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Click Here For My Videos, Advice, Tips, Studies and Trials.
Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
Click here to read my columns
Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


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"MS Can Not
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"I'm an M.D....my Mom has MS and we have a message for everyone."
- Jennifer Hartmark-Hill MD
Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
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Monday

 

CHERI LEE, COLUMNIST: "when someone has an illness...the need for communication & touch is even more important mentally & physically"


THIS IS MY 2ND COLUMN! I HOPE YOU LIKE IT BECAUSE I WROTE IT FROM MY HEART!

CHERI LEE
Columnist
MSnewsChannel.com
Companionship fulfilling human wants and desires are not only a wonderful emotion we all desire to experience, it is something we need. Every man and woman has a basic need for love, to feel loved and accepted unconditionally. Let us go a step beyond this and explore feelings a little deeper, a little more personal, how about intimate.

Touch, the physical touch of another person especially the opposite sex can be very healing and therapeutic. What people don’t understand is that when someone has an illness  the need for communication and touch is even more important mentally, physically and physically.

People of all ages are starving for the physical healing I call touch; it can be as simple as holding someone’s hand or as far as giving as massage. I know when I don’t feel well it is very comforting when my daughter comes and lies down beside me.  There is something about the human touch that has a healing affect not only to the heart and the soul but it lessens the pain and gives hope and encouragement. It can be as simple as touching someone’s hand while you talk to...
Read more »

 

THIS IS MY 1ST COLUMN! IT'S TITLE IS A BIT LONG: I love "Stan & the Angels" MS Support Group. I've offered support to the Angels and they have given me support for years. I've never know a support group where people give so much help to each other

Mayjay Dunn
Columnist
MSnewsChannel.com

Hi everyone my name is Mary & I live in bonny Scotland where the ducks love it as there is rain, rain & more rain.

My nickname is Mayjay which I like to be known as.

I’m married to my lovely hubby Stevie who helps me in my life’s journey. I have two handsome sons Frank, David and a beautiful daughter Jade. I have a wee grandson Kian. He is so funny he makes me laugh and smile and there is Monty the boxer. He does funny things that also make me laugh and smile.

I wish that they could diagnose me correctly so I can know exactly which illness I have and get the right treatment.....

I love Stan and The Angels MS Support Group. I have offered support to the angels and they have given me support for years. In some ways I have never know a support group where people give so much help to each other. Go here and take a look:  https://www.facebook.com/stan.swartz3 BECOME OUR FRIEND! WE CALL OUR FRIENDS: ANGELS

Read more »

 

HELP FOR RESTLESS LEGS (RLS)

Long-acting oxycodone treatment with naloxone was effective at reducing RLS symptom severity among patients not effectively managed on other treatments. Note that the effects of opioid therapy continued over the long-term without withdrawal or addiction event.

VIENNA -- Treatment with long-acting oxycodone and naloxone in fixed combination was effective at reducing restless legs syndrome (RLS) symptom severity among patients not effectively managed on other treatments, researchers reported here.

The effects of opioid therapy "were observed within week 1 and continued over the long-term" without withdrawal or addiction events, Trenkwalder said at an oral presentation during the World Congress of Neurology.

Opioid treatment has been used as an off-label treatment for mild to severe RLS symptoms "through interacting with dopamine on a spinal level and acting on the medial pain system centrally for analgesia," she said, noting that they added naloxone to the therapy to aid with opioid-related constipation. FULL STORY FROM THE WORLD CONGRESS OF NEUROLOGY IN VIENNA

 

MS Risk Rises With Childhood Diabetes


For young people, type 1 diabetes may raise the likelihood of having multiple sclerosis. Scientists now suspect that certain environmental factors may play a role.

Type 1 diabetes and multiple sclerosis (MS) are both autoimmune diseases, meaning a person's immune system causes damage to their own body.

Type 1 diabetes (sometimes called juvenile diabetes because it is usually diagnosed in childhood) is an autoimmune attack against the beta cells in the pancreas while, with multiple sclerosis, the immune system attacks the brain and spinal cord.

Read more »

 

14 STUDIES & ARTICLES FOR NEUROLOGISTS & NURSES PLUS PATIENTS



Gran's new lease of life thanks to mobility scooter
Lancaster Today
Despite living with Multiple Sclerosis, grandmother Brenda Escreet continues to attend numerous music festivals and gigs, support several charities and have ‘biking’ freedom outdoors thanks to her mobility scooter.


Mouse Studies Reveal Promising Vitamin D-Based Treatment for MS
 A diagnosis of multiple sclerosis (MS) is a hard lot. Patients typically get the diagnosis around age 30 after experiencing a series of neurologicalproblems. In search of a better option for MS patients, a team of University of Wisconsin-Madison biochemists has discovered a promising vitamin D-based treatment that can halt -- and even reverse -- the course of the disease in a mouse model of MS. The treatment involves giving mice that exhibit MS symptoms a single dose of calcitriol, the active hormone form of vitamin D, followed by ongoing vitamin D supplements through the diet. The protocol is described in a scientific article that was published online in August in the Journal of Neuroimmunology. "All of the animals just got better and better, and the longer we watched them, the more neurological function they regained," says biochemistry professor Colleen Hayes, who led the study.

