

“I was belting something out and then my leg went so I took a dive,” she said.

“It would of looked great for the audience – it was very rock ’n’ roll.

“But I was singing away and had to get up somehow. I clinched myself up when I took a big note and managed to keep performing.”

Greene, an internationally recognised singer who has worked in the music industry for more than 25 years as a manager, entertainer, event co-ordinator and music promoter, did not know she was experiencing symptoms of multiple sclerosis.
Read more »

 

Rutgers professor’s advanced analysis could let therapy start earlier

 

The PML RESTORE trial: What did we learn about Tysabri, PML and multiple sclerosis?

The information from the RESTORE trial helped to clarify an important question about whether or not Tysabri (natalizumab) can be used intermittently. The results suggest that a planned interruption of treatment results in a worsening of the MS. Clinical worsening occurred in as little as 1 month, whereas MRI changes did not occur until after the third month without natalizumab.
Click here to read more

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Monday

 

Absence of Gene Leads to Earlier, More Severe Case of Multiple Sclerosis

A UC San Francisco-led research team has identified the likely genetic mechanism that causes some patients with multiple sclerosis (MS) to progress more quickly than others to a debilitating stage of the disease. This finding could lead to the development of a test to help physicians tailor treatments for MS patients.

Read more »

 

MSer wants others to share in his 'miracle' of Lemtrada

Harold Johnson has a carved cane his father bought him from Mexico and a walking stick that's taller than he is.

"I love for them to get dust," said the 43-year-old Swansea man who was diagnosed with multiple sclerosis in April 2005. He used them for balance from time to time, but no longer needs sticks or his walker.

The experimental drug, Lemtrada, has kept his symptoms at bay since 2009. No wonder he's such a big proponent of the drug that's now being reviewed by the U.S. Food and Drug Administration.
Read more »

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Drug Stops Inflammation in Disease Often Confused with Multiple Sclerosis

 

CHICAGO MS ACTIVIST FATALLY SHOT AFTER LEAVING ANTO-VIOLENCE SEMINAR

 

Update

GREEN TEA MIGHT HELP MS COGNITION

NEW STUDY: 
"Green Tea's Impact on Cognitive Function Now Visible"

"Green tea appears to boost memory by enhancing functional brain connectivity, a new imaging study suggests"
Read more »

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Nearly half of MS patients did not tell their healthcare team they had experienced a relapse

 

Teva's Copaxone: Perspectives From a Patient and Investor

Yay, fewer shots!
Taking my shots is a daily torture, even if the needle is hidden in this big, plastic injection tool. Needles freak me out. I'll watch zombie movies with gore splattering all over the screen, but give me a medical show with doctors and nurses wielding syringes, and I'll look away until it's over.
So you can imagine my relief when Teva said that Cpaxone had been FDA-approved for a less rigorous dosing schedule. Now I have the option to drop down to three shots a week, with each syringe holding twice the payload of my original shots. I love it.
Normally, I'd be all over this option like pastrami on rye. But not this time.
What's not to love?
You see, it ain't that simple. Copaxone patents are about to expire on May 24, potentially leaving a big hole in Teva's annual revenue if biosimilars, or copycat versions of the drug, move into the market.
The modified dosing schedule offers MS patients a better way to manage the disease, but I wonder if it also has to do with protecting Teva's bottom line and stretching the golden goose to last as long as possible. The company is trying to shift as many patients as possible to the improved dosing schedule in order to differentiate its product from potential generic competitors. Additionally, the patent on the new formulation extends to 2030. 
As a consumer, I dislike this kind of thing more than I despise needles. While I
Read more »

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“The challenge of MS is that it’s very different in different people,” said Dr. Peter Calabresi, director of the Multiple Sclerosis Center at Johns Hopkins School of Medicine

Sunday

 

BREAKING NEWS ON PML: FDA probes brain infection in patient with MS drug PML

US FDA raised an alert in Europe after emergence of a case of progressive multifocal leukoencephalopathy (PML), following the administration of Novartis multiple sclerosis drug Gilenya
FDA investigates multifocal leukoencephalopathy (PML) in patient on Novartis multiple sclerosis drug Gilenya

Read more »

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Video: STEVE NISSEN, DIRECTOR OF EMPLOYMENT PROGRAMS FOR THE NATIONAL MULTIPLE SCLEROSIS SOCIETY, DESCRIBES MS SYMPTOMS AND HOW THEY AFFECT DISCLOSURE

