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Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
Click here to read my columns
Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
and
Medical Director-Rocky Mountain MS Center


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Sunday

 

"smoking approximately doubled the risk of death: Excess Mortality in MS Largely From Smoking"


Much of the early mortality seen in multiple sclerosis patients is related to their smoking habits, a researcher said here. The mortality rate in ever-smokers was 5.48 per 1,000 person-years, compared with 2.30 per 1,000 person-years among the lifetime nonsmokers in the cohort.

Of the 66 patients in the cohort who died, 45 (68%) were smokers; 49% of the entire cohort were smokers.
Read more »

Saturday

 

"I’m proud to say I’m a Copaxone girl!" - Beth Dean, Columnist


Most people that are sick pray and pray that their tests results come back normal, or whatever is wrong with them is no big deal. I just wanted an answer! I knew something was wrong with me, but I didn’t know what it was. I was fighting a ghost. That’s probably the scariest thing imaginable. But from the time I received my diagnosis, I knew what drug I wanted….I had pretty much self diagnosed my issues and researched everything possible about Multiple Sclerosis. When the words “ You have Ms “ left my doctors mouth my reaction was “ I want Copaxone “. I was fully aware it was an injection, one that you have to give your self daily. I wanted it!!! I had read great reviews on this drug. It was my ONLY option as far as I was concerned. When all the paperwork was squared away, Copaxone sent a nurse out to my home and
Read more »

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Great news on new MS Drug: Lemtrada

The European Medicines Agency's (EMA's) Committee for Medicinal Products for Human Use (CHMP) has adopted a positive opinion supporting marketing authorization for alemtuzumab (Lemtrada, Genzyme Corporation/sanofi-aventis) for the treatment of relapsing-remitting multiple sclerosis.

The drug is currently under review by the US Food and Drug Administration (FDA). 

Read more »

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Friday

 

i checked in to the hospital today and am pretty sure i wont be checking out soon

""""""" what is a nurse"""""""""""
Let's talk about my latest and impromptu hospital stay.
The view out my window was pleasant and quite okay.
my best part of the hospital stay as always , are the nurses
I don't want to be here. So many people use foul language and curses.

Never do I understand how patients can always be so mean.
These men and women who work hours upon hours, making sure you're healthy and clean. I hear people yelling at the nurses across the hall from another room sometimes even take it out on the EMTs. I just don't get it. No clue. Yet when they leave my room.
Read more »

 

HERE'S MY 1ST COLUMN! My name is Tina and I have been diagnosed with Multiple Sclerosis since I was 18 years old! - Tina, Columnist


Hi! My name is Tina and I have been diagnosed with Multiple Sclerosis since I was 18 years old, and Fibromyalgia for 7 years.

Looking back, it all happened so fast. It started on December 30th a Friday. I was at work ( waitress ) and every time I bent over I would just fall. I thought " great " I'm getting the flu. It was that time of year. I mentioned to my then boyfriend how strange I felt, and thought that was the end. Nope. I woke up the and had this unbelievable weight feeling all over my body, I could not stand up. For sure...
Read more »

Thursday

 

MOST MS PATIENTS HAVE TROUBLE SLEEPING! HERE'S GREAT NEWS! "Suvorexant: New Entry in the Quest for Perfect Sleep Drug"

 A new sleep drug by Merck & Co. is expected to gain U.S. approval in the coming months, even as its main competitor is coming under growing scrutiny by regulators and doctors for sometimes-dangerous side effects.

The new drug, known as suvorexant, will affect a different part of the brain than a generation of older medicines such as zolpidem, known as Ambien, which depresses brain activity. The hope is that suvorexant will cause fewer side effects than its older counterparts.
Read more »

Wednesday

 

"Study Finds that the Incidence of MS Appears to be Higher in African American Women Than in Caucasians, Contradicting Previous Findings"

A new study of 496 people newly diagnosed with MS found that the risk of developing MS was 47% higher in African American women, compared with Caucasian American men or women. It also found that the risk was 50% lower in Hispanic/Latino Americans, and 80% lower in Asian Americans. Previous research had indicated that the risk of MS was lower in blacks than whites. 
Read more »

Tuesday

 

"Top 10 Things Not To Say To Someone With MS"


10. Must be nice to sleep all day
9. You're lucky you don't have to work
8. I can relate
7. Just take something
6. Just try harder
5. Just be positive
4. You just want attention
3. It's all in your head
2. It could be worse
1. But you LOOK so good

 

"New hope of a migraine cure: Huge study of DNA finds clues in our genes"

Hopes of a migraine cure have been boosted by the discovery of genes
linked to the crippling headaches.

