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Wednesday

 

BOY WITH MS BECOMES A SUPERHERO: This new movie stars Samuel L. Jackson, Colin Firth Michael Caine

20th Century Fox has picked up the rights to Mark Millar's comic book Superior for a feature adaptation to be produced by Matthew Vaughn.
The comic centers on a 12-year-old boy named Simon Pooni, who was a popular athlete before he becomes stricken with multiple sclerosis. 

He is visited by an alien monkey and granted one wish, which he uses to become his favorite superhero, a Superman-esque character dubbed Superior. As Simon begins to enjoy the spoils of his new life, he soon realizes that this monkey is actually from hell, and he must either sell his soul to remain this powerful hero, or return to to his crippled body.
After finding success on the big screen with his comic book adaptations Wanted and Kick-AssMark Millar has several of his other comic book titles in development at Fox, such as NemesisKindergarten Heroes and Starlight. His next comic book project, The Secret Service, directed by Matthew Vaughn and starring Samuel L. JacksonColin Firth and Michael Caine, hits theaters October 24.

 

HOW MANY MS DRUGS DO WE REALLY NEED?

 

Neurologists Expect to Prescribe Biogen Idec’s Tecfidera to 16% of their Relapsing-Remitting Multiple Sclerosis Patients in the Next 12 Months: Survey

 

Crowdfunding Gets FDA-Approved Stem Cell Trial Off To Fast Start: Tisch MS Research Center of New York Exceeds $300K Crowdfunding Target for FDA-Approved Stem Cell Trial

 

Generics file response to Teva in Copaxone patent fight

 

Kathie started experiencing symptoms long before she was diagnosed, but she didn’t know the reason for them: “I now have a name to the things I have been feeling for 20 years"

 

“TAKE CONTROL OF THE DIAGNOSIS — DON’T LET IT CONTROL YOU”

 

Quantification of relevance of quality of life assessment for patients with cognitive impairment: the suitability indices

 

Patrolling monocytes play a critical role in CX3CR1-mediated neuroprotection during excitotoxicity.

 

Researchers don’t know why some multiple sclerosis therapies work

 

Kessler Foundation scientists receive Biogen Idec grant to study actual reality in MS

 
ALZHEIMER'S STUDY FINDS 11 GENES WHICH CONFIRM IT'S OVERLAP WITH MS














New genes linked to late-onset Alzheimer's have been discovered, giving scientists clues on how to create better drugs to fight off the disease. Researchers in the multinational International Genomics of Alzheimer's Project (IGAP) have found 11 genes which broaden our understanding of the disease and confirm its overlap with other neurodegenerative diseases like Parkinson's and multiple sclerosis.

"This international effort has given us new clues into the steps leading to and accelerating Alzheimer's disease," researcher Gerard Schellenberg said in a release. "We can add these new genetic clues to what we already know and try to piece together the mechanism of this complex disease."

The project has collected DNA from over 74,000 patients in 15 countries and is the largest international collaboration of Alzheimer's genetic research. The newly discovered genes are linked to cell and brain function, as well as lipid transport among others.

One of the key findings was a gene responsible for inflammation that has also been associated with MS and Parkinson's. All three of these diseases are a result of proteins in the brain forming plaques and tangles which impair brain function. As we age, it gets harder for our bodies to clear away this buildup.

Other research has also noted the role of inflammation in Alzheimer's progression. A study at Yale University singled out inflammation as the central factor in age-related diseases, causing insulin resistance and lowered cognitive functioning.

IGAP researchers say they'll expand their data set in the future and continue to look for targets to pinpoint in disease treatment. They say large-scale genetic sequencing will play a big part in the future of complex Alzheimer's research.
http://www.huffingtonpost.com/2013/10/28/alzheimers-disease-genes_n_4170353.html?

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Tuesday

 

In Wednesday's news



 

Tysabri to Gilenya washout in patients at risk of PML: When good intentions yield bad outcomes.

 

PROSECUTORS HIT GLAXOSMITHKLINE WITH 3RD ROUND OF BRIBERY CHARGES

 

MS 150 starts with ‘I do’s’ for couple: video

 

MS and HIV: Could MS Be Caused by a Retrovirus?