Multiple Sclerosis Therapeutics to 2019 - Treatment Diversification, Increasing Efficacy, and Pipeline Innovation Combine to Drive Growth
 prnewswire.com

Biogen: All Reasons For Bulls To Be Happy
seekingalpha.com

CLICK ON "Read More" BELOW FOR 1O MORE STUDIES & ARTICLES IN MONDAYS NEWS


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“Sexy” MS Research: Dr. Rhonda Voskuhl, UCLA, Department of Neurology

Dr. Rhonda Voskuhl
UCLA
Department of Neurology

I guess my fascination with the immune system started when I was a kid with bad asthma. I was always on steroids or some type of shot, and I didn’t understand why other kids were well when I wasn’t. Why was my immune system so over reactive compared to other kids? Doctors were heroes who made me feel better (even with all the shots), and that heroism was part of what drew me to medical school. I also loved learning about the brain – which is really “who we are.” This made the study of the immune system attacking the brain a perfect area for my career.

Fast forward to today, 22 years into a career studying multiple sclerosis. One area I focus on is studying gender differences in MS. Women get MS three or four times as often as men, and when men do get MS it’s usually more progressive. Why? That’s the sexy part – sex differences I mean...
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THE REAL STORY BEHIND THE CCSVI FAILURE


Last week’s cancellation of a clinical trial in Albany, N.Y., researching treatment of CCSVI is a big setback for those trying to glean scientific insight into whether venous angioplasty mitigates multiple sclerosis (MS) symptoms in people with MS who have obstructed venous flow. It’s very bad news for the Saskatchewan government, which allocated $2.2 million to fund the trial and recruited volunteers to travel to the U.S. And it is a major blow for those who’d taken part in the trial or were lined up to go. But, like all failures, it’s also instructive. And the lesson here? That the best thing for CCSVI research, moving ahead, would be for the so-called “liberation” treatment to be liberated from MS itself—more specifically, from its exclusive relationship with the degenerative condition, a point CCSVI activists have been making for years.

For those not up on the medical drama, here’s a recap: In 2006, Italian venous specialist Paulo Zamboni posited a new condition he’d identified as “cerebro-spinal venous insufficiency,” or CCSVI,
Read more »

 

ANN WALL, GUEST COLUMNIST: MULTIPLE SCLEROSIS IN THE 70'S


The first time I became aware of M.S. was in
the 70's. I was working on Wall Street & just out of H.S.  Oddly enough,   for that particular time I had a female boss who was the "best" & we quickly became very good friends.

About  a year into this job she went through a nasty divorce & custody battle.  During that time she was diagnosed with MS.  Only having heard of MS in relation to famous people such as Richard Pryor & (of course) Annette Funicello. I assumed that meant she would be in a wheelchair.  I was afraid to ask her anything
Read more »

Sunday

 

Dating Among Single Women with MS: ENROLL IN THIS CLINICAL TRIAL!


If you are a single woman who has been diagnosed with MS and are between the ages of 20-40 or 50-65 we invite you to take part in this study. This is a research study about understanding the impact of MS in the formation and the quality of dating relationships among single women. View more survey information.

All inquiries will be kept CONFIDENTIAL. To be a part of the study, contact the study staff -
Phone: 1-(800)-964-1437 or E-mail: MSdating@psych.ryerson.ca

 

Im not taking any Multiple Sclerosis meds! I'm getting worse, lots of lesions! I need to put my big girl panties on and take medication! I will be taking Tecfidera!

JEANNINE EVERETT, Columnist, MSnewsChannel.com

I have always been afraid to take medication. I have been like that all my life.  Now I have Multiple Sclerosis, need I say more? 

I was brave and took all the ABCR’s as well as IVIG, steroids. I was a good girl but hated the side effects as well as the needles. Lots of medication now; some for spasms, some for bladder, some for anxiety, vitamins, etc., I am so sick of it! 

I just saw my neurologist a few weeks ago. I am getting worse, lots of lesions, hey I know it; I can feel it. After a lot of thought, I decided to be brave now. I need to put my big girl panties on and take medication. I will be taking Tecfidera. Ugh! 
Read more »

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PHARMACEUTICAL HEAVEN: I'VE TRIED AVONEX, REBIF, BETASERON, COPAXONE, IVIG & NOW I'M GOING ON TECFEDRA

CINDI HOPPER, COLUMNIST, MSnewsChannel.com

Being diagnosed with Multiple Sclerosis is scary enough, but when they start offering all these medicine options at you and the side effects, it can be somewhat overwhelming!

What you have to keep in mind is everyone is different and your body chemistry is going to be different than “Susan’s” body chemistry. Your stage of MS may or may not be the same as “Phil’s” stage so obviously you are going to react differently to the drug. What you can rely on 100%, and its full proof is experience. Every MS’r has a treatment journey. If you listen to that journey cautiously and only take the experience from it, it may help you in deciding which direction you want to go in your own treatment. So I want to share my journey with you in
hopes you may or may not take something away from it. When I was diagnosed, I had no idea what MS was or what it could or would do to my body. Like any scared 44yr old, single, professional, “made it on my own” female, I Googled it. BIG mistake! Holy crap! Talk about terrified. I needed to plan my funeral, update my will, and have a family meeting.  *Note to self- No more computer research!
Read more »

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Can Marijuana Improve Your Emotional State? Study says THC could play an important role in how we process negative emotions

...research suggests that the drug's positive effects go beyond just getting high. A 2012 study published in the peer-reviewed academic journal European Neuropsychopharmacology suggests that the brain's endocannabinoid system – which is activated by THC, the psychoactive ingredient in marijuana – may play an important role in emotional processing, "an essential aspect of appropriate social interactions and interpersonal relationships." READ MORE]

 

The Rise of Teva: A Pharmaceutical Giant

Add caption
“Today, one in seven prescriptions filled in the U.S. are filled with a Teva drug,” Denise Bradley, Vice President, Corporate Communications, Teva Pharmaceuticals-Americas, told JointMedia News Service.

