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5/11/13
We are looking for Volunteers to post the news on this site. Please write Stan at StansAngels@mac.com
I'M BARFING NEXT TIME I HEAR: "You Don't Look Sick Beth"
by Beth Dean, Columnist, MSnewsChannel.com
 It’s a hard thing to explain MS to people who have no clue what it is. I find people have a difficult time even believing I’m sick in the first place. “You don’t look sick” has become the phrase of choice in my life.
That is one of the advantages/disadavantages of this disease.
On one hand, I really don’t want to look sick. I don’t want people to feel sorry for me by no means! But on the other hand people look at me like I’m crazy sometimes when I get tired easily or can’t walk for long periods of time without resting. “You look normal”…
Well thank you! I didn’t know that people with a disease are suppose to look abnormal! It really gets under my skin.
I don’t mind breaking it down for people. Explaining what is going on within my own body…I’ve got quiet good at it actually. I tell most like I told my 9 year old son, Everyone has a tiny army in their body that fights off all the bad virus guys when your sick; that army is called your Immune system. say it with me people: "Immune System"…..
Well when you have MS, your little army guys aka. Immune System…Says Hey, I don’t want to snack on nasty virus bad guys, I think I’ll eat on some of this yummy fatty stuff that is protecting Mommies nerves! Remember, I’m talking to a 9 year old…most of the time! When they do that and eat away all the fat that protect the nerves it makes big sores on my brain, neck and spine, which causes mommy to do the Frankenstein shuffle some days.
See, it’s not hard to break it down to were even a kid can understand, but people can still not grasp the concept that I don’t look sick.
Listen, I may not…I may look fine. But I FEEL sick! All the time!
I push through. I’m very stubborn and independent, but please don’t tell me I don’t look sick. Because I will take it as a compliment. That means I’m doing all this right. Smiling even when I don’t want to, making fun of myself when sometimes I wanna cry, doing the stand up comedy at my very own pity party!
Some wonder why I tell people I have MS. My answer? It’s not going away! EVER! In October of 2012 the old me left..this is me now. I live with this everyday and if you want to be in my life, you’ll have to accept me. My disease and all. It’s a package deal really.
So for all that don’t know me or some that do. My name is Beth Dean and I’m living with Multiple Sclerosis.
I don’t look sick but on the inside I’m a mess
 
5/9/13
Clinical Trials Necessary to Approve a Copaxone Generic
(Posted By: Josi Creek)
Any generic of Teva’s blockbuster multiple sclerosis treatment Copaxone would need clinical trials to gain approval, the company says in response to speculation that the FDA might approve a generic Copaxone using the same criteria it applied to generic Lovenox. “In the case of Copaxone and other complex molecules, there are no acceptable … tests either in humans or animals that can be relied upon except for complete clinical tests, which reflect the clinical outcome in multiple sclerosis,” Teva CEO Shlomo Yanai said.
Labels: Copaxone, Research, Studies
5/3/13
"IDIOT NEUROS" by Beth Dean, Columnist, MSnewsChannel.com
 Sometimes in life you have to upgrade..not always out of need, sometimes out of want. I want a new car, house, spouse, etc. Well...I want a new Neuro! I know it's not exactly what all the new kids want, but when your living with Multiple Sclerosis..that should be exactly what you want!
Getting diagnosed at 27 with MS is not an easy pill to swallow. Especially when your neurologist makes you feel insane. I was asked if I have done drugs over a handful of times..drilled on WHY my family has no history of the disease…looked at with puzzled expressions when trying to explain why exactly I can’t walk. The level of unprofessionalism was not even breached until later on in my diagnosis. I live in a super small town where there really isn’t that many options. You take the help you can get, but correct me if I’m wrong..it’s suppose to be help, right?!?!
After laying in the torture chamber they call an MRI for 3 hours and receiving the world’s best lumbar puncture in the world; I was finally told what this ghost was I was fighting. Multiple Sclerosis…the very sound of it brought me to tears! My life just started. Was I ever going to walk again, run with my kids, be normal?
They admitted me into the local hospital for a week were I received IV Steroids for 5 days. It worked…I was cured! I thought. I was walking and putting my own hair up, brushing my teeth and taking a shower all by myself. I thought it was over. I was released and instructed to come back if any symptoms reared their ugly heads and told my symptoms would gradually keep fading. Maybe not go away all together..but they would get better.
