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Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
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Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


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"MS Can Not
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"I'm an M.D....my Mom has MS and we have a message for everyone."
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"I've had MS for 2 years...this is the most important advice you'll ever hear."
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Monday

 

TYSABRI HELPS PROGRESSIVE MS IN NEW STUDY

 

9 ways to warm up this winter including taking a bath in cocoa

 

MSers SHOULDN'T GET AN OPERATION UNLESS ITS LIFE THREATENING: Sandra d'Auriol's suicide linked to 'post-operative psychosis'

 

Clay Walker and neurologist Jerry Wolinsky, M.D., are moderating a free public forum on the latest advances in multiple sclerosis at 10:30 a.m. on Saturday, April 5, at The University of Texas Health Science Center at Houston

 

VIDEO: Jack Osbourne can be a role model for MSers...MS survivor and advocate Nancy Davis told Daybreak this morning

 

MSer whose “inspirational” work to support other MSers received the MBE from The Queen in a ceremony at Buckingham Palace

 

NASCAR’s Bayne says he has multiple sclerosis

Sunday

 

LOVE AND MY WEEK LONG DATE by Katrina Taylor Chase, Columnist, MSnewsChannel.com

I've written 10 more Columns
for you! Click on my photo on
the far left side of this front
page to read them al

It seems that internet dating is the  easiest way to meet and date these days for someone like me, who is  disabled from multiple sclerosis and is at home most of the time

If I do go  out, it is to go to a doctor’s appointment or to run an errand. Also, there isn’t  much to do around where I live, so there isn’t much of an opportunity to meet a  potential date. I really didn’t know exactly what I was looking for either, but  I figured I would give it a try and maybe at the very least I would find  someone to talk to and maybe find a new friend.           

The first dating site I signed up  for was Match and I took advantage of the free trial of one week. I talked to a  few guys but nobody really interested me. I
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lol of the week





















A pharmacy in North Dakota has put a little girl's fears to bed, prescribing a bottle of "Monster Spray" to help keep at bay all the things that go “bump” in the night.
Read more »

 

Angela Groves, Columnist: PAXIL IS MY CURRENT POISON: I FEEL ALL DRIED UP! I CAN'T CRY ANYMORE

I've written 6 columns for you.
Click my photo on far left side
of this page to read them

MS and Antidepressants are two peas in a pod I want to focus on one thing today--depression. Depression and MS is a given. So most of us are forced to take an antidepressant. Myself--I have been battling depression for a long time and have tried several prescriptions. My current poison is Paxil. That's right I said poison. I have been doing great except one thing.

I feel all dried up! I just can't seem to cry anymore. I mean I have certain things that make me emotional, but nothing like I use to before antidepressants. Shit! I can't even cry for myself anymore. 

So when I get upset about having MS--I just get pissed off and I can't cry! Like I said, "I'm all dried up!"  
 XOXOX
ANGELA
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Cognitive Impairment: to Screen or Not to Screen?

 

April Barbosa, Columnist & Poet, MSnewsChannel.com

I've written 8 more Columns
for you! Click on my photo on
the far left side of this front
page to read them all.

MEDICAL MARIJUANA GAVE ME MY LIFE BACK!

When I was 19 I smoked marijuana for the first time. I remember cruising with my primo and some homies and they said they were going to get high. I was scared I had never tried it and didn’t know what it would do to me, but I didn’t want them to know this so I asked if I could try. When it was my turn to hit the joint I inhaled but not into my lungs just into my cheeks. One of my homeboys laughed at me and showed me the proper way to inhale. I started coughing and thought I was going to suffocate. But lo and behold I survived. We sat there in the car smoking it out. When the joint was gone I sat there waiting for something to happen. I was more talkative while everyone else was quiet.
Weed made me talkative and not only that, it relaxed my body. I had never felt better. The pain that I was already used to slowly went away. That day was one of the best days of my life I had no pain. I became a pot head. My family disapproved so I kept it hidden. For years I smoked the only thing I didn’t like was it sometimes gave me a headache.

Read more »

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Study: Diurnal Fatigue Patterns, Sleep Timing, and Mental Health Outcomes Among Healthy Postpartum Women

 

My Journey from Doctor to MS Patient, and Back

 

HOW MS MEDICATIONS DIFFER FROM EACH OTHER

 

"HERE'S COOL WEBSITES FOR DOCTORS" BY A DOCTOR! FROM MEDSCAPE

Nicholas Genes, MD, PhD

12 PHOTO SLIDESHOW ON MEDSCAPE: DOCTORS NEED A REGISTERED MEDSCAPE PASSWORD TO READ THIS STORY.
About a year ago, I recommended 10 great Websites that could help clinicians improve their practice of medicine and expand their understanding of health economics and information technology. A year is a long time in the Internet world, so I have compiled 10 new recommendations that are well worth your time to check out.
Read more »

Saturday

 

THESE ARE A FEW OF THE STORIES WE'VE POSTED THAT ARE BELOW THIS PHOTO: Studiesw & Storiess for the week of Saturday, March 23 to Saturday, March 29th

 

IS VITAMIN D GOOD FOR MSers OR IS IT A WASTE OF TIME & MONEY?

Vitamin D may slow the progression of multiple sclerosis (MS) and also reduce harmful brain activity, a new study suggests.

Correcting vitamin D deficiency early in the course of the disease is important, according to the report, published online Jan. 20 in JAMA NeurologyBut some experts say it's too soon to recommend giving vitamin D supplements to people with the central nervous system disorder.

"No one knows what the connection between MS and vitamin D is," said Nicholas LaRocca, vice president for health care delivery and policy research at the National Multiple Sclerosis Society. "What they suspect is that vitamin D has some effect on the immune system."

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Woman to undergo stem cell procedure to treat multiple sclerosis

 

Neil Cavuto's wife says it was "divine inspiration" that led to Cavuto's on-air disclosure of his own MS while interviewing a pharmaceutical executive

 

Deficits in ability to read others' intentions (Cognitive) but not emotions (Affective) Theory in mild relapsing remitting MS

 

SETH HAS MS & CEREBRAL PALSY AND WAS JUST DENIED THE MEDICAL MARIJUANA THAT HE SAYS HELPS HIS PAIN

 

Imaging Technique Shows Brain Anatomy Change in Women with Multiple Sclerosis, Depression

Cedars-Sinai Researcher Leads Multicenter Team in Study of Automated Imaging System Linking Damage to a Mood-Regulating Brain Structure in Women Who Have Multiple Sclerosis and Depressed Mood.
Read more »

 

Drug Company boss gets sacked for embarrassing failure for multiple sclerosis drug (oral cladribine) after a badly designed Phase III program ended in complete failure

 

Study: Composite end points to assess delay of disability progression by MS treatments

 

COPAXONE CLONE: Biotech Rival to Teva Blockbuster Said to Seek IPO

Friday

 



The findings also show young obese women are at greater risk of the disease, probably because they produce higher levels of a hormone known to regulate appetite.
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GENERIC COPAXONE SHOULD HELP MSers SAVE...