The story of how Teva grew from a small business to a company with global financial success and political impact begins in the 1930s. Elsa Kuver and Dr. Gunter Friedlander founded Teva (meaning “nature” in Hebrew) in Jerusalem. According to the Israel Ministry of Foreign Affairs, Teva initially sold imported medications, especially from Germany, until the supply dwindled with the rise of the Nazis. During this time, the Arab League still boycotted Israeli-manufactured products and
Read more »

 

Eight reasons why Pilates is great exercise for someone with Multiple Sclerosis


Many people with MS, both relapsing-remitting and primary, experience problems with balance. Balance problems can affect walking ability. A person may feel unstable, need to hold on to a railing to descend stairs and feel unsteady in the dark when he or she cannot see for a visual cue. Some rely on a cane or walker to get around. The benefit of exercise with strength training for people with MS is well documented. The benefits of a strong core for good balance are noted by Nicole Nichols, fitness instructor, and she says "good balance and a strong core go hand in hand...." The base of any sport or movement, and the foundation for every aspect of daily living activities is the core. Pilates became popular for myriad benefits in the 90's, especially for training core strength. The discipline is recognized as especially suited to people with MS for reasons below.
CLICK TO READ FULL STORY

Saturday

 

"Sometimes I find myself thinking pretty negative thoughts about my multiple sclerosis and I notice that my symptoms are worse"

Julie Stachowiak, Ph.D.

Sometimes I find myself thinking pretty negative thoughts about my multiple sclerosis and I notice that my symptoms are worse. Whether I think the thoughts because I feel bad or I feel worse because I am thinking negative thoughts, I am not sure – I think it is a little of both. Bottom line here is that breaking this cycle is pretty important to physical and emotional well-being. I have adapted the following from my book, The Multiple Sclerosis Manifesto: Action to Take, Principles to Live By.

You have probably heard about the “placebo effect,” which is a phenomenon whereby a treatment (even a sugar pill) has a positive effect on a symptom or illness, mostly because the person taking it believes in it. Guess what? It works in the opposite way, too. Called the “nocebo effect,”
Read more »

 

WEEKEND RECAP: HERE'S THE 146 ARTICLES & STUDIES WE POSTED IN THE LAST WEEK 9/22 TO 9/27! MORE DAILY MS NEWS THAN ANY SITE IN THE WORLD!

 1. Placebo-controlled trial of oral laquinimod in multiple sclerosis: MRI evidence of an effect on brain tissue damage.
Oral laquinimod may reduce (at least in the initial phase of treatment) some of the more destructive pathological processes in RRMS patients.

2. 2nd International Symposium on Gait and Balance in Multiple Sclerosis: interventions for gait and balance in MS.
Department of Physical Medicine and Rehabilitation, Kennedy Krieger Institute, Johns Hopkins University School of Medicine , Baltimore, MD , USA .

3. Global N-acetylaspartate concentration in benign and non-benign multiple sclerosis patients of long disease duration.

4. Therapeutic Effects of Progesterone in Animal Models of Neurological Disorders.

5. Disease-association analysis of an inflammation-related feedback loop.

6. Electrodiagnostic evaluation of peripheral nervous system changes in patients with multiple sclerosis.

7. Prevalence of neurological disorders in Al Quseir, Egypt: methodological aspects.

8. Longitudinally extensive varicella-zoster virus myelitis in a multiple sclerosis patient.

9. Alpha-B-crystallin induces an immune-regulatory and antiviral microglial response in preactive multiple sclerosis lesions.

10. Vasoactive intestinal peptide (VIP) and pituitary adenylate cyclase activating polypeptide (PACAP) in humans with multiple sclerosis.

11. Muscle-specific kinase antibody positive myaesthenia gravis and multiple sclerosis co-presentation: A case report and literature review.

12. A patient's perspective of partnership in the treatment of multiple sclerosis: MS regimes-An orchestrated approach.

13. Global N-acetylaspartate concentration in benign and non-benign multiple sclerosis patients of long disease duration.

14. 2nd International Symposium on Gait and Balance in Multiple Sclerosis: interventions for gait and balance in MS.

15. Therapeutic Effects of Progesterone in Animal Models of Neurological Disorders.

16. Autoantibodies to Potassium Channel KIR4.1 in Multiple Sclerosis.

17. Pediatric Inflammatory Diseases. Part IV: Miscellaneous, Reye, PRES, Sarcoidosis.

18. Pediatric inflammatory diseases. Part I: multiple sclerosis.

19. Practical Aspects of Shortening Acquisition Time in Brain MR Susceptibility-Weighted Imaging.

20. β-Arrestins 1 and 2 are critical regulators of inflammation.