 

25 Grants for Young Researchers: Kickstart your career by applying for one of these grants

 

Biogen Idec to Present New Clinical Data from Its Neurology Portfolio of Drugs at AAN Annual Meeting

 

Continuing Education Program Helps Practitioners Distinguish Between Primary Care Needs & Multiple Sclerosis Symptoms

 

Intranasal Ketamine Delivers Rapid Antidepressant Effect: Study

 

MS disease activity in RESTORE: A randomized 24-week Tysabri treatment interruption study

 

DO COGNITIVE ENHANCERS WORK?


"This is the Medscape Psychiatry Minute. I'm Dr. Peter Yellowlees. 

Cognitive enhancers, including cholinesterase inhibitors and memantine, are used to treat dementia, but their effectiveness for mild cognitive impairment is unclear. Now a team of investigators[1] from Toronto, Canada, have conducted a systematic review to examine the efficacy and safety of cognitive enhancers for mild cognitive impairment. 

The investigators screened 15,554 titles and abstracts and 1384 full-text articles for studies of the effects of donepezil, rivastigmine, galantamine, or memantine on mild cognitive impairment. From this extensive literature, only 8 randomized clinical trials and 3 companion reports met inclusion criteria. In these studies, the investigators found no significant effects of cognitive enhancers on cognition or function. Cognitive enhancers were associated with higher risks for nausea, diarrhea, and vomiting than placebo. 

Although much more research is needed into the overall value of cognitive enhancers, the findings from this study do not support their use in patients with mild cognitive impairment. This article is selected from Medscape Best Evidence. I'm Dr. Peter Yellowlees"


Monday

 

BETH'S COLUMN:

BETH DEAN
NEWS EDITOR AND COLUMNIST:
I've written 15 columns for you.

Click my photo on far left side
of this page to read them

I definitely don’t need a pity party and for people to act like my life is over because of MS! 

It’s far from over. I won’t let that happen if at all possible. I plan on fighting this thing as hard as possible! I will not set my ass in a wheelchair until that is my only option. I will NOT cry in front of anyone, because I don’t want to appear weak. I will NOT complain and whine all day everyday so people can think: Poor little thing. Forget that!

I have 2 kids that I care for full time! I have a boyfriend, I am a daughter, sister and friend. I am making it…And that’s what I really feel like writing in those damn little boxes at the doctor’s office!
 
I have never particularly liked going to the doctor, but since my diagnosis with MS I LOATH IT! Of course they always make you fill out paper work each visit no matter what kind of doctor or visit it is.

The usual questions….Name, birthday, do you smoke, kids, surgeries….and then the dreaded question. Have you been diagnosed with a illness in the past year?

Dear God I hate answering this question!!! I know I have to…need to put yes, Multiple Sclerosis. But every inch of me wants to put NO…I’m FINE!

Read more »

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AN IMPORTANT MESSAGE FROM BETH DEAN! Columnist, MSnewsChannel.com

I've written 15 Columns for you!
Read them by clicking on my 
photo on the far left
side of this page

I'LL EMAIL YOU A DRUG ALERT WHEN THERE'S A PROBLEM OR IMPORTANT ANNOUNCEMENT ABOUT ANY OF THE 12 MS TREATMENTS OR MEDS WE MSers ARE ON" 

IT'S FREE SO CLICK ON THE FLASHING RED BUTTON NOW!

Thank You,
 Beth
CLICK ON THE RED BUTTON BELOW
                      You'll get FREE Breaking News Drug Alerts 

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"Will Tysabri (natalizumab) slow or flat-line disability progression in SPMS?"


"Hope. This (Tysabri) study gives hope to MSers with both SPMS and PPMS that just may be their disease is modifiable and it has taken a highly-active treatment to have the potency to show an effect"

Dr. Gavin Giovannoni

"I have been praising the study since it was presented at ECTRIMS 2012 in Lyon. In this study MSers with SPMS and PPMS were treated with Tysabri (natalizumab) and monitored with spinal fluid analyses and MRI. It shows that natalizumab has favourable effects on all metrics studied in a relatively short timeframe of 60 weeks.

This study achieves many things.