 

HERE'S A NEW EDITORIAL ABOUT TYSABRI AND THE PML PROBLEM FOR MSers NEEDING TO QUIT TYSABRI

Tysabri/Natalizumab discontinuation in the increasing complexity of multiple sclerosis therapy
Read more »

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Video: Q&A WITH TEX WELLS, EMBATTLED BBQ OWNER & MSER

 

Purdue University licenses innovative technology to treat MS

 

DO YOU BELIEVE: Patricia's 3 wheel electric MS mobility bike was stolen

Saturday

 

Robin's doctor had failed to warn her about temporary blindness or any of the other serious and often concerning ways MS could affect her body

 

The Healing Power of Horses for MSers



The founders of The Bina Farm believe horses can help children with disabilities reach their full potential.

Read more »

 

Forward Facing Rowing System for MSers is da Vinci Award Finalist

 

Animal Models of Relapsing-Remitting Multiple Sclerosis - Pharmaceutical Business Review

 

Springfield Mass. wants 10% of money raised from MS walk: so MSers are forced to move

 

Beating Drums Help Relieve Pain of Multiple Sclerosis

 

Targeting B cells may help reduce disease activity for MSers

 

Noval neuroimaging technique enables detailed insights into mitochondria

Friday

 
TODAY IS VIDEO FRIDAY ON MSnewsChannel.com




















This Neurologist is making a plea to the Food and Drug Administration to reconsider its denial of Lemtrada, an investigational treatment for multiple sclerosis.

CLICK HERE TO WATCH THIS VIDEO INTERVIEW WITH ANN D. BASS, M.D.

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"The main objective of this pharmacological research is to identify potential new therapeutic uses for phytocannabinoids, some of which can already be prescribed by doctors to reduce the spasticity and pain of multiple sclerosis"

"My research group is currently focusing on the greatly understudied pharmacology of some of the many unique and fascinating compounds called phytocannabinoids that are produced by cannabis. We are investigating the pharmacology both of synthetic cannabinoids and of endocannabinoids – these are chemicals produced naturally by our own tissues to reduce the severity or unwanted effects of MS"

‘The main objective of this pharmacological research is to identify potential new therapeutic uses for phytocannabinoids, some of which can already be prescribed by doctors to reduce cancer pain or the spasticity and pain of multiple sclerosis.
Click here to read more

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Video...NEW MS MED: MIS416

NEW THERAPY PROVES EFFECTIVE FOR SECONDARY PROGRESSIVE MS
While their symptoms were not completely erased, both patients attest to the effectiveness of the therapy in helping to dramatically improve their quality of life and cognitive function.
SEE VIDEO HERE
Read more »

 

Video: Patricia Coyle, MD, Discusses Diagnostic Tools Utilized in Multiple Sclerosis














In this video, Patricia Coyle, MD, director, MS Comprehensive Care Center, Stony Brook Neurosciences Institute, professor and vice chair of clinical affairs, Department of Neurology, SUNY at Stony Brook, emphasized the need to establish biomarkers for the treatment of multiple sclerosis.
Read more »

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Thursday

 
Alek was relieved she was diagnosed with MS 

"I WAS AFRAID I HAD A BRAIN TUMOR"
A student who feared she had a brain tumor told of the agonising wait she faced while doctors worked to diagnose her condition.
Read more »

 
2 NEW MIGRAINE DRUGS ARE THE 1ST EVER THAT WORK TO PREVENT RATHER THAN SIMPLY TREAT MIGRAINES: STUDY SAYS THEY WORK

Two drugs given to people who suffer migraines reduced the frequency of their headaches in early trials, scientists said.
The test results “may potentially represent a new era in preventive therapy for migraine,” Dr. Peter Goadsby, an author on studies of both drugs, said in a statement.
Read more »

 

After a simple, modified Paleo diet reversed her multiple sclerosis, one doctor is saying: Prescriptions don’t make you well.

 

New data at AAN meeting of Neurologists to confirm efficacy of Novartis' Gilenya across four key measures of MS disease activity, including brain volume loss

 

Biogen beats revenue estimates as Tecfidera hits blockbuster status

 

Review of current MS treatments for physicians

 
POOR ARE AT GREATER RISK OF DEVELOPING MS

Adverse socioeconomic position (SEP), in both childhood and adulthood, is associated with a susceptibility to developing multiple sclerosis (MS), adding to the growing evidence linking lower SEP to a range of poorer health outcomes, according to a Californian study.