Less than a month later, I was back. They admitted me back into the hospital on Halloween night. Started my on another round of IV Steroids and then it happened:
The downfall of my neurologist.
He cut me off, just like that. Walked in and refused me anymore medicine. “I can’t give you steroids all the time Mrs. Perkins” or my personal favorite “Why are you here?” Excuse me???? Who’s the doctor here? He just let me walk out of the hospital..if walk is what you would call it. I like to think of it as the Frankenstein shuffle. All I got was a parting gift of an appointment with a MS specialist. An MS specialist that was over 3 hours away, which made me not even want to go in the first place. Little did I know this guy would be my saving grace!
So, I battled through months…Months of stiff achy arms and legs..My now famous Frankenstein shuffle, no balance, extreme fatigue..the works! Eureka….help, that’s what you look like! Upon arriving at the specialist I received brand new MRI’s which are not my favorite but necessary for people with this disease. I also got a test for Divec’s Disease..which I forgot to mention my “idiot neuro” told me I may have but we would just have to Wait & see! Good news first. I do not have Divec’s.
I do have a rare form of MS, because I am special and always do things the hard way. I only have one lesion on my brain and multiple on my neck and spine. I’m told that’s unusual..lovely. My MRI’s came back and showed I had been in an active attack for the past few months since being diagnosed. HE DIDN”T EVEN GET ME OUT OF MY FISRT ATTACK?!?! I was shocked to say the least. Yes I had been on meds and taking my daily injection for the whole time, but it only prevented me from going into another one..I had been fighting this all alone. I had thought to myself of this period of time “I’m being a baby, this is just how your going to feel. This is your life with MS. Suck it up”
Turns out I am one tough chick! I got admitted into a hospital were they actually cared. They finished my sentences even..about how I was feeling. Hey, you’ve done this before I see?!?! More steroids..more…more…even sent home with some. But they are making me so much stronger!
I feel like I’m coming out of a fog I’ve been in for far too long.
The moral of this long story, what I want everyone with Multiple Sclerosis to take away from this?
 You not only want a specialist..you NEED one! They know what to do for you..how to help…want to help! It’s a great feeling knowing someone lives to make you better. You may never be the same. I may always walk a little different, or get tired when doing the simplest of tasks; but I’m on the right track to healthy..for me.
My last words of wisdom…
Just say NO to “Idiot Neuros” you’ll thank me later
4/17/13
"Subtle Cognitive Declines Follow Menopause"
We are re-starting this site on June 1st
It's been inactive for a while as we have been posting news on our Facebook Page
2/27/13
Our Facebook Page crashed so come to our new page & if you are not already a Friend: please become one: www.facebook.com/stan.swartz3
Send me a Facebook message with your problem, rant, rave or question about MS and I will give you my support! Then I post it for my Friends...I call them Angels! My Angels will give you Love, ((((hugs))) and Prayers...PLUS A SHOULDER TO CRY ON!
XOXOX
Stan
HERE'S ONE OF THE 1000's OF EMAILS FROM MS PATIENTS THAT STAN HAS POSTED ON FACEBOOK FOR THE ANGELS TO OFFER SUPPORT:
HERE'S ANOTHER ONE FROM TODAY:
8/13/10
Oprah Co. Sued for Multiple Sclerosis Discrimination
(Posted By: Josi Creek)
A woman who worked for Oprah Winfrey's OWN network claims she was subjected to a hostile work environment because she suffers from Multiple Sclerosis.
Read more »Labels: discrimination
8/5/10
Investigators Recruiting Globally For Phase II Study Of Oral Multiple Sclerosis Pill
(Posted By: Josi Creek)
Investigators are recruiting 400 people with relapsing-remitting MS for a study evaluating three doses of ACT-128800, an oral compound that affects immune function, versus placebo. The study sponsor is Actelion Pharmaceuticals, Ltd.
Read more »Labels: Research, Studies
8/2/10
Novel multiple sclerosis theory (CCSVI) dealt a blow by studies
(Posted By: Josi Creek)
A novel theory about the cause of multiple sclerosis — one that quickly led to millions of dollars in research pledges and an increasingly popular, though unproved, treatment — took a hit Monday from two studies calling the premise into question.
Read more »Labels: CCSVI, Research, Studies
Gene Variant May Increase Severity of Multiple Sclerosis
(Posted By: Josi Creek)
A new study shows a gene variant may increase the severity of multiple sclerosis (MS) symptoms. The research will be published in the August 3, 2010, issue ofNeurology®, the medical journal of the American Academy of Neurology.