It clearly shows that progressive MS is inflammatory. There is a self-perpetuating myth that progressive MS is not inflammatory but simply neurodegenerative and hence anti-inflammatory therapies are not required, but only neuroprotective therapies. This study should slay that myth. When people with progressive MS die their brains and spinal cord are stuffed full of T-cells, B-cells, plasma cells and activated microglia and macrophages. Therefore if we want to tackle progressive MS we need a potent anti-inflammatory and a second therapy that targets neurodegeneration. This is why I have been promoting the combination therapy strategy for over 10 years and why we are testing this strategy in the PROXIMUS trial.
Read more »

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COMING IN THURSDAY'S NEWS: ANOTHER 'GOOD NEWS STUDY' FOR PROGRESSIVE MSers:



Tysabri (Natalizumab) reduced biomarkers of intrathecal inflammation in progressive MS

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Study shows group exercise training is effective in improving balance, functional status, spasticity, fatigue and quality of life

 

Riders' journey serves as exercise in hope for those with MS

 

Neuroanatomy, Neurophysiology, and Dysfunction of the Female Lower Urinary Tract: A Review

 

The OMG headline of the week: "Alternative (Bee Sting Venom) therapy helps MS patient pursue lost passion"

 

Doctors first thought Librarian had a stroke: But tests revealed she had MS

 

"Scientists Find 'Cure' for Multiple Sclerosis By Turning Common Skin Cells into Working Brain Cells"

 

Frequent Micturition in Multiple Sclerosis

 

VIDEO: MS... A Mother's battle

 

In Vivo Detection of Diffuse Inflammation in Secondary Progressive Multiple Sclerosis Using PET Imaging and the Radioligand 11C-PK11195

Sunday

 

Specialty pharmaceuticals company Mallinckrodt buys Questcor Pharmaceuticals for $5.6 billion to gain access to its multiple sclerosis drug



Acthar Gel is set to hit sales of $1 billion this year! "Questcor has been facing federal probes into its marketing practices related to Acthar"


Read more »

 
"Everybody knows about breast cancer, and I want everybody to know about MS, too"

Tricia Lige remembers the first thought she had in 2005 when she was diagnosed with Multiple Sclerosis: "I'm going to end up in a wheelchair for the rest of my life."
Read more »

 

The vitamins you CAN mix with medication: Right combinations can help fight illness

We are often warned that supplements can be dangerous when mixed with medication. But now research is starting to show that the right combinations can be helpful in fighting illness.
Read more »

 

Could ketamine be used to treat depression? Illegal drug has a rapid effect on patients not responding to medication

 

Does fatigue complaint reflect memory impairment in multiple sclerosis?

 

Biogen Idec May Have Seeds For Next-Gen MS Drugs

 

Please don’t make me justify my Disability Plate

 

Fingolimod after natalizumab and the risk of short-term relapse

 

Effects of Gadolinium Contrast Agent Administration on Automatic Brain Tissue Classification of Patients with Multiple Sclerosis.

 
WENDY IS TACKLING MARATHONS, MOUNTAINS AND ICE AT THE AGE OF 59
I am always running into people with MS who have accomplished great things despite this disease. People like me who have made a decision that MS is just two letters with no restricting power on our lives. Most of us have chosen ONE sport or means to defeat MS, and ONE goal and ONE direction that challenges our MS diagnosis. It is a demanding ambition to find that ONE major accomplishment and make it a reality and ONE dream is typically enough for someone with MS, that is until I met Wendy Booker.
Read more »

Saturday

 

Lynsey is "getting her life back from MS thanks to a combination of treatment and therapies that includes oxygen sessions in a diving style pressure chamber,"

 

Study: Benefit of Additional Screening for PML (Progressive Multifocal Leukoencephalopathy) in MSers Taking Tysabri (Natalizumab): A Decision Analysis

 

New Jersey MSer named 'most inspirational'

 

Diagnosis of asymptomatic Tysabri-associated PML: are we between a rock and a hard place?

 
Lessons Learned From Fatal Progressive Multifocal Leukoencephalopathy in a Patient With Multiple Sclerosis Treated With Natalizumab


Objective To describe the clinical, radiological, and histopathological features of a fatal case of progressive multifocal leukoencephalopathy (PML) in a patient with multiple sclerosis treated with natalizumab. We will use this case to review PML risk stratification and diagnosis.