Synthon today announced that the company's glatiramer acetate (COPAXONE) met the main endpoint of a late-stage study in patients with relapsing remitting multiple sclerosis (RRMS). The Phase III Glatiramer Acetate clinical trial To assess Equivalence with Copaxone* (GATE) is to-date the only Phase III study conducted with a generic version of Copaxone and has demonstrated an equivalent efficacy and safety profile for Synthon's glatiramer acetate compared to Copaxone.

Read more »

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Actor diagnosed with MS set to perform her dance piece in new show examining mobility

 

26 PHOTO SLIDESHOW: Employed Doctors Report: Are They Better Off?

More than 4600 doctors told us what they like and dislike about employment and whether they plan to remain in their current situation. Although there are plenty of benefits to being employed vs in private practice, there are some clear downsides.
Read how Doctors who had previously been in private practice told us whether they were glad they made the switch or whether they regret it.

 

National MS Society Invests $29 Million In New Research

 

Study: Improvement of Driving Skills in Persons With Relapsing-Remitting Multiple Sclerosis

 

Police and prosecutors deny mishandling case involving Hamilton MSer who says she was raped in Trenton

 

TECFIDERA: Biotech Stocks: Seeing Rainbows, Missing The Rain (Forbes Magazine)

 

Synthon announces successful outcome of the Phase III GATE study with its generic glatiramer acetate/COPAXONE

 

Researchers Testing Gene Therapy to Thwart Effects of Multiple Sclerosis

Thursday

 

"TO CANE OR NOT TO CANE" By Judi Lecoq, Columnist, MSnewsChannel.com

I've written 9 more Columns
for you! Click my photo on
the far left side of this front
page to read them all

When, why, what….how did the cane come into my life? 

What the heck?  Okay, I know there were some signs, I admit it. 

Like the time my daughter, an amazing athlete at 10 years old, had a softball game.  This was before MS, or before that little pesky companion was named.  I definitely had all the signs and symptoms, but it took many years to actually give it a name.  We got out of the car and took the tree shaded sidewalk to enter the ballpark.  Somehow, I veered off the path and knocked over a trashcan….LOL.  My daughter was so embarrassed but I just laughed it off, what a clumsy girl I am! 

MY 3 CANES
Or how about those days when we were exhibiting my Husband’s French Sauces and Vinaigrettes at the World Trade Center in Dallas.  The Gourmet Market was teaming with people.  Staggering up the aisles when I needed to go to the kitchen, to replenish, to go to the bathroom (at least every hour) I began to notice that the other vendors were giving me the look.  The look.  The “are you under the influence of something” look.

I think the final “aha moment” came when we took a family cruise.  Oh my gosh, a cruise….hello, balance.  Balance is everything when you are not even on solid ground.  I did not anticipate this.  I did not even let the crew know.  LET ME OFF THIS SHIP. Lucky for me, I did not fall over board. 
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VIDEO


A woman with multiple sclerosis says she was knocked out by strangers on a New Jersey street and taken to an abandoned house where she was beaten and raped, and claims that authorities did not take her rape report seriously for weeks.
Read more »

 

Study: The investigators observed a protective effect of high vitamin D levels on the risk of depression in MS which might be driven by the effect of vitamin D on the stress-axis.

 

Medicare's quiet 'sea change' on therapy for elderly MSer's

 

Marijuana Pills Can Ease Some Multiple Sclerosis Symptoms

 

Robert Miller, nationally known for his research in multiple sclerosis, leaving Case Western Reserve University to George Washington University to lead its efforts in medical and health sciences research

 

University of Chicago Neurologist Awarded Dystel Prize for MS Research

 

Study: Multiple Sclerosis in Children

 

UConn looking for MS patients for on-going study

 

Study: Oxidative Stress Is Differentially Present in Multiple Sclerosis Courses, Early Evident, and Unrelated to Treatment

Wednesday

 

Daina Gurien, Columnist, MSnewsChannel.com


I WISH SO BAD I COULD HAVE MY OLD LIFE BACK! BUT...LIKE EVERYTHING ELSE IT SEEMS...IT HAS DISAPPEARED

They always say, noone in this world can define your happiness but you. Well see there's a hipocracy in that. They tell you to love freely. Never be afraid to
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MEDICAL MARIJUANA PILLS, ORAL SPRAY AND ORAL CANNABIS MAY REDUCE SYMPTOMS OF SPASTICITY, PAIN AND FREQUENT URINATION IN MSers

MEDICAL MARIJUANA PILLS, ORAL SPRAY AND ORAL CANNABIS MAY REDUCE SYMPTOMS OF SPASTICITY, PAIN AND FREQUENT URINATION IN MSers

This is according to new alternative treatment guidelines released by the American Academy of Neurology. The guidelines on complementary and alternative medicine, or CAM, treatments for MS were published Monday in the journal Neurology and are among the first from a national medical organization to suggest that doctors might offer cannabis treatment to patients.

The guideline states the CAM therapies oral cannabis, or medical marijuana pills, and oral medical marijuana spray may ease patients' reported symptoms of spasticity, pain related to spasticity and frequent urination in multiple sclerosis (MS).

SHARE THIS STORY & ALL OTHERS BY CLICKING THE TINY ENVELOPE BELOW
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"STATINS ARE NOT A WONDER DRUG"

 

Clues about what triggers MS early in life may help investigators understand the causes of MS.

 

Heather Tetzlaff Smith, Columnist, MSnewsChannel.com

Heather Tetzlaff Smith

 “I have MS.” How many times have I said those words? How many different ways have I felt when I said it? And yet…I rarely say it anymore

It was sometime near the middle of October, 1998 when I received a call FROM the neurologist’s office.  Earlier that year I had become clumsy and was tripping over nothing and running into doorways as I entered and exited a room. A visit to my family doctor led to a referral to a neurologist which then led
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WED Obamacare Plans Bring Hefty Fees for Certain Drugs many Americans with serious illnesses including cancer & multiple sclerosis

 

Will Utahns with multiple sclerosis want cannabis treatments?

 

Biogen cozies up to MIT with a $5.3M drug discovery pact for Neurology & more

 

Study: First-line Tysabri/Natalizumab in Multiple Sclerosis

 We are working on a Report of this. Until it is finished and we post it: Click here to read this Study

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Study: Pregabalin for Restless Legs Syndrome

Watch for our report on this! We are working on it. Until then read the study by clicking here

Tuesday

 
A tourist who has multiple sclerosis says he was denied entry to a nightclub because of his disability.
John Elias Dabis, a 35-year-old American, was visiting the Yacht Club at the Intercontinental Hotel on Wednesday, March 12 with friends, when he claimed he was stopped from entering by the manager. Mr Dabis has limited movement in his legs and uses a walker, on which he can sit if he gets tired, to get around.
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A NEW GOOD DIET FOR MSers? Two-week on, two-week off diet 'is the best way to lose weight because it stops your metabolism slowing down'


It could be the perfect solution for those who want to lose weight but lack willpower.