Factors associated with the risk of MS include parents renting versus owning a home, not having a college-level education and low social mobility. The authors conclude that “both genetic and environmental contributions to chronic conditions are important and must be characterised to fully understand MS aetiology”.

Story Source: The above story is based on materials provided by 
OCCUPATIONALHEALTH
Note: Materials may be edited for content and length

Briggs FBS et al (2014). “Adverse socioeconomic position during the life course is associated with multiple sclerosis”. Journal of Epidemiology & Community Health, first published online 27 February.

 

NEUROANATOMY & MS ARE TURNED ON THEIR HEAD BY NEW HARVARD FINDING

Harvard neuroscientists have made a discovery that turns 160 years of neuroanatomy on its head.
Myelin, the electrical insulating material long known to be essential for the fast transmission of impulses along the axons of nerve cells, is not as ubiquitous as thought, according to a new work lead by Professor Paola Arlotta of the Harvard Stem Cell Institute (HSCI) and the University’s Department of Stem Cell and Regenerative Biology, in collaboration with Professor Jeff Lichtman, of Harvard’s Department of Molecular and Cellular Biology.

“Myelin is a relatively recent invention during evolution,” says Arlotta. “It’s thought that myelin allowed the brain to communicate really fast to the far reaches of the body, and that it has endowed the brain with the capacity to compute higher level functions.” In fact, loss of myelin is a feature of a number of devastating diseases, including multiple sclerosis and schizophrenia.

Read more »

Wednesday

 

MS Patient, Ph.D.: A Pregnant Pause



My own experience suggests that awareness of MS’s impact on pregnancy is either low or outdated within the obstetrics community

One of the first people I told that I was pregnant, aside from my parents and in-laws, was my doctor. Of course you expect to tell your obstetrician (OB), or at least ask them to confirm the home pregnancy test. But most women outside of the MS community, I presume, would be surprised to be discussing reproductive health with a neurologist.

Read more »

 

HAROLD RECEIVED POSITIVE RESULTS WITH LEMTRADA BUT IS DISAPPOINTED THE FDA WON'T APPROVE IT

 

Dual Nerve Stimulation Helps Chronic Migraine

 

Full steam ahead for Copaxone copies as SCOTUS denies Teva's bid for delay

 

A specially designed, inexpensive insole could help boost the walking ability of MSers

 

"I HAVE NEVER BEEN MORE SCARED AND NERVOUS IN MY LIFE," LASHAE

 

NEW MS DRUG CANDIDATE LENALDEKAR COMES FROM ZEBRAFISH


Multiple sclerosis and acute lymphoblastic leukemia (ALL) have something in common: too many T cells. In MS, those T cells are directed against components of myelin. In ALL, immature T cells build up. So it makes sense that compounds that would lower the number of errant T cells in leukemia might also do so for MS.

That’s exactly what researchers reported in the April 2014 issue of PLOS ONE (Cusick et al., 2014). But the shared characteristic of the two diseases—which are otherwise very different—nearly derailed the development trajectory of the MS drug candidate, Lenaldekar (LDK). Fortunately, it’s back on track, with very promising results in a mouse model.

Read more »

 

Quantitative assessment of upper limb motor function in Multiple Sclerosis using an instrumented Action Research Arm Test

 

Gilenya helps Alzheimers

 
TOP HOSPITAL OFFERS CHINESE HERBS AS MEDICINE 
Evidence is lacking that herbs are effective
At the Cleveland Clinic, herbalist Galina Roofener meets with patient John McGeehan, who complains of chronic nausea.
Read more »

Tuesday

 

Beth Dean, Columnist and Drug Alert Editor, MSnewsChannel.com

I've written 15 Columns for you!
Read them by clicking on my 
photo on the far left
side of this page

DATING IN GENERAL SUCKS: DATING WITH MS IS TOUGH!

All kinds of things to think about, ponder over…Should I tell them up front, should I wait? What if they get scared or think I’m weird? Will they think they can catch it, will it matter? It’s all very frustrating to say the least! I think one of the big things for me was the physical limitations I was dealing with. 