Conclusions The risks and benefits of natalizumab must be reassessed with continued therapy duration. When there is high clinical suspicion for PML in the setting of negative test results, close clinical vigilance is indicated, natalizumab treatment should be suspended, and JCV polymerase chain reaction testing and brain magnetic resonance imaging scans should be repeated.
Read more »

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Health News - Stanford researchers show brain activity drives dynamic changes in neural fiber insulation

 

Reduced magnetisation transfer ratio in cognitively impaired patients at the very early stage of multiple sclerosis: Study

 

More about Retinal disorders and MS

 

Reduced grey matter perfusion without volume loss in early relapsing-remitting multiple sclerosis: Study: Journal of Neurology, Neurosurgery & Psychiatry

 

Accera, Inc. and University of Miami Announce Collaboration to Study Axona for Cognitive Impairment in Patients with Multiple Sclerosis

 

Next Chapter In The Acorda Story Will Be A Page Turner because of Advancing clinical development of Ampyra plus early-stage rHIgM22, a remyelinating asset for the treatment of MS

 

The effect of scheduled antibody testing on treatment patterns in interferon-treated patients with multiple sclerosis

Friday

 

Coming Sunday: WENDY IS TACKLING MARATHONS, MOUNTAINS AND ICE AT THE AGE OF 59



 

Study: Psychiatric Symptoms at the onset of Multiple Sclerosis

(Posted By: Josi Creek)

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Jayce Parente, Columnist, MSnewsChannel.com


Jayce Parente,
Columnist,
MSnewsChannel.com
AM I DYING? I JUST STOPPED TAKING TYSABRI!

Am I ok?
Are these MS symptoms?

Are they the potentially lethal PML symptoms? 


I've been told to be "mindful" of PML symptoms yet PML symptoms and MS relapse symptoms are identical.

I know you're gonna say call my "Care Team" but what good is that when they are going to give me a script for a blood test in which it will take me a few days until I can have blood drawn only to wait a few days to get the results when I'm "supposed" to act QUICKLY?

So let me get this straight? I've taken a drug for 2 years that has been linked to causing progressive multifocal leukoencephalopathy (PML). I just stopped taking this drug and am currently detoxing from it.

I also have started to generate more intense symptoms SINCE stopping this drug. Are these MS symptoms?

Are they the potentially lethal PML symptoms?

I've been told to be "mindful" of PML symptoms yet PML symptoms and MS relapse symptoms are identical.

Well, identical with the exception of death or increased likelihood of seizures.
I've also been told if I suspect PML it is VERY important to respond quickly so a plasma exchange can be performed.

So, basically, am I supposed to wait for a seizure and I'm on the floor swallowing my tongue to figure out whether I'm having an MS or PML seizure?

So how do I tell?


Any of you guys have any ideas?

Since stopping the Tysabri I've been steadily degrading and gotten MUCH worse to a point I've been embarrassing myself
Read more »

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A message from the Editor of MSnewsChannel.com


Here's a few of the FeatureStories we're working on for you: we will be posting 1 or 2 tomorrow & every day (usually) 7 days a week:
  • HISTORY OF STEM CELLS: 15 PHOTO SLIDESHOW
  • THE BEGINNING OF RICHARD COHEN'S STEM CELL JOURNEY
  • What is a TENS machine? It might help MS
  • MSer will swim 10-11 hours across lake
  • Stressful life-events in childhood and risk of MS: Parental divorce is somehow associated with modestly increased risk of MS
  • Legalize Medical Marijuana, Doctors Say in Survey! Neurologists reported the highest number of patients asking if medical marijuana might help the.
  • NEW STUDY: MEDS HELP IMPROVE MSers STANDING BALANCE
  • From Plant to Prescription: 5 Ways Marijuana Made It to the Market
  • Pregabalin an Effective Alternative for Restless Legs Syndrome
  • TYSABRI AS "1ST-LINE" TREATMENT FOR MS
  • MARY TELLS ABOUT: “It was amazing...I was so thrilled that it gave my body the feelings it had pre-MS.”
  • MS IS A DISCRIMINATORY DISEASE
  • HOW THIS SUICIDE RELATES TO MSers: "The topic of suicide was thrust into the headlines recently with the death of L'Wren Scott, a fashion designer whose March 17 death was ruled a suicide by police"
  • THE BEST WAY TO QUIT SMOKING THAT YOU HAVE NEVER READ ABOUT
  • Can the bacteria in the GI Tract affect MS? 
  • CHILD NAMED ROTEM WAS INSPIRATION FOR AN INVENTION THAT ALLOWS MOBILITY-CHALLENGED LITTLE ONES TO EXPERIENCE WALKING
  • PLUS MANY MORE!!

Editor
Stan Swartz

PS...Have a Story or Study you want posted? Or are you a Neurologist or Nurse and want to share some advice? e-mail at: stanswartz@mac.com
  • We posted 5,560 Stories for Doctors, Nurses & Savvy MSers in 2013
  • We're building the 12 MS Drug Treatment Channels at the top of this page & hope to finish them by June 1, 2014!
  • Our 32 Columnists have written 210 articles for you since we started the Columns 3 months ago
  • News is posted at Midnight 7 days a week
  • 180,618 VISITORS! 