Read more »Labels: genetics, Research, Studies
8/1/10
FDA Approves First Human Trial of Embryonic Stem Cells
(Posted By: Josi Creek)
The U.S. Food and Drug Administration approved the world’s first human clinical trial of a therapy involving embryonic stem cells, the biotechnology company behind the planned trial announced Friday.
Read more »Labels: Research, Stem Cell, Studies
Multiple Sclerosis To Be Diagnosed Earlier – Study
(Posted By: Josi Creek)
UCI immunological study finds earlier way to diagnose multiple sclerosis (MS). Assessing for the increasing presence of antibodies that blocks energy production in neurons, UCI immunologists discovered that it can be used also in diagnosing multiple sclerosis at an earlier stage of the disease than the usual diagnostic tools. Read more »Labels: Research, Studies
7/23/10
Teriflunomide and Glatiramer Acetate Combination Safe and Effective Against Relapsing-remitting Multiple Sclerosis
(Posted By: Josi Creek)
The current long-term therapies used to treat multiple sclerosis (MS) are administered intramuscularly or subcutaneously, producing local adverse effects at the sites of injection. Hence, the development of an orally administered drug would offer greater convenience and be more acceptable to patients. Teriflunomide is one of five such orally administered disease-modifying agents (used against rheumatoid arthritis) currently under investigation. Now, a Phase II trial conducted by researchers at the Mount Sinai School of Medicine reports teriflunomide to be safe and effective when used in conjunction with glatiramer acetate for the treatment of relapsing-remitting multiple sclerosis (RRMS).Labels: Glatiramer acetate, Research
CCSVI Trial Set for This Fall
(Posted By: Josi Creek)
With health officials clamouring for more scientific research before green-lighting the new liberation treatment for multiple sclerosis (MS), local supporter and cardiovascular-thoracic surgeon Sandy McDonald is stepping up to provide it.
Read more »Labels: CCSVI
7/19/10
Upward Mobility with REX
(Posted By: Josi Creek)
When Robert Irving was diagnosed with Multiple Sclerosis it was the catalyst for him and his childhood friend, Richard Little, to put turn their engineering skills to the task of developing an exoskeleton that was a practical standing and walking alternative to wheelchairs. The result is REX, an exoskeleton made of strong, lightweight materials that is designed to support and hold a person comfortably as they move.
Read more »Labels: Walking and Mobility
6/27/10
Meat, Sausage and other foods can heighten risks of Multiple Sclerosis
(Posted By: Josi Creek)
Opinion from examination of information from seven EU countries introduced today by German epidemiologist Dr. Klaus Lauer, at the 20th Meeting of the European Neurological Society (ENS) in Berlin, Germany, stated that the facts presented as of currently are not affirmed informal link, but is an expressive implication that a link possibly does exist and needs to be completely researched.
Read more »Labels: Research
6/23/10
Multiple Sclerosis treatment, daclizumab in final clinical trial stage
(Posted By: Josi Creek)
Abbott Laboratories and its Massachusetts biotech partner have launched a final-stage clinical trial of their experimental treatment for multiple sclerosis.
The first patient — out of 1,500 needed worldwide — was enrolled last month in the U.S. The drug, daclizumab, is being developed for monthly injection under the patient’s skin by North Chicago-based Abbott and Cambridge-based Biogen Idec.
Read more »Labels: Daclizumab
6/22/10
NIH Denies Request For Federal Funding to Study New Stem Cell Lines
(Posted By: Josi Creek)
A private lab’s request for federal funds to study 47 new stem cell colonies has been denied by National Institutes of Health director Francis Collins. The rejection comes after an advisory committee recommended against the approval citing the request violated strict ethical guidelines. Many scientists had hoped for an approval that would give them the ability to study various mutations of diseases. Diseases that were proposed to be studied included Huntington’s disease, cystic fibrosis and multiple sclerosis. Scientists believe the studying of these stem cell lines could have led to treatments for many of these incurable and often times deadly conditions.