I was so embarrassed for anyone to see me walk, try to put my hair in a ponytail…even stand still for any amount of time because my legs would start shaking uncontrollably! Because of all of these factors and because I was freshly diagnosed and still dealing with it myself, I just avoided it all together! I talked to men, but at all costs I avoided meeting them in person! When I finally come to grips with the fact that I’ll have this disease for life, and this is who I am now…things got a little easier.
Read more »

 

Paul will undergo autologous haematopoietic stem cell transplant in Russia to fight multiple sclerosis


A father’s pursuit of a long and loving family life will see him risk all with an expensive treatment in Russia.
Paul Catelli, 39, was diagnosed with progressive multiple sclerosis two years ago, when his wife, Sonia, was pregnant and his oldest daughter, Mikayla, was just 18 months old.

“I was six weeks pregnant and it was an absolute shock,” Mrs Catelli said.

“We were just starting our own business and just gotten married, it was the worst thing that could have happened.”

Read more »

 

Umbilical Cord Stem Cell Therapy Clinical Trial for Multiple Sclerosis Gets Green Light

 

Gilenya leads to rare disease in patient

 

MSers pay less now for Illinois medical marijuana patient card: $100

 

Brain reserve and cognitive reserve protect against cognitive decline over 4.5 years in MS

 

Sexual health and aging: Keep the passion alive - Mayo Clinic


Sexual feelings don't disappear as you age. Here's how to keep the flame burning.

Read more »

 

Biogen profit rises as Tecfidera shines

 

Natco Pharma surges as US court allows Generic Copaxone launch

 

CMS—Engaging Multiple Payers in Payment Reform: Journal of the American Medical Association

 

Update

THE FATIGUE THAT MSers EXPERIENCE IS VERY DIFFERENT FROM THE TYPE EXPERIENCED BY HEALTHY PEOPLE

Victoria M. Leavitt, Ph.D., neuropsychologist & co-founder of the Manhattan Memory Center 



“When I share my research on fatigue in MS with colleagues or friends,” Victoria M. Leavitt, Ph.D., a neuropsychologist and co-founder of the Manhattan Memory Center in New York City told Healthline, “they say they know what it’s like, but the truth is they don’t.”
MS fatigue usually occurs every day, with lack of energy peaking by mid-afternoon. Onset can be sudden and is aggravated by heat.
Read more »

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Monday

 

23 HEALTH BENEFITS OF MEDICAL MARIJUANA

In Tuesday's news

 

BREAKING NEWS: TEVA WANTS TO PAY $500,000,000 TO STOP GENERIC COPAXONE FROM BEING SOLD IN US

 

BUDDY ALLEN WANTS & NEEDS LEMTRADA




When Robert “Buddy” Allen could no longer run after a Frisbee, he thought the cause was an old childhood injury -- when he got hit by a car. A neurologist, a chiropractor and an orthopedic surgeon all weighed in on Allen’s symptoms, which included tightness in his right leg and an overall stiffness in his body, but no one could pinpoint the culprit.

Read more »

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Incontinence-related quality of life improved significantly during Tysabri

"Blocking inflammation in the CNS does not just stop relapses, it can improve fatigue in some people and as shown here can help with bladder function also..."
  • UDI-6 and IIQ-7 scores were significantly improved in patients with MS following natalizumab treatment.
  • The majority of patients showed improvement or stability in number of incontinence episodes per week and in number of micturitions per day after starting natalizumab.
  • Natalizumab may reduce the impact of incontinence on QOL.

HERE'S THE STUDY:

Read more »

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BREAKING NEWS: Pfizer considers $100 billion bid for AstraZeneca

 

The pitfalls of giving free medical advice to Family and Friends

There are some situations for which medical school simply doesn't prepare you. Consider Thanksgiving dinner, when Aunt Myrtle buttonholes you about a recurring rash that's been bothering her. Or the sideline consult that one of the parents at your kid's football game wants to have, right after her son lands awkwardly trying to catch a pass.
Click to read: you will need your Medscape Physicians password

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A Drop at a Time: How Cannabis Oil is Changing Lives of Cancer Patients in the UK

 

Do MS patients and proxies agree? Study

 

After being diagnosed with MS, Lori started caring for rescued exotic animals to pass the time.
"My doctor told me to get a hobby"
Read more »

 