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Legalize Medical Marijuana, Doctors Say in Web MD Survey! Neurologists reported the highest number of patients asking if medical marijuana might help them (70%)


A majority of doctors say that medical marijuana should be legalized nationally and that it can deliver real benefits to patients, a new story by WebMD/Medscape finds. It is already legal in 21 states and Washington, DC.
Read more »

 

Video Morning Exam: Multiple Sclerosi

 

Psychology Continuing Education Credit Offered 2014 Cooperative Meeting CMSC (Consortium of Multiple Sclerosis Centers) & ACTRIMS

 

International Journal of Rehabilitation Research Report: Effect of treadmill training on fatigue in MS

 

Physical Rehabilitation of Patients with Neurological Diseases Based on Virtual Reality Technology

 

The Visible and Invisible Scars of Multiple Sclerosis

 

LEMTRADA CLEARS ANOTHER HURDLE IIN EUROPE: intravenous drug that is taken once a year looks set to gain official approval as a new treatment option for MS

 

Combined GSTP1 and NQO1 germline polymorphisms in the susceptibility to Multiple Sclerosis: Study

 

Clinical and paraclinical findings in natalizumab-associated infratentorial progressive multifocal leukoencephalopathy patients: Study

 

THE "OMG" MS TREATMENT OF THE WEEK: "How Humble Bees Do Wonder for Romanian" MSers

Doina gets injections of bee venom, or
"apitoxin" twice a week. 
The 34-year-old says the
 injections have allowed her to "rediscover hope"
 in her fight against multiple sclerosis
Click here to read more

 
Dr Jingwu Zhang
GlaxoSmithKline fires senior VP of R&D unit after a probe found he fabricated data in a 2010 scientific paper on MS that was published in Nature Medicine

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Effect of treadmill training on fatigue in MS: Study


Treadmill training was effective in reducing the level of perceived fatigue of MSers, with no impact on balance

MSers tend to be less physically active than the general population. Limited physical activity increases fatigue, possibly affecting other functions such as balance. Treadmill training is a promising method to ameliorate these symptoms. The aim of this study was to assess the effect of treadmill training on fatigue and balance.
Read more »

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Thursday

 

IN FRIDAY'S NEWS



 

CINDI'S COLUMN: "During your weakest MS moments you find out who your truest most endearing friends are" (Cindi Hopper, Columnist, Msnewschannel.com)

Cindi Hopper, Columnist
Msnewschannel.com




Let It Go


Every family has a (chosen) photographer and I've been ours since my teens. I laughed at first at my inability to focus the camera but by the time the new SLR's came out with the auto focus option, I was almost a professional!  By the early 1980's I was thinking about a career in photo-journalism but God had other plans for me. I started showing symptoms of MS right away.  First my vision started acting up a little although I was never diagnosed way back then with Optic Neuritis. Knowing what I know now, that’s definitely what it was. We just didn’t have the technology in the late 70’s early 80’s and of course MS was SO uncommon. I also was having seizures and tons of migraines and my neurologist, who the only thing I remember about him was he smelled like coconut oil, knew little, very little about both I’m guessing because he was fresh out of medical school.  Ironically, today, he is one of the best of the best , getting ready to retire but none the less, one of the elite.  

This past two weeks I've been going thru all my 35mm pics cataloging and grouping them into categories easily found such as Still Life, Animals, Portraiture, Landscape, etc. I had over 15,000 and now that's its almost completed (about 95%) I'm thinking...who's going to care? Pretty sure my children would've just thrown out the ones they aren't in, and as for the wonderful memories, all 15,000 of them that mean everything to me...well, I'll just take those with me.

When I first started this process, I was recuperating from an exacerbation from back in January causing 3 consecutive epileptic seizures one of which was definitely a Gran-Mal. When I awoke in the hospital, my left side was completely numb including my face, top of my head, leg, foot, etc. At 53 yrs old, the first thing they checked me for was a stroke; even though my husband told them I had MS I guess they wanted to be sure there wasn’t a brain bleed or something more serious. My CT came back OK but it was 4 days before I could talk, 8 days before I came home, and I spent 7 weeks on the walker alternating with the cane and 8 grueling weeks of physical therapy 3 times a week. I was fitted for a brace for my left leg because I couldn’t move it without actually picking it up with my hands for the first 4 weeks. After that, I started seeing some slight signs of movement but I have drop foot so PT was afraid I would trip while trying to walk with the walker which did happen a few times. After I started using the brace though, things really started to improve both coordination wise and strength wise. I was exercising like crazy even when the PT nurse wasn’t here!