People who diet two-weeks on, two-weeks off lose more weight than those who deprive themselves week in, week out, a study found.

It is thought that the on-off approach stops the body from finding ways to compensate for the lack of calories and so ensures the pounds keep falling off.

Read more »

 

10-year-old with MS forms team to fight disease

 

Computational Neuroscience Suggests Potassium Channels More Involved in MS Than Thought

 

MSer becomes national ambassador for benefits of swimming

 

A MSer's Opinion: "The sorry state of neurology in Ireland"

 

MS and PT: Making MSers Aware

 

LEARN WHAT NEUROS THINK OF ALTERNATIVE MEDICINE IN THIS STUDY: Summary of evidence-based guideline: Complementary and alternative medicine in multiple sclerosis

 

Study: JC Virus in CD34+ and CD19+ Cells in Patients With Multiple Sclerosis Treated With Tysabri/Natalizumab

Monday

 
KASEY LOST 78 POUNDS SO SHE COULD FIGHT HER MS
Kasey Schraufnagel shared her story: She had lost 78 pounds, she was battling multiple sclerosis, she was only in her 20s and losing the weight was almost as tough as losing her mobility. Schraufnagel was a size 2 and had no weight issues until Nov. 25, 2008, when she was diagnosed with multiple sclerosis. She was just 23.

She spoke softly and shyly, and the audience clapped politely. Then she dropped the smile, and a very real fighter emerged for a minute. “Hey, I’m not going to lie,” she said, looking at the members over the rims of her eyeglasses. “I worked my ass off.” Most of us have used one excuse or another to skip the health and fitness habits. Some of those excuses are probably legitimate; a lot probably aren’t.
Read more »

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Medpage Video for Doctors: What's the current picture as regards hospitals buying physician practices?

Medpage asked that question of two experts who said the trend is causing problems with "price fixing" and noted physicians should be concerned about the future of contracting with hospitals.  READ THIS SPECIAL REPORT FOR DOCTORS ONLY

 

FREE DOWNLOAD: THE BRAIN AND MULTIPLE SCLEROSIS: 8 PAGE REPORT

 

MSer on benefits for 14 years allowed to rack up $69,000 of debt

 

Obamacare Plans Bring Hefty Fees for Certain Drugs

 

A NEW DIET FOR MSers?!? 2-week on, 2-week off diet 'is the best way to lose weight'

 

Merck Serono to introduce multidose pen-injector for Rebif in Canada and Europe...then US

 

Study: Islamic fasting and multiple sclerosis

 

MSer Marcia who at 65 represents a growing number of baby boomers transforming the 21st-century workplace who are pushing their retirement dates into an uncharted future

The call came as a surprise for Marcia Berkey, an information technology professor in the final decade of her career.
Read more »

 

"It's a wonderful time to be a neurologist" says Clyde Markowitz, the director of the MS Center at the University of Pennsylvania

 

KISSING FOR MS: Festival-goers locked lips to break the world record for most couples kissing simultaneously for 60-seconds.

Sunday

 

FDA AGAINST THE FLASH MOB


Last week the parents of 7-year-old Josh Hardy managed to whip up a media tempest big enough to get the biotech Chimerix  and the FDA to work out a pilot study so that their child could be treated after their compassionate use request was denied, alongside many others. Now the parents of another young boy afflicted by a terrible disease are using some interesting PR tactics in an attempt to achieve a much larger goal: Push the FDA to approve experimental drugs for Duchenne muscular dystrophy (DMD) ahead of pivotal studies in the hope that it could let their young son, Ryan Dunne, live a "healthy life."

Read more »

 

FREE! CLICK ON THE LINK BELOW TO GET YOUR FREE COPY

This booklet sugggests techniques that can improve communication and understanding, and help you to adapt to new dynamics within your relationships. Many people have successful and satisfying relationships despite experiencing sexual difficulties.


The UK MS Society’s  sex, intimacy and relationships guide won first prize in the self care category at the BMA Patient Information Awards
The awards are hosted by the British Medical Association (BMA) and look to celebrate accessible, well designed and clinically balanced information for people with health conditions.

Praised by judges

Read more »

 

MSer MONEY SAVING $ VALUE STORIES IN THE NEWS: WHY COSTCO RULES IN HEARING AIDS FOR MSers

 

Use a Checklist for MS Cognitive Dysfunction: Try this simple tip to make your days go more smoothly

 

What to Do When Newly Diagnosed with MS

 

NARCOTIC PAINKILLERS ARE BEING DISPENSED MORE THAN EVER BEFORE

 

WHAT ARE STATINS? Double Duty Drug: Statins May Fight MS - ABC News

Statins (or HMG-CoA reductase inhibitors) are a class of drugs used to lower cholesterol levels by inhibiting the enzyme HMG-CoA reductase, which plays a central role in the production of cholesterol in the liver, which produces about 70 percent of total cholesterol in the body.
Read more »

 

SCIENTISTS DISCOVER NEW COMPOUND THAT COULD TREAT MS

 

WHAT IS VERTIGO?

 

11 Years Gimpy and the Lessons I Learned

 

TOTAL PML CASES UNDER TYSABRI IS 448

 

Clay Walker Recruits Montgomery Gentry and Dustin Lynch for Chords of Hope Benefit Concert

 

Grandmother uses writing to escape MS

Saturday

 

The strange pains would attack without warning, almost as if they were changing with the weather.

And every time they hit Katy Mena — a young twentysomething, seemingly in her prime — it was something different. An unshakable cold in her legs. Double vision. Tingling pain in her limbs. A tight, squeezing sensation around her torso, like an unwelcome hug.

Sometimes a leg would go limp, or she suddenly couldn't use her arm. Some days she would feel electric shocks all over her body.

For nearly a decade, Mena, now 32, battled the progression of multiple sclerosis with treatments that couldn't seem to do much to keep its devastating effects at bay.
Read more »

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STUDY FINDS MSers ARE MORE PRONE TO HIP FRACTURES

Research points to the reasons why people with MS should maintain bone health.
Read more »

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Tecfidera Captures the Largest U.S. Neurologist-Reported Patient Share Among Oral Disease-Modifying Multiple Sclerosis Therapies Ten Months Post-Launch

 

"I FOUND MY LIFE-I FOUND ME AGAIN!" by Dee Ryden, Columnist, MSnewsChannel.com


Because of all of this I hadn't traveled to see my son, I couldn't...MS, pain, therapy...I was just stuck for almost 2 years. Their schedule and moving into a new house kept them from coming my way. The world now is about living where your career's are.

They recently came this way, I went to their home to stay a week, visit my grandchildren, see the new house, be family again. Unloading all my luggage and my wheelchair taken to the guest bedroom. My granddaughter took me on a tour of their new house.
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Could GlassesOff 'eye training' app really let you throw away your reading glasses?