A message from the Editor of MSnewsChannel.com

Here's a few of the FeatureStories we're working on for you: we will be posting 1 or 2 tomorrow & every day (usually) 7 days a week:
  • HISTORY OF STEM CELLS: 15 PHOTO SLIDESHOW
  • THE BEGINNING OF RICHARD COHEN'S STEM CELL JOURNEY
  • What is a TENS machine? It might help MS
  • MSer will swim 10-11 hours across lake
  • Stressful life-events in childhood and risk of MS: Parental divorce is somehow associated with modestly increased risk of MS
  • Legalize Medical Marijuana, Doctors Say in Survey! Neurologists reported the highest number of patients asking if medical marijuana might help the.
  • NEW STUDY: MEDS HELP IMPROVE MSers STANDING BALANCE
  • From Plant to Prescription: 5 Ways Marijuana Made It to the Market
  • Pregabalin an Effective Alternative for Restless Legs Syndrome
  • TYSABRI AS "1ST-LINE" TREATMENT FOR MS
  • MARY TELLS ABOUT: “It was amazing...I was so thrilled that it gave my body the feelings it had pre-MS.”
  • MS IS A DISCRIMINATORY DISEASE
  • HOW THIS SUICIDE RELATES TO MSers: "The topic of suicide was thrust into the headlines recently with the death of L'Wren Scott, a fashion designer whose March 17 death was ruled a suicide by police"
  • THE BEST WAY TO QUIT SMOKING THAT YOU HAVE NEVER READ ABOUT
  • Can the bacteria in the GI Tract affect MS? 
  • CHILD NAMED ROTEM WAS INSPIRATION FOR AN INVENTION THAT ALLOWS MOBILITY-CHALLENGED LITTLE ONES TO EXPERIENCE WALKING
  • PLUS MANY MORE!!

Editor
Stan Swartz

PS...Have a Story or Study you want posted? Or are you a Neurologist or Nurse and want to share some advice? e-mail at: stanswartz@mac.com
  • We posted 5,560 Stories for Doctors, Nurses & Savvy MSers in 2013
  • We're building the 12 MS Drug Treatment Channels at the top of this page & hope to finish them by June 1, 2014!
  • Our 32 Columnists have written 210 articles for you since we started the Columns 3 months ago
  • News is posted at Midnight 7 days a week
  • 180,618 VISITORS! 

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Cindi Hopper Columnist MSNewsChannel.com



MY COLUMN WILL MAKE YOU BOTH ROTFL AND CRY! PLUS: I'LL TELL YOU WHAT GIFT YOU NEED TO BUY YOURSELF: IT HELPS ME FIGHT THE MONSTER

If there’s one thing those of us that have been diagnosed with Multiple Sclerosis or any other “invisible illness” as I like to call it do, its improvise. We have to “suck it up” a lot around non believing friends and family members more times than not just because of ignorance and unawareness.
Read more »

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Woman finds new life through MS

MS MADE ME A BETTER MOM

"Jasmine Winkelman is thankful she got multiple sclerosis (MS).

It made her slow down in life, not work so much. It caused her to appreciate and spend more time with her young sons. To actually stop and smell the roses while taking a walk.

“In a lot of ways, I started living for the first time when I got MS,” said Winkelman, who is the ambassador for the upcoming MS Walk at the Northland Arboretum.

But that appreciation didn’t happen right after her diagnosis. Instead, it would take a year and-a-half of struggling with the disease to finally accept and grow from it.

Rewind back to March 2010. Winkelman, now 31, woke up one morning with the right side of her face, tongue and her hand numb.

Read more »

 

Mind over body: Multiple sclerosis may have left This Social Worker dependent on a walking stick, but it has not weakened her will

Multiple sclerosis may have left Maheswari Narashiman dependent on a walking stick, but it has not weakened her will.  Don’t let the walking stick, a bent back, and a frail body mislead you into thinking she is home bird, a recluse who fears socialising.

This admirable lady is a fighter whose protective gear is her will power. Diagnosed with multiple sclerosis over 15 years ago, she may have had many up and downs where her health is concerned, but she is not giving in to the progressive disease.

Maheswari has used the power of the mind to overcome her biggest fears, that of becoming bed-bound.