In the largest study ever to look at migraines, researchers have identified five more sections of our DNA associated with their onset. They have also confirmed the importance of seven more of these ‘genetic regions’ which have previously been linked to migraines. Most of them contain genes responsible for controlling brain circuitry or maintaining healthy brain tissue, while some are also linked to healthy circulation and cardiovascular disease. Scientists say the research, which looked at more than 100,000 genetic samples, offers a fresh understanding of what triggers migraines. click for full story

Monday

 

10 Drugs That May Cause Memory Loss: IT'S NOT ALWAYS MULTIPLE SCLEROSIS


For a long time doctors dismissed forgetfulness and mental confusion as a normal part of aging. But scientists now know that memory loss as you get older is by no means inevitable. Indeed, the brain can grow new brain cells and reshape their connections throughout life.

Woman rubbing temples, Medications that cause memory loss

But what many people don't realize is that many commonly prescribed drugs also can interfere with memory. Here are 10 of the top types of offenders.

1. Antianxiety drugs (Benzodiazepines)

Why they are prescribed: Benzodiazepines are used to treat a variety of anxiety disorders, agitation, delirium and muscle spasms, and to prevent seizures. Because benzodiazepines have a sedative effect, they are
Read more »

Sunday

 

"A test for antibodies to the JC virus (JCV) stratifies antibody-positive patients with MS"



BARCELONA, Spain — A quantitative test for antibodies to the JC virus (JCV) stratifies antibody-positive patients with multiple sclerosis (MS) for their risk of contracting progressive multifocal leukoencephalopathy (PML) if they receive natalizumab (Tysabri, Biogen Idec). However, some risk remains even with low antibody levels, and some patients who harbor the virus have proven negative for antibodies, studies show.
Read more »

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Saturday

 

"European green light for new multiple sclerosis medicine Lemtrada (alemtuzumab) - once known as Campath"



LONDON (Reuters) Jun 10 - One of the world's longest running drug development sagas may draw to a close this month as French firm Sanofi hopes for a European green light for its new multiple sclerosis medicine Lemtrada (alemtuzumab) - once known as Campath.
After studying Lemtrada since the early 1990s, he believes the drug's infrequent infusions have a lot to offer patients.
Sanofi, too, is optimistic about a medicine that would mark its second victory in MS, following last year's U.S. approval of Aubagio, a pill. It expects an EMA verdict by mid-year, implying a decision at the agency's next expert meeting on June 24-27.
Read more »

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Thursday

 

"I’m sick & tired of being sick & tired. I feel like bitching & damn it I intend to do so today



You know what pisses me off ?!!? Shitty days! 
With MS, you’ll have quiet a few of them…

The thing about shitty days for me is they come right in the middle of some good weeks! I’ll do awesome for weeks, better than ever. No balance issues, walk like a “normal” human being…even the muscle spasms will subside. 

Then BAM! Out of nowhere here comes a damn shitty day! You know the one I’m talking about?! You wake up looking around, thinking to yourself, do I really need to get up and use the bathroom? It seems so far away! You can feel your legs trembling already, yours arms are tingly and tight, and no matter how much or how little you slept…your STILL tired! 

It’s on these days that I remember, whether I want to or not that I have
Read more »

Wednesday

 

"Iran says they have cure for multiple sclerosis with homeopathic medication"

Yesterday saw news from Baku, Azerbaijan stating that a new treatment for Multiple Sclerosis is going to hit Iranian markets in October of this year and that it is going to be able to cure this disabling disease.

As a matter of fact, it was an Iranian television news station that had said in January of this year researchers had discovered an “herbal substance that can completely cure multiple sclerosis”, but yesterday's release shows they now have an idea of when those with MS will be able to use it.