Read more »Labels: Research, Stem Cell
6/21/10
Multiple Sclerosis in a War Zone
(Posted By: Josi Creek)
Can multiple sclerosis attacks be minimized in a war zone? *An earlier study has shown that the stress of the Second Lebanon War in Israel increased the frequency of attacks in multiple sclerosis (MS) patients. The present study reveals that a potential way to minimize MS exacerbation is by directly coping with the situation. * Read more »Labels: Research, Studies, Symptoms
6/20/10
GW Pharmaceuticals Sativex Cannabis is Psychoactive Free
(Posted By: Josi Creek)
Even if you were to track down the location and break into the computer-controlled greenhouse, the cannabis plants you would find at GW Pharmaceuticals' top-secret farm would be unlikely to give you the high you were hoping for.Read more »Labels: Medical Marijuana, sativex
(Posted by: Josi Creek) Labels: Research, Studies
6/19/10
(Posted By: Josi Creek)Labels: Medical Marijuana, sativex
(Posted By: Josi Creek) Labels: Cognition, Research, Studies
(Posted By: Josi Creek)Labels: Research, Studies
(Posted By: Josi Creek) Labels: Research, Studies
(Posted By: Josi Creek)Labels: Research, Stem Cell, Studies
(Posted By: Josi Creek) Labels: Research, Studies
6/18/10
GW Pharmaceuticals cannabis-based drug Sativex approved
(Posted By: Josi Creek)
A ground-breaking cannabis-based drug for treating symptoms of multiple sclerosis has been approved in Britain, in a landmark decision for its creator GW Pharmaceuticals.
Read more »Labels: Medical Marijuana, sativex
Novartis' Gilenia Pill May Shake Up Global MS Market
(Posted By: Josi Creek)
Novartis AG's novel multiple sclerosis pill Gilenia holds the potential to shake up the $10 billion multiple sclerosis market and give the Swiss pharmaceuticals giant a cutting edge over rivals such as Irish drug maker Elan Corp. PLC , U.S.-based Biogen Idec Inc. and Germany's Merck KGaA.
Read more »Labels: Fingolimod, Gilenia
6/16/10
Biogen Reports 6 More Brain Infection Cases In Tysabri Users
(Posted By: Josi Creek)
Biogen Idec Inc. (BIIB) disclosed six more cases of a rare brain infection in multiple sclerosis patients on Tysabri, which it sells with Elan Corp. (ELN), bringing the total number of cases to 55 as of June 7.
Read more »Labels: Tysabri
Breakthrough Finding from Israel may Lead to Earlier Diagnosis Multiple Sclerosis
(Posted By: Josi Creek)
A breakthrough finding from Israel may lead to earlier diagnosis, more effective intervention, and perhaps even a cure for the autoimmune disease multiple sclerosis.
"Those who will develop MS will show a different blood signature from those who will not," Prof. Anat Achiron, director of the Multiple Sclerosis Center at Sheba Medical Center.
Read more »Labels: Research, Studies
(Posted By: Josi Creek)
This is a study that shows very promising results for Rituximab. Labels: Research, Rituxan
Zamboni Says Vein Procedure Should be Offered in Clinical Trial
(Posted By: Josi Creek)
People with multiple sclerosis should be able to have surgery on blocked neck veins as part of a clinical trial, says the Italian doctor who pioneered what has become known as the liberation therapy.
Read more »Labels: CCSVI, Clinical Trials
6/15/10
Biogen Idec Announces Enrollment of First Patient in Oral Therapy Combination Trial in Multiple Sclerosis
(Posted By: Josi Creek)
Biogen Idec today announced enrollment of the first patient in a multicenter Phase II clinical trial designed to evaluate its investigational oral therapy BG-12 (dimethyl fumarate) in combination with commonly used first-line treatments in patients with relapsing-remitting multiple sclerosis (RRMS). The trial, called EXPLORE, will evaluate the safety and tolerability of BG-12 when administered with beta interferons (IFNB) or glatiramer acetate (GA) to patients who continue to have evidence of disease activity despite receiving consistent monotherapy for at least a year ,
Read more »Labels: BG-12, Studies
Genzyme's MS drug, Alemtuzumab gets FDA fast track
(Posted By: Josi Creek)
Genzyme's multiple sclerosis drug candidate, Alemtuzumab was granted fast track status by the Food and Drug Administration, the company said Monday.
The FDA grants fast track status to drug candidates that are designed to treat serious diseases, and which may be superior to current therapies. Fast track status includes additional collaboration between Genzyme and the FDA, and will allow Genzyme to submit portions of its application for the drug alemtuzumab as they are completed, rather than when all clinical testing is complete. It also means alemtuzumab could get approved more quickly. Drugs that receive fast track status are more likely to get a priority review, which is complete in six months instead of the usual 10 months. Labels: Alemtuzumab
(Posted By: Josi Creek)
"In subjects with multiple sclerosis, B cells are critical for T-cell trafficking into the central nervous system and may alter the process by influencing chemokine production within the central nervous system."