 

Cullman doctor and patient, whose mothers died from MS, speak out against FDA rejection of new drug

 

Side Effects of MS Treatments

 

Self-Reporting in MS: Bridging the Knowledge Gap Between Patients and Physicians

 

Partnership and Consent in MS Decision-Making: With 10 disease-modifying therapies for MS, decision-making is becoming ever more complex, and clinicians should seek to form therapeutic partnerships with patients

 

MS NURSES CERTIFICATION EXAM OFFERED AT MULTIPLE SCLEROSIS CONFERENCE IN DALLAS

 

12 Ways to Earn Extra Income From Medical Activities

 

Caffeine Enhances Memory Consolidation

Friday

 

FINDING MS STABILITY AND A COMPANION FROM SERVICE DOGS


Stanley frequents Nashoba Brook Bakery in Concord, but not for the pastries and sandwiches. This 165-pound, 5-foot-long Great Dane, with yardstick-size legs and a nose waist-high to an average human, is on the job. Stanley accompanies his companion Becky Spencer everywhere, even just for a cup of Joe. And he wears a sign on his harness: “I’m working. Stop. Do Not Distract.”
Read more »

 

'MSers like me need the highs and lows of unrealistic optimism!'

Peter Thompson

"Statins may not be the miracle cure we keep looking for. But, just as when I was diagnosed, I believe science will be my salvation"
Another day, another bit of exciting news about a medical breakthrough. For a multiple sclerosis patient like me, the course of a day can see you raised from a height of happiness and expectation at a headline to a low brought on by qualification and small print. In some ways, the greatest breakthrough would be a pill that protects one against those highs and lows. Meanwhile one has to fall back on an ability to read between the lines, differentiate journalistic hyperbole from medical realism, and come to a conclusion that allows for hope but prepares for disappointment.
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OPPOSING VIEW ON THIS STUDY FROM 2 DOCS: Statins/Simvastatin slows brain atrophy in secondary progressive multiple sclerosis

Dr. Jacqueline Palace and Dr. Neil Robertson wrote in this  editorial that these encouraging results need further exploration: "Simvastatin slows brain atrophy: A high dose of simvastatin decreased whole-brain atrophy by 43% per year over 24 months, compared with placebo, in a phase II, randomized, controlled trial in patients with secondary progressive multiple sclerosis."
Read more »

 

Breakthrough Offers First Direct Measurement of Spinal Cord Myelin in Multiple Sclerosis


Researchers have made an exciting breakthrough – developing a first-of-its-kind imaging tool to examine myelin damage in multiple sclerosis (MS). An extremely difficult disease to diagnose, the tool will help physicians diagnose patients earlier, monitor the disease’s progression, and evaluate therapy efficacy.

“This is an indispensable tool to help find a new way to treat MS down the road” said Chunying Wu, PhD, first author of the study and instructor of radiology at Case Western Reserve.

Case Western Reserve University School of Medicine scientists have developed a novel molecular probe detectable by positron emission tomography (PET) imaging. The new molecular marker, MeDAS, offers the first non-invasive visualization of myelin integrity of the entire spinal cord at the same time, as published today in an article in the Annals of Neurology
Read more »

 

A dozen niche physician practices have approved hundreds of patients for medical marijuana

Nancy Nangeroni, who says she has suffered
neck, 
shoulder, and back pain since a 2004 
auto accident  brought her medical records 
with her in a visit to Dr. Joey Rottman to 
get certified for medical marijuana



The waiting room of Integr8, a new type of medical practice that opened in a Burlington office building last October, was crowded with patients. One leaned on a walker, another gripped a plastic grocery bag filled with pill bottles. There were twentysomethings and senior citizens. Many were drawn there by the same thing: medical marijuana.

With names such as CannaMed and Delta 9 Medical Consulting, a dozen physicians offices have opened across Massachusetts in recent months to evaluate patients to use marijuana.

Read more »

 

Biogen Idec: A Biotech Pioneer With A Stellar Future

 

Study: Tracking changes over time in retinal nerve fiber layer and ganglion cell-inner plexiform layer thickness in multiple sclerosis

 

Study: Rapid, high-resolution, whole-brain, susceptibility-based MRI of multiple sclerosis

 

Study: Serum phosphorylated neurofilament-heavy chain levels in multiple sclerosis patients

 

Study: Core outcome measures for exercise studies in people with multiple sclerosis: recommendations from a multidisciplinary consensus meeting

 

Study: Daclizumab-induced adverse events in multiple organ systems in MS

 

Kasey lost 78 pounds so she could fight MS

Thursday

 

The National Multiple Sclerosis Society issued the following news: Deadline to Enroll For Healthcare Coverage This Year is March 31

 

FDA panel supports approval of Sanofi's MS drug Lemtrada

 

Modifying disability in progressive multiple sclerosis

 

Secondary Progressive MS Therapy Tysabri/Natalizumab Being Tested In New Clinical Trial

 

Phase 4 Study of Effect of Aspirin on Flushing in Dimethyl Fumarate (DMF)-Treated Participants With Relapsing-Remitting Multiple Sclerosis (RRMS)

 

Slideshow: 8 Ways to Stay Positive With Multiple Sclerosis

 

9 Multiple Sclerosis Myths

 

UPMC (via noodls) / Stem Cells from Muscle Can Repair Nerve Damage After Injury: The findings suggest that cell therapy of certain nerve diseases, such as multiple sclerosis, might one day be feasible

 

Daclizumab (Zenapax) high-yield process in relapsing-remitting multiple sclerosis trial

 

Study: Multiple sclerosis and palliative care - perceptions of severely affected multiple sclerosis patients and their health professionals

 

Australian regulator finds no definite melanoma link for Tysabri/natalizumab

 

Elan heads off into the sunset after takeover battle

Wednesday

 
DAILY STATIN PILL REDUCES BRAIN ATROPHY OF SECONDARY PROGRESSIVE MSers BY 43%
ZOCOR SLOWED BRAIN SHRINKAGE IN A 2 YEAR-TRIAL INVOLVING   SECONDARY PROGRESSIVE MSers
Brain MRI scans showed a reduction in the average atrophy rate to 0.3 per cent a year with simvastatin, a 43 per cent reduction (when adjusted for factors such as age and gender) compared with placebo.
Read more »

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NEW SOFTWARE HAS BEEN DEVELOPED FOR JUST FOR MSers TO USE WITH THE NINTENDO Wii WHICH COULD HELP INCREASE PHYSICAL ACTIVITY LEVELS

Dr Sarah Thomas is leading the three-year project which aims to see whether regular use of Wii Fit and Wii Sports can alleviate symptoms of the neurological condition.

Our level of physical activity is low among the general population and people with MS and other chronic conditions can face many boundaries,” she explained. Dr Thomas and her team developed a piece of software called Mii VitaliSe.“The rationale behind the study is that the Wii has lots of attributes which may be helpful for people with MS. “They can use it in their home for 10 minutes at a time and they don’t have to dress up or wear special clothes.”

