FRONT PAGE AMPYRA AUBAGIO AVONEX BETASERON COPAXONE EXTAVIA
Stan's Angels MS News Channel on YouTube GILENYA NOVANTRONE REBIF RITUXAN TECFIDERA TYSABRI
 Daily News for Neuros, Nurses & Savvy MSers: 208,152 Viewers, 8,368 Stories & Studies
Click Here For My Videos, Advice, Tips, Studies and Trials.
Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
Click here to read my columns
Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
CLICK ON THE RED BUTTON BELOW
You'll get FREE Breaking News Alerts on new MS treatments as they are approved
MS NEWS ARCHIVES: by week

HERE'S A FEW OF OUR 6000+ Facebook & MySpace FRIENDS
Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


Click to view 1280 MS Walk photos!

"MS Can Not
Rob You of Joy"
"I'm an M.D....my Mom has MS and we have a message for everyone."
- Jennifer Hartmark-Hill MD
Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
"This is how I give myself a painless injection."
Heather Johnson

"A helpful tip for newly diagnosed MS patients."
"Important advice on choosing MS medication "
Joyce Moore


This page is powered by Blogger. Isn't yours?

Friday

 

Study: Informed choice is an ethical prerequisite for healthcare decision making: This study shows that evidence-based patient information can result in high rates of patients performing informed choice without negative side-effects

Patients registered in the evidence-based program were educated on MS diagnostic testing, prognosis, and therapy. Participants in the stress management program focused on stress management and coping mechanisms.   
For multiple sclerosis (MS) patients, enrollment in an evidence-based education program resulted in more informed choices involving their condition, according to research published in the Journal of Neurology, Neurosurgery & Psychiatry.   
 In a 12-month double-blind study, researchers at the University of Lübeck in Germany compared the decision making abilities in 192 patients undergoing either 4-h evidence-based educational program or a 4-h MS-specific stress management program.
Researchers found that patients in the evidence-based program were more likely (58.8%) to make informed choices involving their health in a 6-month period versus the patients in stress management program (20.2%). Additionally, investigators observed an increase in independence and abidance to immunotherapy for MS patients in the evidence-based program. However, they discovered no significant difference in patients’ attitudes surrounding immunotherapy based on what program patients enrolled in. Investigators said that the increased risk knowledge for evidence-based education enrolled patients (39%) caused more informed choices in MS patients. Despite cognitive deficiencies that affects decision-making abilities in MS patients, evidence-based educational programs “resulted in a substantial knowledge increase, indicating participants’ sufficient cognitive capacity in general,” the authors wrote.   Based on their findings, researchers claimed evidence-based programs effectively provide pertinent information to patients.   “Informed choice is an ethical prerequisite for healthcare decision making,” they said. “This study shows that evidence-based patient information can result in high rates of patients performing informed choice without negative side-effects.” - 

Abstract
Objective To evaluate the efficacy of an evidence-based patient information programme aiming to increase informed choice in patients with early multiple sclerosis (MS).

Background Patients with early MS face a number of uncertainties concerning diagnosis, prognosis and effectiveness of immunotherapy. Prior studies suggest that evidence-based patient information combined with group education can promote informed choice in MS patients.

Methods A 12-month, six-centre, double-blind randomised controlled clinical trial with 192 patients with a diagnosis of confirmed relapsing-remitting MS or clinical isolated syndrome in Germany. A 4-h interactive evidence-based educational programme was compared with a 4-h MS-specific stress management programme. The primary endpoint was informed choice after 6 months comprising risk knowledge and congruency between attitude towards immunotherapy and actual immunotherapy uptake. Secondary endpoints included autonomy preference, decision autonomy, decisional conflict and satisfaction, anxiety and depression, and number of immunotherapies.

Results For the primary endpoint, a significant difference was shown with 50 of 85 (59%) participants in the intervention group achieving informed choice after 6 months compared with 18 of 89 (20%) in the control group (OR 0.2 (95% CI 0.1 to 0.4), p<0.001). Four weeks after the intervention, more participants in the intervention group showed good risk knowledge (difference between groups 39% (95% CI 26% to 53%), p<0.001). There were no significant differences between groups for attitude towards immunotherapy and for immunotherapy uptake. There were trends towards increased autonomy preference after the intervention and increased adherence to immunotherapies in the intervention group.

Conclusions The intervention significantly increased informed choice and relevant risk knowledge without negative side effects.


Go to Newer News Go to Older News