Labels: Research, Studies, Tysabri
(Posted By: Josi Creek)Labels: Cognition, Research, Studies
(Posted By: Josi Creek)
"Demyelinating and inflammatory activities of MS persisted after allo-HSCT (allogeneic hematopoietic stem cell transplantation) in all of the patients with MS. Active and chronic active MS lesions exhibited significantly higher numbers of CD3+ T cells and CD8+ cytotoxic T cells and significantly higher scores of CD68+ microglia/macrophages than did chronic inactive lesions or normal-appearing white matter. The normal-appearing brains of allo-HSCT recipients who did not have MS were found to have significantly higher numbers of CD3+ T cells and CD8+ cytotoxic T cells and higher scores of CD68+ microglia/macrophages compared with the controls; however, no demyelination was identified in these non-MS samples."Labels: Research, Stem Cell, Studies
6/12/10
Elan dealt a blow as rival drug, Gilenia, approved
(Posted By: Josi Creek)
ELAN, the Athlone-based pharmaceuticals company, has been dealt a blow after a rival to one of its leading drugs was approved by US regulators. The share dealt 2.5pc lower in New York yesterday.
Read more »Labels: Fingolimod, Gilenia, Tysabri
Virus can make immune cells attack nerves in multiple sclerosis
(Posted By: Josi Creek)
In young adults afflicted with multiple sclerosis (MS), a virus infection can incite the body to attack its own nerve tissue by activating unusual, disease-fighting cells with receptors for both viral and nerve proteins. Read more »Labels: Research, Studies
6/11/10
Natalizumab an Alternative for Those in Whom Other MS Treatments Have Failed
(Posted By: Josi Creek)
A new study suggests that patients with relapsing-remitting multiple sclerosis (RRMS) in whom previous treatment regimens have failed remain stable or show improvement when switched to treatment with natalizumab (Tysabri, Novartis).
Read more »Labels: Natalizumab, Tysabri
Team to test theory of vein efficiency in Multiple Sclerosis patients, and how to detect it
(Posted By: Josi Creek)
B.C. doctors will be part of a $2.4-million, two-year research study to look at whether a controversial treatment for multiple sclerosis is legitimate.
Read more »Labels: CCSVI
FDA panel recommends approval of first oral drug for multiple sclerosis
(Posted By: Josi Creek)
A Food and Drug Administration advisory panel on Thursday unanimously recommended approval of the first drug for multiple sclerosis (MS) that can be taken orally. Existing drugs for the disease have to be given intravenously or by injection. The new drug, targeted initially at relapsing-remitting MS, is called fingolimod and its manufacturer, Novartis, plans to use the brand name Gilenia. The agency is not required to follow the recommendations of its advisory panels, but it generally does.
Read more »Labels: Fingolimod, Gilenia
Exercise Helps Multiple Sclerosis Patients
(Posted By: Josi Creek)
Patients with multiple sclerosis (MS) are able to exercise longer when they take intermittent rest breaks, according to a new study presented here at the Consortium of Multiple Sclerosis Centers 24th Annual Conference and the Third Joint Meeting of Americas Committee for Treatment and Research in Multiple Sclerosis.
Read more »Labels: Exercise, Research
Vitamin D Linked to Poor Learning Performance in Patients With MS
(Posted By: Josi Creek)
A new study shows that serum vitamin D deficiency is associated with poor learning performance among patients with multiple sclerosis (MS). The research was presented here at the Consortium of Multiple Sclerosis Centers 24th Annual Conference and the Third Joint Meeting of Americas Committee for Treatment and Research in Multiple Sclerosis. Read more »Labels: Studies, Vitamin D
Physical Therapy Improves Urinary Symptoms in Patients With Multiple Sclerosis
(Posted By: Josi Creek)
A physical therapy regimen improves both urinary incontinence and urinary retention in patients with multiple sclerosis (MS), according to a study presented here at the Consortium of Multiple Sclerosis Centers 24th Annual Conference and the Third Joint Meeting of Americas Committee for Treatment and Research in Multiple Sclerosis.