Read more »

 

"TENS Relieves Pain, Spasticity for Patients with Multiple Sclerosis"

 

New book for MSers: "It's Not as Bad as It Sounds (my life with MS & Fibro)" is now available

Yvonne Decelis was diagnosed with relapsing-remitting Multiple Sclerosis (MS) in 1994. She later found out (in 2010) that she had Fibromyalgia. From the time she found out about the MS she joined a support group that helped inspire her to do work to advocate for others in similar situations.

Her goal is to educate people on possible ways to improve their quality of life and to let them know they are not alone. She also hopes to help loved ones, friends and colleagues understand things that patients go through day-to-day.

From Yvonne: My interest in the field of aging and disability is almost lifelong. I have always felt that we do not treat older adults and/or members of the "disabled community" with the respect and kindness they deserve and I am hoping to help change that.
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CRAZINESS EFFECTS MY MS BADLY: by April Barbosa, Columnist, MSnewsChannel.com

 
April Barbosa, Columnist,
MSnewsChannel.com


There's been so much craziness going on in my life!  
The craziness doesnt really have to do with MS but craziness effects my MS badly! So…I wrote this for my Column today

A long time ago as a teen I was married to a man who tried to kill me. He disappeared completely for over a decade then a month ago out of the blue he emailed me that he wanted to see my daughters. My older daughter remembered him and was ok to see him but my younger daughter didnt know him and only knows my husband as her dad she wanted nothing to do with him. 

Well my daughter saw him once he was homeless and seemed to be a changed
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Study: Paroxysmal atrial fibrillation after initiation of fingolimod for multiple sclerosis treatment

 

Antisense Therapeutics has commenced dosing in its Phase I Stem Cell Mobilisation (SCM) Human Proof of Concept trial of ATL1102 targeting the VLA-4 receptor

 

Lipitor-Copaxone Combo May Fight MS: Study With Mice Shows Statin and Copaxone May Prevent Paralysis From Multiple Sclerosis

Tuesday

 

BREAKING NEWS: FDA delays decision on Biogen's multiple sclerosis drug Plegridy

Biogen Idec Inc said the U.S. Food and Drug Administration extended the review process for the company's multiple sclerosis drug by three months to evaluate the application. Biogen, which was expecting to launch the drug, Plegridy, by mid-2014, said the FDA did not ask for additional studies.
Plegridy, is an injectable drug designed to reduce the dosing schedule of standard interferon drugs such as Biogen's own Avonex, which are typically dosed at least once a week. Interferon is hard to tolerate as it leads to flu-like symptoms, prompting patients to delay or discontinue treatment. Analysts say the market for such interferon-based treatments will shrink over the next decade as newer generation products enter the fray. More

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Tecfidera Is Off to a Quick Start

 

10 Photo Slideshow: The History of Multiple Sclerosis: How Far Have We Come?

 

Study: Serum phosphorylated neurofilament-heavy chain levels in multiple sclerosis patients

 

Study: Core outcome measures for exercise studies in people with multiple sclerosis: recommendations from a multidisciplinary consensus meeting

 

SATIVEX: An Observational Post-Marketing Safety Registry (Sativex is a medical marijuana spray)

 

Ice Hockey With MS: "I Realized I Shouldn't Just Stop Everything and let MS defeat me."

 

VIDEO: LEMTRADA: First-of-Its-Kind Treatment for Relapsing-Remitting Multiple Sclerosis Now Available in Canada

 

Video: Seeing MS: a collection of photographic interpretations of the invisible symptoms of multiple sclerosis

 

Gilenya (Fingolimod): the first oral treatment: A changing treatment landscape for multiple sclerosis: challenges and opportunities

 

Bipolar Disorder and Multiple Sclerosis: A Case Series

Monday

 
OBSTRUCTIVE SLEEP APNEA IS AN OFT OVERLOOKED CONTRIBUTOR TO DAYTIME FATIGUE IN MSers


Sleep disturbances, including obstructive sleep apnea, may be contributing to daytime fatigue in a large proportion of people with multiple sclerosis, based on the results of an observational study of 195 MS patients without additional neurologic disorders, such as Parkinson’s disease or stroke, which could independently increase OSA risk.
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Painkiller 10 Times Stronger Than Vicodin to Hit the Market This Month


A new opiate called Zohydro, developed by Zogenix and approved by the FDA, will enter California markets this month, despite the protests of a number of doctors and experts. Zohydro is ten times more potent than Vicodin.

According to the manufacturers of the drug (who have issued a "responsibility statement"), it is intended for "the management of pain severe enough to require daily, around-the-clock, long-term opioid treatment and for which alternative treatment options are inadequate."

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Pilot Study of alpha1-antitrypsin to Treat Neuromyelitis Optica Relapses that has different causes and treatments from the more common demyelinating disease multiple sclerosis

 

Safety and Tolerability of Quetiapine in Multiple Sclerosis

 

Original 'Dreamgirls' star makes return to music after battling clinical depression, multiple sclerosis, going blind for 3 months and attempting to commit suicide on her 30th birthday

 

Having an MRI for my MS can be very stressful..But I’ve found out it can actually be a great place to take a nap

 

Ohio's John Kasich Named National MS Society 2013 Governor of the Year

 

From Russia with hope: MSer heads abroad in hope of a cure for MS and White Matter Disease

MARCH was supposed to be the month when Lorraine Saipe would enter palliative care for the rest of her days.
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Dr. William Toffler on what people mean when they say they want to die

 

Modulation of Cytokine Production by Drugs with Antiepileptic or Mood Stabilizer Properties in Anti-CD3- and Anti-CD40-Stimulated Blood In Vitro

Sunday

 

SATIVEX: "GW Pharmaceuticals: High As A Kite And Too Close To The Sun"


"GW's lead product, Sativex is now approved or recommended for approval in 24 minor countries, such as Norway, Israel, and Austria. It is indicated as a treatment for symptom improvement in patients with moderate to severe spasticity due to multiple sclerosis (MS) that have not responded adequately to other anti-spasticity medication.

  
GW has now entered into five separate licensing agreements for Sativex with Bayer HealthCare in the UK and Canada; Almirall in Europe and Mexico; Otsuka Pharmaceutical Co. Ltd. in the United States; Novartis in the Middle East, Africa, and Asia; and Neopharm in Israel. Over the ~10-year history of Sativex production, GW has generally been operating at a cash flow loss due to limited sales of the product and expensive ongoing operating costs for the corporate entity.

Founded in 1998 to monetize a product portfolio of cannabinoid prescription medicines to meet patient needs under medical supervision, GW Pharmaceuticals has purportedly assembled a large in-house team with extensive experience in developing cannabinoids, medicines containing controlled substances, as well as plant-based prescription pharmaceutical products.