21. BIOGEN HAS 3 NEW MS TREATMENTS THEY ARE WORKING ON THAT ARE BEING PRESENTED AT THE WORLDWIDE MEETING OF NEUROLOGISTS: ECTRIMS

22. VIDEO GAME HELPS EASE SYMPTOMS OF MS! PLUS: MSers CAN ENROLL IN UNIVERSITY'S STUDY

READ 109 MORE STUDIES & STORIES BY CLICKING ON "Read More" BELOW:


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Friday

 

TOMORROW & SUNDAY ARE WEEKEND VIDEO DAYS!!! WE ARE POSTING A BUNCH OF INTERESTING & EDUCATIONAL VIDEOS FOR YOU! PLUS: A FEW OF OUR 24 COLUMNISTS HAVE MADE VIDEOS FOR YOU! HERE'S 2:

 HOW A STEM CELL TRANSPLANT WORKS 
 
 CLICK HERE TO WATCH THIS MAYO CLINIC VIDEO








Beth Dean
Columnist & Copaxone Editor
MSnewsChannel.com


  
WANT LOVE, HUGS & SUPPORT FROM ME AND
MY ANGEL POSSE?


CLICK HERE & WATCH MY VIDEO 

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Judy Kazakawich, Columnist: Tecdifera has helped me improve in my walking as well as balance and also helped me get through stressful times without having a relapse.

I've written 5 columns for you.
Click my photo on far left side
of this page to read them! 
My column today is about the very sad and emotional month that I've just been through. I've been away because of a death in the family. My aunt passed away Sept 2 in B.C. suddenly and the ordeal was prolonged because she was buried here in Alberta on Sept 21. I know that normally this type of stress would have me shaking in bed. But even though I had many very stressful days I didn't physically get worse.
July 3 is when I began using tecfidera and everything is still improving. I notice little things every day. This was definitely a test and I passed it.
I am starting to do floor exercises at least 3 times a week, plus I also do arm exercises with a pulley ( this is for broken shoulders, not m.s. )
Another improvement is that I don't even use my walker in the house anymore.
The next step I'm going to try is yoga. I've heard great stories.
Read more »

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CCSVI TERRIBLE NEWS! CANADIAN RESEARCHERS FAILED TO FIND ANY VEIN BLOCKAGES IN 99 OF 100 PATIENTS


In a study published online Wednesday in the journal PLOS ONE, researchers from McMaster University in Ontario say they failed to find any blockages in the internal jugular, vertebral or deep cerebral veins in 99 of 100 patients with MS, compared with 100 subjects with no history of the disease.
Read more »

 

19 Articles for Neurologists: Friday

Biogen, Isis to partner in $100 million deal
NEW YORK — Biogen Idec, the maker of the multiple sclerosis pill Tecfidera, expanded its partnership with Isis Pharmaceuticals in a deal worth at least $100 million to develop drugs for neurological disorders. Biogen will pay Carlsbad, Calif.-based Isis $100 million upfront and as much as $220 million per compound in potential milestone payments, the companies said Monday in a statement. The six-year deal gives Weston, Mass.-based Biogen exclusive access to Isis’ antisense technology platform to identify targets and develop drugs for neurological diseases.

Assessing risks of multiple sclerosis therapies.
Service of Neurology, Department of Clinical Neurosciences, University Hospital of Lausanne,


Tysabri (Natalizumab) affects the T-cell receptor repertoire in patients with multiple sclerosis

Psychological and physical predictors of illness intrusiveness in patients with multiple sclerosis.
Ferkauf Graduate School of Psychology, Yeshiva University, United States; Multiple Sclerosis Center of Holy Name Medical Center, United States

Read more »

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16 Articles for Patients: Friday

Late-term miscarriage: Jack Osbourne, wife Lisa, lose baby boy in 2nd trimester
Jack Osbourne and his wife Lisa Stelly have lost their baby boy in her second trimester. Jack, who is the son of Sharon and Ozzy Osbourne, was just diagnosed with multiple sclerosis in June last year. Despite Lisa’s late-term miscarriage and Jack Osbourne’s multiple sclerosis diagnosis, 27-year-old Jack is participating in this season’s “Dancing With the Stars,” reported the Los Angeles Times.
Lisa Stelly shared her late-term miscarriage: “I have been dreading this announcement…. I needed some time before being able to say it. Jack and I lost our baby boy last week. Having a late term miscarriage is by far the hardest thing either of us have ever had to go through. We appreciate all of your prayers and ask for privacy and respect during this time. It’s important to stay hopeful and optimistic through life’s toughest moments. We never know why things like this happen. All we can do is trust in God and know he has a plan for our lives."

ctvnews.ca

Bank assists Staten Island's Multiple Sclerosis Group 
silive.com

Dispelling the misconceptions about multiple sclerosis
kentucky.com

Read more »

Thursday

 

"Why do some people experience aggressive worsening of their multiple sclerosis and others experience a mild course?"


The Serial Unified Multicenter MS InvesTigation (SUMMIT) study is generating excitement in its quest to unravel the mystery of MS progression.

Why do some people experience aggressive worsening of their multiple sclerosis and others experience a mild course? Right now, no one knows the answer to this critical question. In its quest to unravel the mystery of MS progression, the Serial Unified Multicenter MS InvesTigation (SUMMIT) is generating much excitement. This international consortium, a special initiative launched by the National MS Society, began in 2010 and, as its moniker suggests, aims to propel MS research to new heights.