Read more »

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Sunday

 
Multiple sclerosis experts hailed the results as a major development in the treatment of secondary progressive MS

Reducing brain shrinkage “is a big deal,” 

Richard M. Ransohoff, MD,
said Richard M. Ransohoff, MD, director of the Neuroinflammation Research Center at the Cleveland Clinic Lerner Research Institute, staff neurologist at the Cleveland Clinic's Mellen Center for MS Treatment and Research, and professor of molecular medicine at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University.


Researchers reported that, in a double-blind trial, patients with secondary progressive multiple sclerosis who took simvastatin showed a 43 percent reduction in the annualized rate of brain atrophy compared with the placebo group.

Simvastatin (Zocor), one of the most widely prescribed statins, appears to slow brain shrinkage in patients with secondary progressive multiple sclerosis (MS). Since brain shrinkage is the most reliable marker of worsening disease, the findings, if they hold up, could make simvastatin the first treatment capable of affecting the late-stage disability that eventually affects about 65 percent of MS patients.“
Read more »

 

TIPS FROM MONTEL: PART 1

"MY MOST PERVASIVE SYMPTOM HAS ALWAYS BEEN PAIN IN MY LOWER EXTREMITIES"

Read more »

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Judi Lecoq, Columnist: I'M BACK TO TELL YOU THE 5TH CHAPTER IN MY STEM CELL STORY

I've written 12 columns for you
on my Stem Cell Journey!
Click my photo on far left side
of this page to read them
Finally! I am back to tell you more of my Stem Cell Story. Thank you for staying with me. So last time, we were at the end of treatment 2. I want to share with you some of the things that happened in my life after this treatment.

4 months post-Stem Cells: This is Judi, the girl with MS, the weak, fatigued girl who 1.5 years ago could barely stand up. This girl hibernated in her house more often than not.
2 Adult Stem Cells Treatments later: -light water aerobics, then lunch and work, followed by dinner with the girls and then gathering with the boys by the pool...Paperwork, cleaning, Home Depot to chose paint colors, meet the kids for dinner...
intensive cleaning and detail the house and then dinner with the neighbors....Host a Wedding Shower and then party till 1AM with friends....up early to enjoy the “cold front” and then hit the exercise room for 1 hour. Was this possible before? Not even….
Read more »

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U.S. SUPREME COURT AGREES TO HEAR PATENT CASE THAT COULD IMPACT TIMING OF AVAILABILITY OF MORE AFFORDABLE GENERIC COPAXONE

 

RARE FAMILY CLUSTER OF MS REVEALS NEW CLUES

 

GOOD NEWS FOR MSer INFECTIONS: Study: Inhalable encapsulated antibiotic from Aradigm kills 99% of infections

 

Quantitative assessment of upper limb motor function in MS using an instrumented Action Research Arm Test: Study

 

NEW FINDINGS FROM MICE MAY REWRITE OUR UNDERSTANDING OF JUST ABOUT EVERYTHING MYELIN-RELATED

 

Antibody Testing Affects MS Therapy Management

 

IMMUNOLOGY OF MS: EARLY B CELLS FOUND IN GUT

 

IS AVONEX GOOD OR BAD FOR PREGNANT MSers?

IS AVONEX GOOD OR BAD FOR PREGNANT MSers? HERE'S A NEW STUDY


BMJ Case Rep. 2014 Apr 7;2014. pii: bcr2013201273. doi: 10.1136/bcr-2013-201273.

Interferon β-1a therapy for multiple sclerosis during pregnancy: an unresolved issue
Abstract
On the basis of evidence from clinical trials, contraindications to the use of interferon (INF) are pregnancy, epilepsy and depression. Management of multiple sclerosis during pregnancy is a difficult issue because of pregnancy-related complications and fear of congenital anomalies due to exposure to disease-modifying therapy. In different series, INF therapy was withdrawn before or after variable periods of exposure. This case illustrates a 26-year-old woman diagnosed with relapsing remitting multiple sclerosis who was treated with a weekly regimen of intramuscular INF-β 1a (Avonex). She had received this treatment throughout her pregnancy without any further exacerbations of symptoms or any untoward pregnancy-related complications. In contrast to different series, our patient had the longest exposure to INF-β during pregnancy.

Story Source: The above story is based on materials provided by PUBMED
ote: Materials may be edited for content and length

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Do patient and proxy agree? Long-term changes in multiple sclerosis physical impact and walking ability on patient-reported outcome scales.

Saturday

 

Jayce Parente, Columnist, MSnewsChannel.com


Jayce Parente,
Columnist,
MSnewsChannel.com
AM I DYING? I JUST STOPPED TAKING TYSABRI!