I wanted to WALK!!!! I have so much Faith in God and I believe HE is the ultimate healer so I prayed consistently, all day everyday! I believe without that, and without my Faith, I would still be on that walker. I am so happy to say that today, 12 weeks after the seizures, I am only using the cane when going out, using the brace 2-3 times a week, and the walker? Well, she’s gone to storage for now! I’m grateful, SO grateful I had it to use but MORE grateful I didn’t have to depend on it any longer than I did. God is good All the time! And All the time, God is Good!

During your weakest moments you find out who your truest most endearing friends are. I was saddened to learn how my children reacted to this, and actually are still reacting. I had a real hard time at first trying to understand until finally one day, after many weeks of being sick, I decided to Let it go. I have two children from a previous marriage and Jr. has two children from a previous marriage so together we have four. I was a single mom for many years so I raised my two completely alone until the mid 90’s. My daughter is married and lives about 7 miles down the road with her husband and my two precious grandsons. My son is married and lives in another state with his wife who is in school.  I haven’t seen any of them since the seizures. I have gotten a few phone calls from both but neither came to the hospital and neither came to the house. Neither has offered to help out in any way as in driving me, Dr. Appts, getting medicine, nada. When I finally regained consciousness in the hospital and got my wits about me and could talk without messing words up, I asked my daughter why she had not been up to see me. Her reply….She had been busy. Three weeks later, when I asked her again, to bring the boys by to see “Meme” because I was really feeling down and I knew they could help cheer me up, her reply…We are just so busy! I can’t tell you how many times I cried myself to sleep wondering what in the world I had done to her. Had I made her mad? Had I hurt her? Had I said something? Did I do something to her when she was a child? Did I scar her? Did she feel mentally abused? WHAT WHAT, WHAT????? So, I texted my son, who I have to say did call pretty much every day and the fact that he lived out of state I’m sure made it pretty hard for him to pick up and come to my bedside.    I asked him if he knew if anything was wrong with his sister or if there was something going on I could fix. His reply…Hey Mom, I’m a little busy right now, can I call you back? I had to chuckle, there was that “Busy” word yet again.  So I called him back a week later and he said “we’re just super busy right now, you were a GREAT mom & DAD, gotta go,  Love you!!!” I knew I’d done all I could do for my children, the best I could do. Yes we were broke but they never knew it. I held down 3-4 jobs so they could go to private schools and have fun with their friends, eat, have a home, go to the movies, cars, designer clothes, etc. So yeah, I knew I had done nothing wrong. For once in a long time, I felt like if I lay down, I could finally go to sleep.

That night, I decided to “Let it go”. I just told God to handle it for me. I was still on the walker. I was unable to bathe myself. My tremors were so bad I couldn’t even feed myself. I had to have help getting dressed. I was on a new seizure medication that we were praying would keep the seizures away. No driving for 6 months which obviously meant I would need help getting to and from a gazillion Dr. Appts. Between my husband, my best friend, my 80yr old mom, and my church family, we had it handled. But as a mother, one who had done everything I could possibly do for my children and then some, I felt a sense of betrayal, sadness, and most of all hurt. I asked God once more to please help me understand what if anything I could do to resolve this situation. It was taking a toll on my already sick body and the stress was insurmountable. One day, I had decided I needed to go thru all the pictures I had taken and organize them so that IF anything did happen to me like that again and I didn’t survive, at least the people I cared for the most in this life would have the memories should they want them and not have to search real hard to remember. I pulled out about 3 large albums, shed a few tears, made my files and went on to the 4th one. As I reached for it, a piece of paper fell out and it was a copy of a email I had received from a friend back in 2006 when we found out my brother was diagnosed with stage 4 esophageal cancer. The title read “Let it Go” by T.D. Jakes and the very first line said “ There are people who can walk away from you. Hear me when I tell you this! When people can walk away from you, LET THEM WALK!!”