Mohammad Ali Saraian, the Deputy chairman of Iran's Multiple Sclerosis Society was reported as saying that it is an oral medication (syrup-form) and it is currently undergoing the last stages of clinical testing with human subjects.
Read more »

Monday

 

Tips to get the most from your memory from Harvard Med School


As you’ve gotten older, have you noticed that you often find yourself marching around the house in a huff, searching for misplaced car keys or eyeglasses, or you just cannot remember the name of that new neighbor you met when walking the dog? It’s frustrating, to be sure, but not inevitable — and there are things you can do to help keep your memory sharp. “Most people get a little more forgetful with aging, but there are some simple things

Read more »

 

"Don't Dismiss CCVSI Yet, Expert Says"



Doctors should encourage their patients with multiple sclerosis (MS) who are curious about chronic cerebrospinal venous insufficiency (CCVSI) to "hold off" getting the related procedure until results are in from what some view as a potentially definitive trial on the merits of this intervention, according to Alexander Rae-Grant, MD, neurologist and chair, Neurological Education, Cleveland Clinic, Ohio.
Read more »

Sunday

 

'My current poison is Paxil! It makes me feel all dried up! I can't cry anymore"


MS and Antidepressants are two peas in a pod. MS is not only a cause of depression, but the disease modifying drugs are as well. That is if one chooses to take them. Me, on hand prefers not to take the DMD's. I mean who wants to fuck up their livers by taking these drugs in the hope your disease--which is slow already--doesn't get worse. I don't. MS gives us enough shit to worry about.

But, I want to focus on one things today--depression. Depression and MS is a given. So most of us are forced to take an antidepressant. Myself--I have been battling depression for a long time and have tried several prescriptions. My current poison is Paxil. That's right I said poison. I have been doing great except one thing.

Read more »

Saturday

 

"Marijuana Pill Relieves MS Symptoms"


Marijuana extract pills may ease painful muscle stiffness for some patients with multiple sclerosis, a randomized trial affirmed.

Bodily pain, spasms, and other outcomes also favored the cannabinoids, they reported online in the Journal of Neurology, Neurosurgery & PsychiatryOverall MS symptom ratings and the effect of spasticity on body movement also showed significantly greater improvements in the active treatment group.click for full report



 

IN A FEW DAYS...IT WILL BE 1 YEAR FROM THE DAY CINDI'S DAUGHTER TARA COMMITTED SUICIDE! HERE'S THE LETTER CINDI JUST WROTE TARA:



(Click here to give Cindi your Love and Support! Cindi has MS)

I am devastated....I wrote Tara a letter this morning. I want to share it with everyone because I think it is important to know what we go through as parents when our loved ones commit suicide. 

There are so many unanswered questions and guilt. Please support Suicide Awareness. Even if it is by just sharing my Tara's story! Here's the Letter:


Dear Tara,

I miss you. I hope you have found happiness and peace within your soul. I love you and i hope that there was never a doubt in your mind that i loved you. i know we had our struggles, but in the end there was still love. i wish that you would have waited for me that day. we could have talked and everything would have been okay for a little bit longer. i am so sorry that you were so sad and so alone. if I had known, i would have never left you that day. i am sorry for whatever he said to you to make you want to go. he still loves you. we all love you. i know things were said in anger and frustration, but you know we all do that. it is not right, but it is done. 

i am having a hard time down here without you.
Read more »

Friday

 

"Im in the hospital! I've been bedridden for 5 years I WILL walk & run again-I have never given up & I will never"

Daniel

I am in the hospital because my legs are extremely so very weak and now I am bedridden, can't stand or walk with my walker. 

My neuro wanted me to go to a rehab hospital for 14 days and I got admitted in this past Friday after noon so that day and Sunday is not going to count- Saturday, Monday, Tuesday and today Wednesday will count, lol so yeah I have 11 more days damn, I just thought Sunday would count,

But even though I am very bedridden and have been for 5 years I WILL walk and run again, I have never given up and I will never. I am 6'6 and I have won and lost basketball and football games but this MS is the toughest opponent I have ever face and I will beat this MS for sure.

 

"Alemtuzumab (Campath, Lemtrada) benefits the hardest-to-treat MS patients, a new study suggests"

Alemtuzumab benefits the hardest-to-treat multiple sclerosis (MS) patients, even when the efficacy bar is set at the high possible level, a new study suggests.

The study showed that after 2 years, almost a quarter of patients had achieved a disease activity–free state compared with none of those treated with interferon.
Read more »

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Top 10 Apps for Multiple Sclerosis


According to the Multiple Sclerosis International Federation (MSIF), multiple sclerosis (MS), affects 2.5 million people worldwide.  