Am I ok?
Are these MS symptoms?

Are they the potentially lethal PML symptoms? 


I've been told to be "mindful" of PML symptoms yet PML symptoms and MS relapse symptoms are identical.

I know you're gonna say call my "Care Team" but what good is that when they are going to give me a script for a blood test in which it will take me a few days until I can have blood drawn only to wait a few days to get the results when I'm "supposed" to act QUICKLY?

So let me get this straight? I've taken a drug for 2 years that has been linked to causing progressive multifocal leukoencephalopathy (PML). I just stopped taking this drug and am currently detoxing from it.

I also have started to generate more intense symptoms SINCE stopping this drug. Are these MS symptoms?

Are they the potentially lethal PML symptoms?

I've been told to be "mindful" of PML symptoms yet PML symptoms and MS relapse symptoms are identical.

Well, identical with the exception of death or increased likelihood of seizures.
I've also been told if I suspect PML it is VERY important to respond quickly so a plasma exchange can be performed.

So, basically, am I supposed to wait for a seizure and I'm on the floor swallowing my tongue to figure out whether I'm having an MS or PML seizure?

So how do I tell?


Any of you guys have any ideas?

Since stopping the Tysabri I've been steadily degrading and gotten MUCH worse to a point I've been embarrassing myself
Read more »

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Whoopi's “vape pen” relieves the devastating glaucoma headaches she suffers without overwhelming her with a marijuana high



In her new column for The Denver Post’s Cannabist website, the Oscar-winning

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Read more »

 

IMPORTANT UPDATE: "American specialists should also be aware of this worrisome but rare adverse effect, said MS expert Aaron Miller, MD, Icahn Mount Sinai School of Medicine, NYC"

Aaron Miller, MD,
Icahn Mount Sinai School of Medicine
New York City
Cases of unexpected, serious, and even fatal thrombotic microangiopathy (TMA) linked to use of a new serum-free formulation of interferon beta (Rebif) have emerged in patients with MS
In a Letter to the Editor published in the March 27 issue of the New England Journal of Medicine, David Hunt, PhD, from Edinburgh University, and colleagues reported on 4 such cases that were diagnosed in South Scotland during an 18-month period. Regulatory authorities in the United Kingdom received 6 additional spontaneous reports of disorders related to TMA and the same formulation of interferon beta, which was introduced in Europe in September 2007, the letter notes. 

The authors call for specialists to be on the lookout for signals of this rare adverse effect of interferon beta in their patients with MS.

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Update

MSers STOPPING TYSABRI DO IT BECAUSE THEY ARE AT HIGH-RISK OF DEVELOPING PML....

BUT STOPPING TYSABRI LEADS TO REBOUND IN MS DISEASE ACTIVITY

GILENYA APPEARS TO PREVENT THIS REBOUND IF IT'S STARTED WITHIN 4 WEEKS AFTER THE LAST TYSABRI INFUSION



"The study below confirms what we already know; stopping Tysabri/natalizumab leads to rebound in MS disease activity.

Switching to a DMT on a lower-tier of efficacy, i.e. interferon-beta or glatiramer acetate, or taking steroids does not prevent this rebound.

Dr Gavin Giovannoni
In comparison, a higher-efficacy drug such as Gilenya/fingolimod appears to prevent this rebound provided it is started within 4 weeks after the last Tysabri/natalizumab infusion."

"Most MSers stopping Tysabri/natalizumab are doing it because they are at high-risk of developing PML. The major safety concern we have is so called carry-over PML; i.e. PML that presents in the first few months after starting fingolimod.

I am aware of two cases of carry-over PML on fingolimod. Carry-over PML is a problem in that we rely on the immune response to clear you of PML; it takes about 6-8 weeks for fingolimod to wash-out of your system and during this time PML can cause devastating damage. Our practice, to prevent carry-over PML and rebound disease activity, is to do a MRI and lumbar puncture shortly after the last natalizumab infusion. If the spinal fluid analysis shows no JC virus DNA and the MRI shows no evidence of asymptomatic PML we start fingolimod within 4 weeks of the last natalizumab infusion. So far this practice seems to be  working; touch wood we have had no cases of carry-over PML."
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Update

"MY PASTOR SAID CUTTING MY DREADS WOULD HEAL MY MS"