Read more »Labels: Research, Weak Bladder
Vitamin D Exposure in Childhood Linked to Age at Onset of MS
(Posted By: Josi Creek)
Levels of childhood sun exposure and the presence or absence of cod liver oil supplements predict age at onset of multiple sclerosis (MS), a new study suggests.
Read more »Labels: Research, Vitamin D
6/10/10
New Multiple Sclerosis Drug , Fingolimod, Expected to be Approved by FDA
(Posted By: Josi Creek)
The panel that recommends drug approvals to the FDA has unanimously agreed that the multiple sclerosis drug, fingolimod is safe and effective. The panel is comprised of 25 medical experts not employed by the FDA. The proposed drug is manufactured by the Swiss company Novartis and would be marketed under the name Gilenia. If approved, the drug is expected to bring in more than one billion dollar in annual sales for the company.
Read more »Labels: Fingolimod
6/9/10
Vitamin D Linked to Poor Learning Performance in Patients With Multiple Sclerosis
(Posted By: Josi Creek)
A new study shows that serum vitamin D deficiency is associated with poor learning performance among patients with multiple sclerosis (MS). The research was presented here at the Consortium of Multiple Sclerosis Centers 24th Annual Conference and the Third Joint Meeting of Americas Committee for Treatment and Research in Multiple Sclerosis.
Read more »Labels: Research, Studies
New Adult Stem-Cell Treatments Advance
(Posted By: Josi Creek)
New reports indicate that real hope for ‘miracle’ treatments using adult stem cells is on the way for those suffering from diseases afflicting both the brain and the heart.
Read more »Labels: Stem Cell, Studies
6/8/10
Novartis’ Multiple Sclerosis Pill, Gilenia, Faces FDA Review
(Posted By: Josi Creek)
Novartis AG’s drug Gilenia has risks that may outweigh its benefit in treating multiple sclerosis, according to U.S. regulators reviewing whether to approve the first pill to slow progression of the disease.
Read more »Labels: Gilenia, Oral Disease Modifying Drugs
6/7/10
Postpartum Steroids Reduce Multiple Sclerosis Relapses
(Posted By: Josi Creek)
A single dose of methylprednisolone given to new mothers with multiple sclerosis immediately after delivery reduced the risk of relapse for up to three months, researchers found.
Read more »Labels: Research, Studies
Biogen’s CEO Retires Tomorrow
(Posted By: Josi Creek)
Biogen Idec will officially be CEO-less starting tomorrow. James Mullen, Biogen’s chief executive, retires on June 8 after a decade on the job and the Cambridge, MA-based company hasn’t named his successor.
Read more »Labels: Tysabri
Simple eye test measures damage from multiple sclerosis
(Posted By: Josi Creek)
A quick, painless eye measurement shows promise as a way to diagnose multiple sclerosis in its very early stages, and to track the effectiveness of treatments, researchers from UT Southwestern Medical Center have found in a multicenter study. "This technique has the potential to provide a powerful and reliable assessment strategy to measure structural changes in the central nervous system, both for diagnostic purposes and in clinical trials to monitor whether potential treatments can prevent deterioration or restore nerve function," said Dr. Elliot Frohman, professor of neurology and ophthalmology, director of the Multiple Sclerosis Clinical Center at UT Southwestern and co-senior author of the study, which appears in the June issue of Annals of Neurology.
Read more »Labels: Research, technology
Costa Rica clamps down on dodgy stem cell treatments
(Posted By: Josi Creek)
Costa Rica has put an end to stem cell tourism, saying there's no evidence that the treatments work or are even safe.
Using stem cells from bone marrow, umbilical cords and other sources, Costa Rican clinics have been claiming to offer cures for injuries and degenerative diseases.
Read more »Labels: Stem Cell
Multiple sclerosis patients who took oral fingolimod showed better results than those treated with injected interferon beta-1A,
(Posted By: Josi Creek)
Multiple sclerosis patients who took the oral investigational agent fingolimod were better able to maintain activities of daily living over a year than those treated with injected interferon beta-1A, according to a study presented here.