Over the past few years, some have been turning to smartphone apps for MS management. Here are the 10 most popular.

CLICK HERE FOR TOP 10 MS APPS 






Thursday

 

IDIOT NEUROS & Multiple Sclerosis

Beth Dean, Columnist, MSnewsChannel.com


Sometimes in life you have to upgrade..not always out of need, sometimes out of want. I want a new car, house, spouse, etc. Well...I want a new Neuro! 

I know it's not exactly what all the new kids want, but when your living with Multiple Sclerosis..that should be exactly what you want! 

Getting diagnosed at 27 with MS is not an easy pill to swallow. Especially when your neurologist makes you feel insane. I was asked if I have done drugs over a handful of times..drilled on WHY my family has no history of the disease…looked at with puzzled expressions when trying to explain why exactly I can’t walk. The level of unprofessionalism was not even breached until later on in my diagnosis. I live in a
Read more »

 

Upward Mobility with REX


When Robert Irving was diagnosed with Multiple Sclerosis it was the catalyst for him and his childhood friend, Richard Little, to put turn their engineering skills to the task of developing an exoskeleton that was a practical standing and walking alternative to wheelchairs. The result is REX, an exoskeleton made of strong, lightweight materials that is designed to support and hold a person comfortably as they move.
Read more »

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Wednesday

 

I QUIT COPAXONE AND STARTED GILENYA 1 YEAR AGO: IT'S WORKING IN MY FIGHT AGAINST MULTIPLE SCLEROSIS: WITH NO SIDE EFFECTS


It has been now exactly a year since I started Gilenya and 13 months since I quit Copaxone. 

Do I miss the shots? Heck NO! Gilenya makes me feel good. 



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Tuesday

 

MARY HAS MIGRAINE HEADACHES AND INTERESTING INFO HER NEURO EXPLAINED ABOUT REBOUND HEADACHES


In 2006 I suffered from chronic migraine headaches. The doctor explained to me about rebound headaches. 

Taking pain medication during a migraine can cause them to circle back the next day but worse. I was then prescribed amytriptiline. I then proceeded to gain weight. Click here for my full story






 

"I was afraid the Cancer came back"


I haven't been feeling well and was deathly afraid the Cancer came back in my bones but nope.

Thought perhaps it was a new form of MS flare for me but nope... was referred to a rheumatologist and guess what??? 

I also have lupus and also tested positive for rheumatoid arthritis which is probably just an aspect of the lupus. 

How does one person get so lucky as to have 4 or 5 autoimmune diseases? 

I think I must secretly be a science experiment exacted by the government lol....oh well what's a girl to do but laugh??? 

But in all seriousness...friggin really??






 

"BIG MULTIPLE SCLEROSIS BREAKTHROUGH: Phase 1 trial safely resets patients’ immune systems, reduces attack on myelin protein"


"A phase 1 clinical trial for the first treatment to reset the immune system of multiple sclerosis (MS) patients showed the therapy was safe and dramatically reduced patients’ immune systems’ reactivity to myelin by 50 to 75 percent, according to new Northwestern Medicine research.

“The therapy stops autoimmune responses that are already activated and prevents the activation of new autoimmune cells,” said Stephen Miller, the Judy Gugenheim Research Professor of Microbiology-Immunology at Northwestern University Feinberg School of Medicine. 

 “Our approach leaves the function of the normal immune system intact. That’s the holy grail.”




Saturday

 

Do Not Judge Me and My Multiple Sclerosis!

Valorie Jaedickie,
MSnewsChannel.com
Columnist

Again the other day I was told "You don't look disabled"....What? 

Seriously you went there? Can you see diabetes, mental illness, someone in pain, Fibromyalgia? Come on!!!  

Why would you want to judge someone that you have no idea what they go through each and everyday?

It takes everything I am to get myself out of bed because of the fatigue. And you think you know fatigue...not! You can have a great nights sleep but still feel as if you never slept and have no energy to do anything.  It is something I fight everyday and when I make it out of bed and function to the best of my ability that for me is a great day. For you it is easy.  Not so much for a person with MS.

Can you see my cognitive issues? No. Not unless you talk to me on a day that I cannot find the words to describe something or repeat things over and over because I cannot remember that I already said that.