Read more »

 

10 Articles for Neurologists: Thursday September 26th


Placebo-controlled trial of oral laquinimod in multiple sclerosis: MRI evidence of an effect on brain tissue damage.
In Assessment of OraL Laquinimod in PrEventing ProGRession in Multiple SclerOsis (ALLEGRO), a phase III study in relapsing-remitting multiple sclerosis (RRMS), oral laquinimod slowed disability and brain atrophy progression, suggesting laquinimod may reduce tissue damage in MS. MRI techniques sensitive to the most destructive aspects of the disease were used to further investigate laquinimod's potential effects on inflammation and neurodegeneration. Oral laquinimod may reduce (at least in the initial phase of treatment) some of the more destructive pathological processes in RRMS patients.

A 10-year follow-up of a population-based study of people with multiple sclerosis in Stockholm, Sweden: Changes in disability and the value of different factors in predicting disability and mortality.
The aims of this study were to evaluate changes in disability over ten years in PwMS, and to explore the value of personal and disease-specific factors and depressive symptoms in predicting disability. A further aim was to explore the value of these factors as predictors of mortality.This study illustrates the importance of tailored interventions for PwMS and highlights the need for health-care professionals to consider the psychological aspects of the disease. Furthermore, our results indicate that the Expanded Disability Status Scale was a useful tool for predicting future disability.

The B1-cell subpopulation is diminished in patients with relapsing-remitting multiple sclerosis.

Oxidative modification of serum proteins in multiple sclerosis.

Review of the novelties presented at the 28th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) (II).

White-matter lesions drive deep gray-matter atrophy in early multiple sclerosis: support from stru
   Multiple Sclerosis Journal. 2013;  19(11): p. 1485-1492

Learning and cognitive fatigue trajectories in multiple sclerosis defined using a burst measurement design
   Multiple Sclerosis Journal. 2013;  19(11): p. 1518-1525

Disease-modifying treatments for progressive multiple sclerosis
   Multiple Sclerosis Journal. 2013;  19(11): p. 1428-1436

Evolution of tumefactive lesions in multiple sclerosis: A 12-year study with serial imaging in a single patient

Functional Relapses in Pediatric Multiple Sclerosis
   J Child Neurol. published 23 September 2013, 10.1177/0883073813501873


 

"STING may take the bite out of autoimmune diseases"


Augusta, Ga. - A little STING could go a long way in helping treat or even avoid autoimmune diseases such as arthritis, type 1 diabetes and multiple sclerosis, researchers report.

With some prompting, the protein STING can turn down the immune response or even block its attack on healthy body constituents like collagen, insulin and the protective covering of neurons, all targets in these debilitating diseases, said Dr. Andrew L. Mellor, immunologist at the Medical College of Georgia at Georgia Regents University.
Read more »

 

10 Articles for Patients: Thursday September 25th

Wednesday

 

What Is the JC Virus?


John Cunningham virus, known
more commonly as the JC virus
What Is the JC Virus?
The John Cunningham virus, known more commonly as the JC virus, is a very common virus in the United States. It’s estimated that more than three-quarters of Americans have it. The average person carrying the JC virus will never know and is unlikely to suffer any side effects as a result of its being in his or her body.
Read more »

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FOR NEUROLOGISTS: 11 STUDIES IN TUESDAY'S NEWS


Anti-JC virus antibody prevalence in a multinational multiple sclerosis cohort
Multiple Sclerosis Journal. 2013;  19(11): p. 1533-1538

 Teriflunomide for the treatment of multiple sclerosis.Oh J, O'Connor PW. Semin Neurol. 2013 Jul;33(3):307-8. doi: 10.1055/s-0033-1354604. Epub 2013 Sep 21.
 
 Endurance training is feasible in severely disabled patients with progressive multiple sclerosis. Skjerbæk A, Næsby M, Lützen K, Møller A, Jensen E, Lamers I, Stenager E, Dalgas U.
Mult Scler. 2013 Sep 20.

 The relationship of cognitive impairment with neurological and psychiatric variables in multiple sclerosis patients.Karadayi H, Arisoy O, Altunrende B, Boztas HM, Sercan M.
Int J Psychiatry Clin Pract. 2013 Sep 19. [Epub ahead of print]

Altered likelihood of brain activation in attention and working memory networks in patients with multiple sclerosis: An ALE meta-analysis. Kollndorfer K, Krajnik J, Woitek R, Freiherr J, Prayer D, Schöpf V. Neurosci Biobehav Rev. 2013 Sep 18.

Circulating dendritic cells of multiple sclerosis patients are proinflammatory and their frequency is correlated with MS-associated genetic risk factors. Thewissen K, Nuyts AH, Deckx N, Wijmeersch BV, Nagels G, D'hooghe M, Willekens B, Cras P, Eijnde BO, Goossens H, Van Tendeloo VF, Stinissen P, Berneman ZN, Hellings N, Cools N. Mult Scler. 2013 Sep 20.

Multiple Sclerosis Outcome Assessments Consortium: Genesis and initial project plan. Rudick RA, Larocca N, Hudson LD; MSOAC. Mult Scler. 2013 Sep 20. [Epub ahead of print]

Outcomes after Microvascular Decompression for Patients with Trigeminal Neuralgia and Suspected Multiple Sclerosis.Ariai MS, Mallory GW, Pollock BE. World Neurosurg. 2013 Sep 19.