Marijuana Hype Overplayed: GW Pharmaceuticals will derive no benefit from the

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Dee Ryden, Columnist, MSnewsChannel.com

"my self confidence walked out the door! I tried something I took for granted: walking into a store-over came me-OMG"

Looking back in time, I was very confident, two years ago my self confidence silently walked out the door, I didn't even notice it was gone... Until, I tried something, I took for granted. Something as easy as walking into a store, fear over came me. OMG! Three life altering events happened to me very quickly. I hadn't recovered from one when the next event hit with all the fury of a PERFECT STORM! This could
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Judi Lecoq, Columnist, MSnewsChannel.com


What an interesting label we have, “disabled” 
I don’t know about you but I am perfectly able. I am able to walk like I am absolutely drunk without the influence of alcohol, pills or drugs. I am capable of visiting the facilities 40 times a day, no problem. I can have trouble recalling names, what I ate this morning or why I came in here…I AM ABLE. I am able to trip and fall over something that isn’t even there (it may have been there last week)…talk about talent. 

Now the label has the ability to do many things. Who wouldn’t want to park real close to the store, the post office, the school? Who wouldn’t want to be offered the chair of a really kind person instead of standing? Yes, if we are fortunate enough we can get our Disability check, and who wouldn’t want that?…but we’d rather be working. But here is the flip side of the label. How many times did we chose to stay in our house because it was easier, and by easier I mean, we felt less than.Please understand, I have self worth and I have a zest for life. But the label has a stigma that only we who are living with it can understand.And then there is that issue of the disability check even though we paid for it all our working lives. But there can be judgement about receiving it. We can be made to feel ashamed or like we are taking something that isn’t ours. Huh? 

I think we need a new label. Let’s see….. 
HuBeWis Human Being with Issues. (as opposed to Aliens with issues) 
Faws Falls with Style. 
UTI Used to interact/work 
ABSO Able but slightly off (DO NOT FORGET…we are ABLE) 

Well ding dangit, I am for unlabeling us. And I will keep that smile on my face, even while I am falling

 

"Neurology Today: Medicare Advantage Loses its Advantage" UnitedHealthcare Responds by Dropping Neurologists & MSers

 

Researchers in Demark, at The University of Copenhagen found a new type of regulatory blood cell that can fight the hyperactivity of T-cells in MS

What they found was something no one has ever seen before. T-cells (T lymphocytes) are a type of a white blood cell that has been found to play a central role in bringing about and regulating the “pathophysiology” of MS.
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Paleo Diet & Functional Medicine Helps Doctor Fight Progressive MS

I am a professor of medicine at the University of Iowa and for most of my career, I believed wholeheartedly in the power of modern medicine, in our latest greatest drugs, in our ever more expert procedural interventions. For many years, I focused on treating disease, not on creating health, because that is what I was taught to do. I didn’t know any better, but I was certainly not a “physician of the future.”
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Yvonne Decelis, Columnist, MSnewsChannel.com

Medical Marijuana in Massachusetts: My rant
In November of 2012, the people of the Commonwealth of Massachusetts voted to have medical marijuana (MJ) legalized. This went into effect in January of 2013. We are now in March of 2014 and as of now there are still no medical dispensaries. There are alleged "cannabis doctors" you can see for $200(!!) to get diagnosed and to obtain a medical MJ card (and to get set up with a list of cannabis caregivers).
A few months ago, a list of dispensaries received conditional approval. I recently read  that we have to wait 6 to 9 months before anything opens. I also read
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Therapy dogs in demand, but hard to find

Saturday

 

COMING SUNDAY: WHICH IS BETTER FOR ACUTE PAIN: VICODIN OR TYLENOL #3?


YOU WON'T BELIEVE THE FINDINGS THAT WERE JUST RELEASE IN A NEW STUDY

 

Dr. Sanjay Gupta: 'I'm Doubling Down On The Legalization Of Medical Marijuana'


Dr. Sanjay Gupta — CNN’s chief medical correspondent — revealed on aReddit “Ask Me Anything” this week that he’s “doubling down on the legalization of medical marijuana.”

In the AMA, Gupta tried to dispel some medical myths about pot and pointed out that it’s safer than many narcotic pain pills that doctors prescribe.

Gupta has waged a campaign to change perceptions about pot and argue for its medical legalization since he changed his opinion on the issue in August.

Here are a few highlights:

What are your thoughts towards using high percentage CBD strains to help people with Anxiety? Do you think that using CBD in combination with therapy could be effective and less dangerous than other drugs such as Prozac or Xanax?

I think so. We have a better understanding of how CBD works in the brain, and the receptors where it binds. There are many prescription drugs that have a much higher risk than cannabis, but are prescribed often. Narcotics, in particular. We consume 80% of the world’s pain meds in the United States.

What is the best method of marijuana ingestion?

It is probably vaporizing. I think smoking creates a lot of byproducts that we don’t know enough about. I think eating it leads to very uneven absorption. Vaporizing seems to activate the medicine without burning it. I also think oils absorbed in the mouth are effective, especially for kids.
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FDA chief defends approval of Zohydro 'unique' pain drug

 

THIS MIGHT HELP MSers WITH MEMORY PROBLEMS: "How the brain stores memories by time: 'For patients with memory problems this is allows us to understand and intervene in memory problems"

 

Body temperature is elevated and linked to fatigue in relapsing-remitting multiple sclerosis, even without heat exposure.

 

Multiple sclerosis patients urge FDA to approve Lemtrada

 

Common Signs and Symptoms of Multiple Sclerosis in Kids

 

"MS Patients and Their Loved Ones: Two Sides of the Same Coin Trying to Cope"

 

A potential treatment target for multiple sclerosis offered by PD-L1

 

It is not surprising that many MSers report a decline in sexual desire: what with the fatigue, muscle spasms, and bladder control problems, who would want to think about sex? But here's how you can improve sexual function & intimacy

 

Exercise can help ease the symptoms of multiple sclerosis, but it's important to take certain precautions if you want your exercise program to be successful

Friday

 

Can medical marijuana equal bad parenting for MSers?


Shawnee Anderson's voice is shrill, quavering -- on the edge of desperate. She clutches her 11-month-old son, Sage, while trying to comprehend the situation unfolding in front of her.
Her boyfriend -- Sage's father, Aaron Hillyer -- is in handcuffs.

"Why are you doing this?" she pleads with police officers standing on the lawn outside her home.

"Your baby doesn't need to be subjected to marijuana," an officer replies, in an audio recording made by Anderson on her cell phone.
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Minnesota Wild goalie Josh Harding has been sidelined since Dec. 31 to deal with MS symptoms: he faces a long road to returning to the lineup this season & return this season also remains unlikely


The Wild were happy to see Harding's health improve to the point that he has been around the rink...But he hasn't put on goalie pads in more than two months and, with only have a month remaining in the regular season, his return to the lineup is doubtful.