Read more »

Friday

 

MIGRAINE RELIEF FOR MULTIPLE SCLEROSIS PATIENTS: "metoclopramide provides additional pain relief & a reduction in associated symptoms, especially nausea!"



"A single oral dose of aspirin 900 mg or 1000 mg is more effective than placebo at resolving migrainous headache pain at 2 h and providing relief that is sustained over 24 h.[1] 
Co-administration of metoclopramide 10 mg may provide additional pain relief and a greater reduction in associated symptoms, especially nausea





 

Our Correspondent Beth has 2 new videos on our YouTube Channel

Thursday

 

I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya which I'm taking for my Multiple Sclerosis


 Valorie Diamond, Columnist, MSnewsChannel.com
This is my 1st column! my next one will be longer and better!


Just dealing with a lot and trying to keep myself on an even keel. I have developed high blood pressure and it appears to be a RARE side effect of the Gilenya. 

I have also been dealing with TMJ and trying to get a mouth guard....but who has $2000.00 to just drop in someone elses hands?! And I am suppose to have two of them? 

And just yesterday I found out that I am close to having diabetes. 

So everything in my body right now is going nuts. And we found out that our insurance is canceled because hubby is still on W/C awaiting 2nd surgery. 

So as you can seel I have been kinda pre-occuppied. 


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MY STEM CELL JOURNEY! (Part 1)


by Judi Lecoq, Columnist, MSnewsChannel.com

My name is Judi Lecoq. Multiple Sclerosis is my little companion, unwanted but it will not go away. I want to tell my story, I am compelled to tell my story. And this is why, when Stan so kindly invited me to write a column for StansAngels, I agreed.

I used to walk normally, even run. I used to play guitar quite well. I used to wear high heels. I used to run a business. I am still me, but I have learned to adapt to the new Judi.

In 1997, after a bad fall, an MRI revealed a lesion on my spinal cord.A spinal tap was recommended to name this thing called Multiple Sclerosis.

Guess what? I was relieved to finally know why I was always fatigued and terribly uncoordinated. Oh, let’s not forget the really embarrassing stuff which had been going on for 20+ years. So when the Doctor said “You have Secondary Progressive Multiple Sclerosis”, I said “YAY….what, WHAT?”  Click here for my full story 

 

It's a Hell of a Disease, This MS! plus: I've now undergone 47 surgeries including the chosen amputation of my right leg above the knee

 Megan Jones, Columnist, MSnewsChannel.com

Flash back to Day 1:


The doctor sat up looking as calm as he could
before shaking his head saying, "Well this sure isn't good.""The tests have solidified our worst fear!

Notice the spots in your brain here, here, and here."

He then started to explain about the normal human brain before sighing and saying, "I'm sorry but yours just isn't the same."

"Now none of this is normal by any stretch of the word


 

Tysabri Screening Test May Be Unreliable!


About one-third of multiple sclerosis patients testing negative for antibodies against the JC virus -- suggesting that natalizumab (Tysabri) would be relatively safe -- were found to have active viremia, researchers said.

The report, published in the June 6 issue of the New England Journal of Medicine, raises the specter that patients with negative JC serology results could be given natalizumab when they may actually be at high risk for progressive multifocal leukoencephalopathy (PML), an often fatal type of brain inflammation.  click for full article

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I was in a relationship for many years & everything was fine until I got sick with Multiple Sclerosis...

by Daina Gurien, Columnist, MSnewsChannel.com

Being since MS does'nt have a face or a certain look, if you will, he always thought I was trying to get attention. 

In my case, I simply decided, after much hurt, I refused to spend another day defending a disease I hate.

My life is much better now. Not to say this will be the same answer for everyone. 

The key to every good relationship is trust. In my opinion, if the trust is gone, what do you have left?

I would just think about that and ask yourself, in a year from now....do I want to be living like this? 

No matter what the situation....stress is your enemy.


Saturday

 

BREAKING NEWS: Goat Serum Extract Stops Progressive Multiple Sclerosis

ORLANDO -- A controversial product derived from goat blood appeared to benefit patients with secondary progressive multiple sclerosis in an open-label study, researchers said here.
Among 140 British patients receiving up to 3 years of treatment with the proprietary extract, called AIMSPRO, in clinical practice, 100 showed improvement in at least two separate areas of MS-related symptomatology...CLICK HERE FOR FULL STORY



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