Risk factors related to cardiovascular diseases and the metabolic syndrome in multiple sclerosis - a systematic review. Wens I, Dalgas U, Stenager E, Eijnde BO.
Mult Scler. 2013 Sep 18. [Epub ahead of print]

Incidence and prevalence of multiple sclerosis in the UK 1990-2010: a descriptive study in the General Practice Research Database .Mackenzie IS, Morant SV, Bloomfield GA, Macdonald TM, O'Riordan J. J Neurol Neurosurg Psychiatry. 2013 Sep 19

Clinical significance of atrophy and white matter mean diffusivity within the thalamus of multiple sclerosis patients 
Multiple Sclerosis Journal. 2013;  19(11): p. 1478-1484

 

Terri Spats, Columnist & News Editor: MY COLUMN TODAY IS A MESSAGE TO THOSE WITH NO INVISIBLE ILLNESS



Although, on the outside, a person looks as if they’re in perfect health, there can be unseen issues of which they’re dealing with...LIKE ME!

The issues can hold someone back from basic enjoyable experiences, as simple as swimming at a public pool or attending social events.  This goes much further than emotional instability or social anxiety.  These two afore-mentioned conditions are often symptoms of a larger problem. 

We’ve all met someone who has been dealing with personal issues, ranging from a recent divorce to loss of a job, which are all temporary states.    Usually, once someone overcomes the given emotional turmoil, set on by these events, they’re back to themselves and it becomes ancient history.  

What about the people LIKE ME that deal with a chronic illness on a daily basis and will for the rest of their lives?  

Read more »

 

4 ways to manage double vision: Solutions to help manage this common symptom of MS


Double vision, a common MS symptom, is caused by demyelinating lesions on the brainstem, the area of the brain responsible for controlling eye movements. These lesions prevent the eyes from properly receiving messages from the nerves. The neural misfires result in the misalignment of images, or double vision.....
Read more »

 

"What is MS? Could You Have MS? 16 Multiple Sclerosis Symptoms (SLIDESHOW)"


#1: Fatigue
Some 80% of people with MS will experience fatigue at one point or another, but fatigue can have many causes. Some people experience “MS lassitude,” a very severe fatigue that occurs daily that tends to get worse as the day wears on.

“People describe it as unlike anything they’ve ever felt,” says Rosalind Kalb, Ph.D., vice president of the Professional Resource Center at the National Multiple Sclerosis Society in New York City....  READ MORE

 

TEVA'S LAQUINIMODO: "Oral laquinimod may reduce (at least in the initial phase of treatment) some of the more destructive pathological processes in RRMS patients."

Abstract
OBJECTIVE: In Assessment of OraL Laquinimod in PrEventing ProGRession in Multiple SclerOsis (ALLEGRO), a phase III study in relapsing-remitting multiple sclerosis (RRMS), oral laquinimod slowed disability and brain atrophy progression, suggesting laquinimod may reduce tissue damage in MS. MRI techniques sensitive to the most destructive aspects of the disease were used to further investigate laquinimod's potential effects on inflammation and neurodegeneration.
CONCLUSIONS:  Oral laquinimod may reduce (at least in the initial phase of treatment) some of the more destructive pathological processes in RRMS patients.


 

FOR MSers & THEIR FAMILIES! 10 STUDIES & ARTICLES IN TUESDAY'S NEWS

 

SLIDESHOW: "17 Multiple Sclerosis Treatments"


There’s no question that multiple sclerosis is frustrating, with varying and often unpredictable symptoms that seem to throw curve balls at people with MS.

But in less than two decades MS has gone from an essentially untreatable disease to one that has almost a dozen medications that slow the progression of the disease (known as immune-modulating medications), in addition to multiple other drugs that relieve symptoms.

Here are the different options, from simple walking to sophisticated biological therapies, that people with MS can choose from:
READ MORE

Tuesday

 

LAUREN PARROTT IS OUR NEWEST COLUMNIST! In 2005, at the age of 21, Lauren was an intern at Good Morning America & has over 100 videos on YouTube


This article in the Grosse Point News is about Lauren:

"Diagnosed with MS as a teenager, Lauren manages well with medication. At 23, she suffered a relaspe due to a culmination of three things — a car accident, the pressure of attending Michigan State University classes and working. It was then she decided to make a video to find other people with MS and post it on YouTube. "I want to show them what is happening," she said.

"I want people to know whatever challenge you are going through you can overcome. It is about attitude. I know from experience. I've been through a lot of devastating situations. I want people to know the difficulties can be overcome and you can keep going. You are not going to be happy 100 percent of the time but being positive is a lot better," she concluded.

Lauren Parrott’s primary job at WMTV is editing the master tapes
Read more »

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Adam Possner, MD: THE EPLEY MANEUVER....THE CLOSEST DOCTORS COME TO EXORCISM

Adam Possner, MD
Internist with GW Medical Faculty Associates
Assistant professor in the Department
of Medicine with The George Washington
University School of Medicine & Health Sciences.