Read more »Labels: Fingolimod, Studies
6/6/10
Bayer launches iPhone app to help people manage their multiple sclerosis treatment
(Posted By: Josi Creek)
This application was unveiled as part of Bayer’s patient support program, BETAPLUS, and it provides patients with injection reminders, injection site rotation assistance and injection history for BETASERON. Moreover, through the Internet, myBETAapp also gives patients access to the BETAPLUS web page from where users can access links to educational tools and get peer support. Patients enrolled in the BETAPLUS program can dial directly to speak to BETA Nurses, who are specially trained in MS.Labels: Betaseron, technology
6/5/10
Investigational Oral Disease Modifying Drug Showing Improved Outcomes For Multiple Sclerosis patients
(Posted By: Josi Creek)
Teriflunomide in Adjunct to Interferon Beta Significantly Improved Outcomes of Multiple Sclerosis Patients
Read more »Labels: Oral Disease Modifying Drugs, Research
6/4/10
Safety fears hang over pioneering Novartis Multiple Sclerosis pill
(Posted By: Josi Creek)
"In clinical trials Gilenia has been linked to a range of worrying side effects, including skin cancer, heart problems and infections."
Read more »Labels: Oral Disease Modifying Drugs
New Formulation of Copaxone:Teva Announces Positive Study Results
(Posted By: Josi Creek)
Significantly less pain and fewer injection site reactions were reported by patients receiving the new lower volume injection
Read more »Labels: Copaxone, Research, Studies
6/2/10
Stem Cell Therapies for Multiple Sclerosis Now Possible
(Posted By: Josi Creek)
A team of investigators from the University of California in Irvine (UCI) Sue & Bill Gross Stem Cell Research Center have recently made important strides in the field of using stem cells as therapies for mitigating the effects of injuries on the central nervous systems. The investigators managed to discover the mechanisms employed by adult neural stem cells, as they navigate through the human brain to the site of injuries, in order to fix the damages. This is the final piece to a puzzle that, once completely solved, could allow researchers to create new, stem cell-based therapies for inflammatory diseases of the brain, such as, for instance, multiple sclerosis (MS).
Read more »Labels: Research, Stem Cell
6/1/10
(Posted By: Josi Creek) Labels: Research, Studies
(Posted By: Josi Creek)
Traditional magnetic resonance imaging (MRI) techniques have contributed to the management of multiple sclerosis (MS) but are limited in their ability to detect neuronal damage. Advanced MRI metrics provide assessment of microscopic neuronal changes; however, few studies have examined the effects of MS therapies on these measures. Labels: Glatiramer acetate, Research, Studies
(Posted By: Josi Creek) Labels: Research, Studies
5/29/10
(Posted By: Josi Creek) Labels: Ampyra
5/28/10
German pharma makes progress in new drugs to treat multiple sclerosis
(Posted By: Josi Creek)
“Multiple sclerosis patients can look forward to significant improvements in the treatment of the disease,” said Cornelia Yzer, general manager of the VFA, the German research-based pharmaceutical industry association. Ms Yzer’s speech marked this week’s World Multiple Sclerosis Day.
Read more »Labels: Medications, Research, Studies
5/27/10
Lifetime cost of multiple sclerosis: $1.2 million per patient
(Posted By: Josi Creek)
In honor of World MS Day, the Multiple Sclerosis International Federation has released a report on the economic impact of the disabling autoimmune disease. Based on data from 15 countries, the report shows the average lifetime cost of MS is $1.2 million per patient - and "loss of employment, or early retirement, is considered the single largest cost factor contributing to this financial cost."
Read more »Labels: MS Awareness
Biogen Idec Globally Commemorates Annual World MS Day
(Posted By: Josi Creek)
On May 26, Biogen Idec will join the global multiple sclerosis (MS) community to commemorate the second annual World MS Day. Biogen Idec is a leader in the fight against MS, bringing hope to the thousands of patients across the globe who benefit from the company's MS therapies and ongoing research programs. World MS Day was established by the Multiple Sclerosis International Federation to raise awareness of MS, national MS societies and those living with and affected by MS, to unite, broaden and mobilize the community and to support MS-directed fundraising. This year's World MS Day focuses on raising awareness of employment issues amongst those who are living with MS. Read more »Labels: Ampyra, Injectable Disease Modifying Drugs
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My Educational Video on MS and MS Trials
Sometimes in life you have to upgrade..not always out of need, sometimes out of want. I want a new car, house, spouse, etc. Well...I want a new Neuro! I know it's not exactly what all the new kids want, but when your living with Multiple Sclerosis..that should be exactly what you want! 
You not only want a specialist..you NEED one! They know what to do for you..how to help…want to help! It’s a great feeling knowing someone lives to make you better. You may never be the same. I may always walk a little different, or get tired when doing the simplest of tasks; but I’m on the right track to healthy..for me. 
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