I got chills up and down my spine, all over my arms; my eyes began to water because just 20 minutes prior to reading this, I had asked God for help in understanding this situation. Pretty sure he gave me my answer! It literally fell into my lap when I opened that 4th picture album. If you’ve never read this by Rev. Jakes, I encourage all of you to do so! Not only did it help me with my daughter, but being confined to home, being sick, relationships gone wrong, insecurities, helplessness, so many things I had experienced were right there in front of me. Let it go, he said. So I did.  

Since that day, I’ve felt so much better both physically, mentally, emotionally, and spiritually. I have not seen my daughter going on 13 weeks now but I do talk to her on the phone maybe once a week. She sounds as if everything is fine, so I no longer ask her to come by. It’s true what they say about a picture is worth a thousand words. I am so thankful for all my memories because like I said in the beginning the pictures stay here a lifetime but the memories will stay in my heart thru eternity.  All the rest, we just have to learn to “Let it go”.

 

IMPORTANT STUDY FOR ALL MSers ON OR GOING OFF TYSABRI TO READ


A 24-week Tysabri treatment interruption study: 

MRI and clinical disease activity recurred in some patients who stopped taking Tysabri, despite use of other therapies.

There is MS disease activity in RESTORE
Eligible patients were relapse-free through the prior year on natalizumab and had no gadolinium-enhancing lesions on screening brain MRI.
Results: Relapse occurred in 4% of natalizumab patients and in 15%–29% of patients in the other treatment arms. MRI disease activity recurred starting at 12 weeks (n = 3 at week 12) while relapses were reported as early as 4–8 weeks (n = 2 in weeks 4–8) after the last natalizumab dose. Overall, 50/167 patients (30%), all in placebo or other-therapies groups, restarted natalizumab early because of disease activity.
Conclusions: MRI and clinical disease activity recurred in some patients during natalizumab interruption, despite use of other therapies.
Classification of evidence: 
This study provides Class II evidence that for patients with MS taking natalizumab who are relapse-free for 1 year, stopping natalizumab increases the risk of MS relapse or MRI disease activity as compared with continuing natalizumab.
SOURCE: http://www.neurology.org

MEDSCAPE EDITORIAL:


The infusion of 300 mg of natalizumab every 4 weeks is an effective therapy for reducing disease activity in relapsing-remitting multiple sclerosis (MS).1,2 Its use is limited, however, by the risk of progressive multifocal leukoencephalopathy (PML), which increases after 2 years of therapy in JC virus (JCV) antibody–positive patients3:

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Aerobics May Build Bigger Brains in Older Women With Mild Cognitive Impairment

 

MSer returns to Boston Marathon

 

Medical Marijuana: What the Research Shows

 

Patients, investors react to Genzyme's second attempt for approval of multiple sclerosis drug Lemtrada

 

Women Get Multiple Sclerosis More Often Than Men

 

"Living with MS is like having a hole in your sock"

 

Aussie firm to raise $10,000,000 to conduct trial for drug candidate MIS416 for secondary progressive multiple sclerosis (SPMS)

 

In Vivo Detection of Diffuse Inflammation in Secondary Progressive Multiple Sclerosis

 

Interferon β-1a therapy for multiple sclerosis during pregnancy: an unresolved issue

 

Study: Bhlhe40 controls cytokine production by T cells and is essential for pathogenicity in autoimmune neuroinflammation

 

Study: Long-term impact of interferon beta-1b in patients with CIS: 8-year follow-up of BENEFIT

Wednesday

 
Zahra with her
mother Sabrina
"MY 7 YEAR OLD DAUGHTER HAS MS: SHE IS BRAVE BEYOND WORDS"
AFTER a series of wrong diagnoses, and with steadily worsening health, little Zahra finally found out the truth. She had childhood MS – and there was no cure. Here Zahra and her mother Sabrina tell their  story
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USA TODAY VIDEO


From left, Andrew Meas, Dustin Shillcox, Kent Stephenson and Rob Summers are the first to undergo task-specific training with epidural stimulation.(Photo: University of Louisville)
(Photo: University of Louisville)
In addition to regaining bladder & bowel control plus sexual function: all 4 have regained the ability to regulate their blood pressure and body temperature – even when the epidural stimulation device is not running.