RAP STAR ZARA DIED LAST MONTH AT 28. CLICK HERE TO WATCH HER LAST INTERVIEW INCLUDING HER  TALK ABOUT MS AND HER PASTOR:
http://www.mycelebrityandi.com/my-pastor-said-cutting-my-dreads-would-heal-me-zara-gretti/

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Medscape Physician Compensation Report

Over 24,000 physicians in 25 specialties responded to this year's Medscape Compensation Report and described their compensation, number of hours worked, practice changes resulting from healthcare reform, and adaptations to the new healthcare environment
CLICK HERE: YOU WILL NEED YOUR MEDSCAPE PHYSICIAN PASSWORD

 

Green Tea's Impact on Cognitive Function Now Visible

 

"RESEARCHERS DON'T KNOW WHY SOME MS TREATMENTS WORK"

 

Quantitative assessment of upper limb motor function in MS using an instrumented Action Research Arm Test: Study

 

Alcohol Use Lowers Rheumatoid Arthritis Risk in Women

 

Low testosterone is associated with disability in men with multiple sclerosis

 

Does fatigue occur in MS patients without disability? Suggested running head: Fatigue and disability in MS

Friday

 

Lemtrada offers new hope for MSers living in Canada - Video

 

Easter Seals helps MSer regain his independence

 

Multiple sclerosis and 'miracle cures': sometimes it's the hope that'll kill you

 

A grandad who has Multiple Sclerosis has taken on a sponsored silence challenge lasting 28 days to raise money for charity

 

The route of administration and drug delivery technology has a huge bearing on the adoption of and compliance with new as well as existing drugs

 

IN A CLONING FIRST, SCIENTISTS CREATE STEM CELLS FROM ADULTS

 

Best way to measure MS disability

What is the best way to measure disability progression in multiple sclerosis patients? Two specialists took on the question: William Tyor, MD, of Emory University in Atlanta and co-director of the Emory MS Center, and Jerome Graber, MD, MPH, of Montefiore Medical Center in Bronx, N.Y. They recommended a variety of tools including standardized scales, MRI scans, and clinical judgment.

 

The Calculus of Cures — New England Journal of Medicine

 

Telephone counseling and home telehealth monitoring to improve medication adherence: Results of a pilot trial among individuals with multiple sclerosis

 

A longitudinal study on fatigue, depression, and their relation to neurocognition in multiple sclerosis

Thursday

 

April Barbosa, Columnist & Poet, MSnewsChannel.com

I used to think MS is not bad: Then the MS decided to show me its real power and it destroyed me from the inside out. 

Look for my 14 past Columns and my poetry on the far left side of this page! I have read so many stories from people with MS who have had loved ones abandon them because of their illness.
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NEUROLOGISTS REPORTED THAT MSers WERE MOST SATISFIED WITH AND ADHERENT TO GILENYA

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Crowdfunding Gets FDA-Approved Stem Cell Trial Off To Fast Start: Tisch MS Research Center of New York Exceeds $300K Crowdfunding Target for FDA-Approved Stem Cell Trial

 

By EMILY WILLINGHAM, PH.D. AND MSer

EMILY WILLINGHAM, PH.D.
DO PHYSICIANS ASK FEMALE MSers ABOUT ANXIETY MORE OFTEN THAN MEN?

The evidence might back up that practice, but MS confounds.

Neurologists ask me about anxiety a lot. The first question is, “Do you have children?” Following that is, “Are you an anxious person?” The two always seem to be connected, which makes me wonder if there’s some explicit instruction during training that links them.
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UPDATE: MSnewsChannel.com's EXPERT NEUROLOGIST: Timothy L. Vollmer, MD



There Wasn't the Type of Hope That There is Today For MSers

20 years ago if a patient had MS and they were looking for some type of a cure there wasn't the type of hope that there is today.  These areas are evolving so rapidly that the medical community is having a hard time keeping up. Although I've said that MS is one of the success stories, one of the problems that we have is that there's so many advances that are coming so rapidly that many healthcare providers that are involved with MS patients have a hard time processing all of the information. There is a huge number of patients and over 10,000 patient's papers a year written on multiple sclerosis. So, one of our challenges at the Rocky Mountains MS Center is to help disseminate this information in a usable way, and one of the issues that is really trying to change their thinking about what the goal of treatment of MS is.
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