Coaches said they haven't discussed a rehab plan for Harding. Harding, who won last season's Masterton Trophy for his return to the Wild after being diagnosed with multiple sclerosis, was the Wild's most valuable player during the first half of this season. With Niklas Backstrom nursing injuries, Harding was the starter through December, recording an 18-7-3 record, .933 save percentage and 1.65 goals-against average.
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Study: Researchers have discovered an association between depression and employment status in MSers

 

"11 Years Gimpy and the Lessons Learned"

 

The adVance transobturator male sling for post-prostatectomy incontinence: Subjective and objective outcomes with 3 years follow up

 

Study: Protein samples ready for mass spectrometry (MS): multiple reaction monitoring MS provides a reliable means to detect protein modification and may shed light on the cellular mechanisms behind chronic diseases

 

Study: Informed choice is an ethical prerequisite for healthcare decision making: This study shows that evidence-based patient information can result in high rates of patients performing informed choice without negative side-effects

Patients registered in the evidence-based program were educated on MS diagnostic testing, prognosis, and therapy. Participants in the stress management program focused on stress management and coping mechanisms.   
For multiple sclerosis (MS) patients, enrollment in an evidence-based education program resulted in more informed choices involving their condition, according to research published in the Journal of Neurology, Neurosurgery & Psychiatry.   
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Inhibition of PH20 Hyaluronidase May Effectively Promote Remyelination in Multiple Sclerosis Lesions

 

Gut bacteria and blood cell development relationship helps immune system fight infection

 

Evaluating the response to glatiramer acetate in relapsing–remitting multiple sclerosis (RRMS) patients

 

PET imaging of glucose metabolism, neuroinflammation and demyelination in the lysolecithin rat model for multiple sclerosis

 

MSers commonly use a variety of medications to slow disease progression, alleviate symptoms, and treat comorbid conditions. Polypharmacy has been linked to adverse outcomes

 

Study: Relations of low contrast visual acuity, quality of life and multiple sclerosis functional composite: a cross-sectional analysis

 

Phone call metadata betrays sensitive details about MSer's LIFE

Thursday

 

Study: Deimination, a posttranslational modification, was reduced in the retinal ganglion cell layer of MS patients and in a transgenic mouse model of MS (ND4 mice) Inbox

 

How Inactivity Change MSer's Brains: A number of studies have shown that exercise can remodel the brain by prompting the creation of new brain cells and inducing other changes. Now it appears that inactivity, too, can remodel the brain

 

Study: The potential role of epigenetic modifications in the heritability of multiple sclerosis

 

Congressman Rep. McKinley Named ‘Representative of the Year' by the National Multiple Sclerosis Society

 

Cortical plasticity predicts recovery from relapse in multiple sclerosis

 

Moving towards the pan-European unification of Multiple Sclerosis Nurses: a consensus paper

 

Allogeneic Stem Cell Transplantation for the Treatment of Multiple Sclerosis (Compassionate Use)

 

Teva says US attorneys are investigating marketing of Copaxone

 

"?!?!?!??" OF THE WEEK: Iran Launches Mass Production Line of Oral MS Drug

 

Investigators at the University of California at San Diego reported in 2008 that inhaled cannabis significantly reduced objective measures of pain intensity and spasticity in patients with MS in a placebo-controlled, randomized clinical trial

Multiple sclerosis (MS) is a chronic degenerative disease of the central nervous system that causes inflammation, muscular weakness and a loss of motor coordination. Over time, MS patients typically become permanently disabled and, in some cases, the disease can be fatal. According to the US National Multiple Sclerosis Society, about 200 people are diagnosed every week with the disease -- often striking those 20 to 40 years of age.
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Teva hit with $27.6M settlement in kickback case

 

"A New End Point for a New Era in Multiple Sclerosis Clinical Research?"

Since the introduction of interferon beta-1b in 1993, the number of disease-modifying therapies for multiple sclerosis (MS) has grown at a remarkable pace. Currently there are 10 treatments approved by the US Food and Drug Administration, each with varying effects on important clinical and radiographic markers of disease activity.
Multiple sclerosis is one of many immune-mediated diseases in which significant advancements in disease modification have been made. Tumor necrosis factor inhibitors have revolutionized the treatment of rheumatologic diseases such as Crohn disease, psoriasis, and rheumatoid arthritis (RA). This therapeutic class has made sustained disease remission achievable in these rheumatologic diseases.
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Study: Alcohol consumption exhibits a dose-dependent inverse association with MS. Furthermore, alcohol consumption is associated with attenuation of the effect of smoking

 

Study: Obesity in childhood or adolescence is associated with an increased risk of pediatric-onset and adult-onset multiple sclerosis

Wednesday

 

BREAKING NEWS!! NEW MIGRAINE HELP FOR MSers: Migraine ’Headband’ Wins FDA Approval

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54% REPORTED SUBSTANTIAL IMPROVEMENT

A headband delivering electrical nerve stimulation can prevent onset of migraine headaches and can be marketed in the U.S., the FDA said Tuesday

Cefaly is positioned on the forehead using an adhesive electrode. Precise impulses are produced, which act on the trigeminal nerve in order to reduce pain and prevent migraine attacks.

Called Cefaly, the Belgian-made device is the first to win FDA approval for migraine prevention and is also the first transcutaneous electrical nerve stimulation (TENS) system OK'd for any type of pain prevention, as opposed to acute treatment, the agency said.

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The agonising toothache that's got nothing to do with your teeth & effects MSers more than others!

Trigeminal neuralgia seems to occur when the myelin - the material that insulates nerves - wears  away, especially at the point where the nerve  enters the brain, says Professor Zakrzewska.

MSers are at raised risk of trigeminal neuralgia, as this condition causes the degeneration of myelin.
Alison Glenn was enjoying a meal with friends when she first felt the pain in the right side of her jaw.  'It was a gradual thing, and I thought it must be toothache, so I made an appointment with my dentist a few days later. He thought it was a filling that
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Grandmother with MS says she has resorted to buying marijuana from street dealers to tackle the pain she suffers from multiple sclerosis

 

Study: Male MSers were less physically active, probably a result of being more physically affected by the disease. Men being more physically affected explained most of the gender differences found in this study

 

Tough justice: Approaching retirement, resilient judge details her long struggle with MS

 

Lithium Has Few Adverse Effects in MS; Benefits Inconsistent: Study

The authors of the article, published in the journal Multiple Sclerosis and Related Disorders, called for a clinical trial to ascertain Li’s effects on the MS disease course.1
Background in the article noted that lithium reduces disease activity in animal models of MS but had not been studied in human subjects. While developing a clinical trial to test the effects of Li in MS, the researchers said they performed a retrospective chart review to determine the safety and tolerability of Li among veterans with MS.
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Study: First Gulf War Veterans Not At Increased Risk for MS

 

Study: Interaction between adolescent obesity and HLA risk genes in the etiology of multiple sclerosis

 

Multiple Sclerosis Neurological Health Quiz

 

7 MS Facts You Should Know

 

Genzyme’s Lemtrada™ Approved In Canada For Treatment Of Multiple Sclerosis

 

Study: Lifestyle physical activity in persons with multiple sclerosis: the new kid on the MS block

Abstract:
Supervised exercise training has substantial benefits for persons with multiple sclerosis (MS), yet 80% of those with MS do not meet recommended levels of moderate-to-vigorous physical activity (MVPA). This same problem persisted for decades in the general population of adults and prompted a paradigm shift away from “exercise training for fitness” toward “physical activity for health.” The paradigm shift reflects a public health approach of promoting lifestyle physical activity through behavioral interventions that teach people the skills, techniques, and strategies based on established theories for modifying and self-regulating health behaviors. This paper describes: (a) the definitions of and difference between structured exercise training and lifestyle physical activity; (b) the importance and potential impact of the paradigm shift; (c) consequences of lifestyle physical activity in MS; and (d) behavioral interventions for changing lifestyle physical activity in MS. The paper introduces the “new kid on the MS block” with the hope that lifestyle physical activity might become an accepted partner alongside exercise training for inclusion in comprehensive MS care.