EPLEY MANEUVER

In medicine
it's the closest we come
to exorcism:
placing unsoiled hands
on either side
of the patient's temples;
shepherding the head supine
toward the shoulder
with the afflicted ear;
confirming the presence
of a demon on that shoulder


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DAD PLEADS FOR DRUG TRIAL TO SLOW HIS PRIGRESSIVE MS!


Chris Bogumil has a form of Multiple Sclerosis which keeps worsening rather than appearing as sudden attacks.

He tells Aasma Day why he is desperately fighting for a chance to try a drug which might hinder the progress of the disease.

When a horse starts limping and struggling to walk, most people think the kindest thing is to shoot it.

Smiling ruefully, Chris Bogumil says: “If I was a horse, they would have shot me by now.”
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Patti McArthur, Columnist: TYSABRI WORKS GREAT FOR ME BUT I NEEDED HELP TO PAY FOR IT!


I use to get help for my Tysabri treatments from the Cronic Disease Fund. I got a letter from them about 2 months ago that let me know that they have stopped covering my treatments months before I got the letter. I started to worry and wonder what my next steps would be? It is the only treatment that works for me and all the pill versions my MS doctor and I doesn't want to try and start using yet since Tysabri works really good for me. The MS Center started to make calls from other companies to try and help me with my treatments since after my insurance covers what it does each month I would still be responsible for over $700.00 out of pocket. I haven't been able to work in so long, that isn't an option.

Read more »

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20 STUDIES & ARTICLES IN TUESDAY'S NEWS FOR NEUROLOGISTS & NURSES PLUS SAAVY MSers!

Monday

 

"First Direct Measurement of Spinal Cord Myelin in Multiple Sclerosis"


THIS STORY IS ABOUT A NEW STUDY PUBLISHED TODAY IN ANNALS OF NEUROLOGY CALLED:

Longitudinal positron emission tomography imaging for monitoring myelin repair in the spinal cord

Researchers have made an exciting breakthrough -- developing a first-of-its-kind imaging tool to examine myelin damage in multiple sclerosis (MS). An extremely difficult disease to diagnose, the tool will help physicians diagnose patients earlier, monitor the disease's progression, and evaluate therapy efficacy.

Read more »

 

THE MS NEW CHANNEL HAS 5 NEW COLUMNISTS & EDITORS: Kristie Salerno Kent, Heather Johnson, Cheri Lee, Tony Bodmer & Lauren Parrott

(sorry: we are trying to fix the photos!)
Kristie Salerno Kent
Columnist,
MSnewsChannel.com

Tony Bodmer
Columnist,
MSnewsChannel.com
Lauren Parrott
Columnist,
MSnewsChannel.com
Cheri Lee
Columnist,
MSnewsChannel.com

Heather Johnson
Columnist,
MSnewsChannel,com

 

VIDEO GAME HELPS EASE SYMPTOMS OF MS! PLUS: MSers CAN ENROLL IN UNIVERSITY'S STUDY


Playing video games help some multiple sclerosis patients get fit and decrease the symptoms!

“Individuals with MS have a lot of balance issues and vertigo problems,” said Ruchika Prakash, an assistant professor of psychology at The Ohio State University College of Medicine. “There's numbness in the extremities…And then there's spasticity, or the stiffness of the muscles, as a result of which the movement of the joints becomes challenging, becomes restricted.” In an unconventional study at The Ohio State University Wexner Medical Center, Prakash and her colleagues have been looking at how the game “Dance Dance Revolution” can keep MS patients on their feet.

Read more »

 

20 STUDIES IN MONDAY'S NEWS FOR NEUROLOGISTS & NURSES PLUS SAAVY MSers!

Placebo-controlled trial of oral laquinimod in multiple sclerosis: MRI evidence of an effect on brain tissue damage.
Oral laquinimod may reduce (at least in the initial phase of treatment) some of the more destructive pathological processes in RRMS patients.

2nd International Symposium on Gait and Balance in Multiple Sclerosis: interventions for gait and balance in MS.
Department of Physical Medicine and Rehabilitation, Kennedy Krieger Institute, Johns Hopkins University School of Medicine , Baltimore, MD , USA .

Global N-acetylaspartate concentration in benign and non-benign multiple sclerosis patients of long disease duration.

Therapeutic Effects of Progesterone in Animal Models of Neurological Disorders.


Read more »

Sunday

 

15 STUDIES & STORIES IN SUNDAY'S WORLDWIDE NEWS FOR NEUROS & NURSES & PATIENTS


Biogen Idec Employees Participate in Third Annual "CARE DEEPLY VOLUNTEER DAY"
Wall Street Journal 
Over 1,900 Biogen Idec (NASDAQ: BIIB) employees will trade in their lab coats and computers today to participate in the company's third annual "Care Deeply Volunteer Day."For this day of service, Biogen Idec employees are given a paid day off to volunteer at a service project in their community. This year, employees are estimated to serve over 9,500 volunteer hours in more than 28 countries in the communities where the company operates.
UCSF Researcher First Winner of Prize for Innovative Work on Multiple Sclerosis
UCSF News Services

CLICK ON "Read More" FOR 14 MORE STUDIES & STORIES

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LAUREN PARROTT IS ONE OF OUR 5 NEW COLUMNISTS: In 2005, at the age of 21, Lauren was an intern at Good Morning America & has over 100 videos on YouTube



This article in the Grosse Point News is about Lauren:

"Diagnosed with MS as a teenager, Lauren manages well with medication. At 23, she suffered a relaspe due to a culmination of three things — a car accident, the pressure of attending Michigan State University classes and working. It was then she decided to make a video to find other people with MS and post it on YouTube. "I want to show them what is happening," she said.

Read more »

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Goalie Helps Others With Multiple Sclerosis

Wild goalie Josh Harding missed much
of last season because of his multiple
sclerosis but returned in time for the playoffs.






The  95-degree heat on a late August day made Josh Harding hasten from his Cadillac Escalade pickup truck into an airconditioned coffee shop. A few minutes after buying a lemonade, Harding — in a white T-shirt, dark blue shorts, flip-flops and a backward Minnesota Twins ball cap — felt so cold he grasped his shoulders for warmth.But Harding did not seem to mind. Oppressive heat can be problematic for people with multiple sclerosis. Keeping cool
Read more »

 

VIDEO: Alemtuzumab, to be known by the brand name Lemtrada & previously called Campath is approved in Europe after 40-year epic journey from fundamental research to discovery of an effective treatment for active relapsing multiple sclerosis.: COMING SOON TO THE USA


  CLICK HERE TO WATCH VIDEO

Approval concludes nearly 40-year epic journey from fundamental research to discovery of an effective treatment for active relapsing multiple sclerosis.

The European Medicines Agency (EMA) has approved the drug Alemtuzumab, to be known by the brand name
Read more »

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Saturday

 

Jeannine Everett, Columnist & News Editor: MY COLUMN TODAY IS TITLED: "TRAVELS WITH MY SOLUMEDROL PANTS"

I've written 12 columns for you.
Click my photo on far left side
of this page to read them!

A few months ago I had that talk with my neurologist.  I was having so many outbursts, a lot of frustration and felt I was losing control at times.  He looked at me and told me I was getting worse and that I should consider getting back on an MS medication (I have tried them all I think).  Anyway, he was right so I decided on Tecfidera.  I did it, I really did (I hate meds) but when I upped my dose after a week I had an allergic reaction so I was told to stop the medication and go see my doctor, which I did.  I started me again on the Tecfidera having me take the lower dose for a month and then go to the higher dose.  Ok, I could do that.

Anyway during that month my body on my left side started to go numb and quickly started on my right side. Then my whole body from my chest down was burning, tingling and just numb,  you know
Read more »

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Kat Taylor, Columnist: MY COLUMN TODAY IS ABOUT NARCOTICS: "WHY DO I HURT SO BADLY?"


I've written 8 columns for you. 

Click my photo on far left side 
of this page to read them! 

WHY DO I HURT SO BADLY?

I was taking narcotics but I would need a higher dose & most of the time it didn't help. I decided to stop taking narcotics. I had a lot of pain at first & withdrawals. I then started ibuprofen 800mg/three times daily, then twice. Yesterday, I didn't take any. Narcotics usually have to be increased, but what happens when there is pain & no more increase? Neurologists do not like to prescribe narcotics to patients who experience chronic pain because the long-term effects are rebound pain and build of tolerance.

DID YOU KNOW? Once opioids are begun, it only takes two-four weeks to build a tolerance and need a higher dosage.


Read more »

 

10 ARTICLES IN SATURDAYS NEWS FOR MSers @ THEIR FAMILIES



Genzyme, a Sanofi company (EURONEXT:SAN and NYSE:SNY) announced today that the European Commission has granted marketing authorization for ...

Multiple Sclerosis Therapeutics to 2019 - Treatment Diversification ...Sacramento Bee
... has released its latest research, "Multiple Sclerosis Therapeutics to 2019 ... are a number of disease-modifying drugs in the Multiple Sclerosis (MS) market that ...
Can Do Multiple Sclerosis hosts restaurant fundraiser on SundayVail Daily News
EDWARDS — Can Do Day is an annual campaign which honors Can Do MS' founder and Olympic medalist skier, Jimmie Heuga, on his birthday, Sept. 22.
Read more »

 

11 STUDIES IN SATURDAYS NEWS FOR NEUROLOGISTS & NURSES:

 

According to a new survey, many patients with Multiple Sclerosis believe they were not properly diagnosed for more than a year leading to anxiety, unnecessary or inappropriate treatments and delays in appropriate care

Patients believe they were not properly diagnosed
 for more than a year leading to anxiety

The survey examined the impact of diagnosis delays in: Alzheimer’s, Parkinson’s and Multiple Sclerosis. According to the survey, median times in patient estimates of time to diagnosis from onset of symptoms were 7 to 12 months. Physicians who participated in the survey said 1/3 of patients could or should have been diagnosed faster and may suffer unnecessarily as a result of delay.
Read more »

 

Lucy is in a trial with a robotic device aimed at recovering movement in MS patients’ arms!


IT is the highlight of the school year that every mum cherishes: plaiting and styling their young daughters’ hair for the much anticipated back to school photograph. Sadly, Lucy Coggin has been robbed of this much-loved routine after multiple sclerosis (MS) rendered her right arm semi paralysed.

But now that dream is a step closer to a reality for the mum-of-two from thanks to pioneering research being carried out by Southhampton University.

The 40-year-old is one of five people testing out a special robotic device aimed at recovering movement in MS patients’ arms and empowering them to gain control of their lives again.


Read more »


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