Tuesday

 

LEMTRADA FDA REJECTION NEWS: Genzyme Receives Complete Response Letter From FDA On Lemtrada™ (alemtuzumab) Application

 

Mapi Pharma Granted United States Patent Covering the Process for the Preparation of Fingolimod for Multiple Sclerosis

 

Study: Does the patient know best? Quality of life assessment in multiple sclerosis trials

 

Study: Epstein–Barr virus-specific adoptive immunotherapy for progressive multiple sclerosis

 

"7T MR imaging has led to improved detection and classification of cortical MS lesions, mainly based on T2*-weighted gradient-echo sequences. Depiction of cortical GM by using the recommended MS imaging protocol has not yet been investigated at 7T."

 

Neurologists seek action on SGR: The Policy & Practice podcast

 

Jason Millard chases PGA dream while caring for mother

 

Synthetic Biologics Announces Issuance of U.S. Patent patents for MS and other autoimmune diseases covering the uses of its oral estriol candidate, Trimesta

 

Tackling progressive MS

Monday

 

TOP 10 FREE IPAD MEDICAL APPS FOR HEALTHCARE PROVIDERS

 

For Neurologists only: BIOGEN'S PLEGRIDY IS COMING SOON FOR YOUR MSers!

 

THE LANCET: WORLD FAMOUS MEDICAL JOURNAL SPEAKS OUT AGAINST THE FDA FOR NOT APPROVING LEMTRADA (alemtuzumab)

 

5 Reasons Newark Teacher with MS Wins $15 Million Verdict against her employer

Stephanie Davis was diagnosed with multiple sclerosis in the same year she began teaching in Newark as a literary coach. Davis says being transferred to teaching a kindergarten class affected her condition, and a court verdict agreed with her. The 45-year old Davis was awarded $15 million in a New Jersey Superior Court this week,NJ.com reported.  She will receive $12 million in compensation for pain, suffering and lost wages, along with another $3 million in punitive damages.
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Disabled court worker with MS is barred from parking closer to work

 

“Working with MSSI has transformed me”

Sunday

 

Yvonne Decelis, Columnist, MSnewsChannel.com

Yvonne Decelis
Insurance refusing to cover my Tecfidera

Hi there. For those of you who do not know me, my name is Yvonne Decelis and I have relapsing remitting MS.

Back in July of 2013 I went off of Avonex, my MS disease modifying drug (DMD) that I had been on since 1998.  I chose to switch to Tecfidera and as soon as it was available in the US I told my Neurologist to put me on it. Unfortunately, due to my insurance (Medicare Part D plan - Humana which I plan to change soon) refusing to cover it, I was off my DMD for 5 weeks. This unintended “medication vacation” made me quite a bit worse off physically. My fatigue became much more pronounced and I needed more sleep than I had in over a decade. It took me a long time to get over the med "break" and I never really fully recuperated.
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MS community shocked by FDA's rejection of drug Lemtrada

Harold Johnson was going downhill fast. The medication he injected three times a week for his multiple sclerosis was making him feel like a zombie, and it wasn’t helping. His vision was getting worse, and he would choke when eating or drinking, and would 
Harold Johnson, 43, shows off his agility and balance during his daily walk in the Melvin Price Memorial Park near his home in Swansea on Sunday, Feb. 16, 2014, while still holding on to his dog,
 “The day that bothered me the most was when I went to my mom and dad’s house on Mother’s Day. I had to use a cane to walk in front of my mom,” said Johnson, 43, of Swansea. “That affected me.” Things dramatically changed about four years ago, after Johnson began taking part in a study of the experimental drug Lemtrada.The canes and walker he sometimes used are collecting dust in his hallway. He can ride his bike, play in the park with his dog, build robots in his basement and work full time as a computer technician at Southwestern Illinois College. Imaging of his brain shows no new damage. “Within three weeks, I felt like Superman,” Johnson said. He even got married.
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FOR HEALTHCARE PROFESSIONALS ONLY: Tysabri/Natalizumab PML Risk Update: February 2014

37 PHOTO SLIDESHOW

Natalizumab PML Risk Update: February 2014
February 2014 natalizumab PML update. #MSBlog #MSResearch

"The following are the latest risk figures for PML as a result of being treated with natalizumab. Please note that the embedded slideshow is for health professionals only; I have been told by Biogen-Idec that if you are not a health professional you should not be reading it. if you are a MSer you should be reading my previous post designed for you."

"As of 4th February 2014 there have been 439 cases of natalizumab-associated PML; an increase of 9 cases from last month. The mortality associated with PML in this setting is currently 23%, i.e. 101 MSers have died as result of PML, The majority of the PML survivors have a poor functional outcome. You need to keep these figures in context of over 123,000 MSers have been treated with natalizumab."

"It is becoming increasingly clear that the numbers of MSers developing PML are falling due to the successful risk mitigation strategy that has been implemented Biogen-Idec with JC virus serological testing."








"The following is the most important slide for MSers regarding risks based on the three identified PML risk factors:
JCV serostatus
Duration of treatment
Previous exposure to immunosuppression
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"Without the cap, an MSer on Copaxone, which costs $6,000 a month, will have to spend about $1,500 to $2,000 every month for the co-pay! Some plans refuse to cover six out of the 10 drugs that can treat MS, including drugs most effective at staving off irreversible paralysis"

This is an excerpt from a story in The Boston Herald: Obamacare horror stories not lies

“Lies” are what Senate Majority Leader Harry Reid calls the television ads complaining about Obamacare. But the people in those ads are not liars. They have pre-existing conditions and can’t see the specialists or get the medications they need. They’re the people President Barack Obama claimed he would help, but instead they’re getting hurt.

They had insurance, but their plans got canceled because of the Affordable Care Act, forcing them into Obamacare. Now they’re discovering that Obamacare plans are not for sick people. They offer “free” mammograms, “free” colonoscopies and “free” contraceptives, meaning there is no co-pay. But if you have cancer, multiple sclerosis or Parkinson’s disease, you’re in trouble. Most plans skimp on specialists and life-saving medications.

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