Paralysis may not last forever anymore. In an experiment hailed as "staggering," a team of researchers at the University of Louisville and the University of California-Los Angeles restored some voluntary movement to four men who were told they would never move their legs again.
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Agreement for exclusive patent license signed with US National Institutes of Health (NIH) for Catena(®)/Raxone(®) in the treatment of primary progressive Multiple Sclerosis (ppMS)

 
"Stuck on the Sidelines and too young for my life to be over!"
About six years ago, I was lying in bed when I became aware that I would become ill.  I did not hear a voice, I just suddenly yet gently became aware that this would happen.  I told no one.  I was at the height of my physical health with no symptoms of illness.  I was practicing yoga, working out with the elliptical machine at the gym, and running in my neighborhood on a regular basis.  I ate a vegetarian diet.  Later that year I was diagnosed with Multiple Sclerosis and, six months later, SLE Lupus as well. 
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Can Doctors Speak Their Minds Without Getting Into Trouble?

Is It Good to Speak Out?

When physicians speak their minds in exam rooms, committees, and the courts, they are expected to have a strong opinion and advocate forcefully on behalf of patients. But in a number of cases, doctors who speak out have met with harsh retribution that has cost them their jobs and hospital privileges, and permanently marred their reputation.
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Low testosterone is associated with disability in men with multiple sclerosis

 

Cambridge Consultants & Novartis introduce new device 'ExtaviPro 30G auto-injector' for MS patients

 

Central motor conduction time may predict response to Ampyra in patients with multiple sclerosis

Tuesday

 
MS STUDY FROM 2 RESEARCHERS RETRACTED FROM JOURNAL AFTER MISCONDUCT PROBE









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WE ARE WORKING ON THIS BREAKING NEWS STORY! CHECK BACK: WE WILL POST THE FULL STORY WITH PHOTOS BY TONIGHT @ MIDNIGHT EST FOR TOMORROW'S NEWS

"Paralysis may not last forever anymore. In an experiment hailed as "staggering," a team of researchers restored some voluntary movement to four men who were told they would never move their legs again!

All four have regained bladder and bowel control, sexual function and the ability to regulate their blood pressure and body temperature – even when the epidural stimulation device is not running"

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Multiple Sclerosis and Pregnancy: Current Considerations

 
GENZYME TO RESUBMIT APPLICATION TO FDA FOR NEW MS DRUG LEMTRADA



Lemtrada, was turned down by the U.S. Food and Drug Administration on Dec. 27 due to disagreements over the design of the trial. The original rejection was met with a strong backlash from patients, especially since the same drug had been approved in Europe, Canada and Australia based on the same data.
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Woman with MS loses 78 pounds, improves health

 

Lori started caring for rescued exotic animals to pass the time after being diagnosed with MS

 

Smoking as a risk factor for multiple sclerosis

 

How can martial arts benefit MSers?

 

Video: Teva asks the Supreme Court to block Copaxone competitors

 

Teva wins battle to uphold Copaxone patent until May 2015 in England

 

Multiple Sclerosis and Pregnancy: Current Considerations

 

Specialty pharmaceuticals company Mallinckrodt will buy drugmaker Questcor Pharmaceuticals Inc for about $5.6 billion to gain access to its multiple sclerosis drug, Acthar Gel, which is set to hit sales of $1 billion this year

 

Study: Balance control in multiple sclerosis: correlations of trunk sway during stance and gait tests with disease severity

Monday

 
"SCIENCE CAN'T EXPLAIN HOW SOME ATHLETES & ADVENTURERS WITH MS OUTPERFORM MOST OF HUMANITY"

Ain’t No Mountain High Enough

Studies show that exercise can improve function and reduce fatigue in MS, and researchers want to strengthen future studies with a new common coreof outcomes measures. But science isn’t anywhere close to explaining how some athletes and adventurers with MS outperform most of humanity.

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Understanding relationship between iron and MS: Video


Researcher Dr. Ravi Menon looks at functional MRI scans of brains 

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The detection of THC, CBD and CBN in the oral fluid of Sativex patients using two on-site screening tests and LC-MS/MS Inbox x

 

Study: Objective and subjective measures reflect different aspects of balance in multiple sclerosis

 

Supreme Court Studies Generic Drug Question: How Will Patients Fare?

 

MY 7 YEAR OLD DAUGHTER HAS MS: SHE IS BRAVE BEYOND WORDS

 

Launch Into Medical Marijuana, Nations Watch Cautiously

 

Diagnosis of Chronic Illness Could Raise Risk for PTSD

People who find out they have cancer, tumors, or other potentially life-threatening issues may develop symptoms of post-traumatic stress (PTSD).
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Biogen Idec chief warns against funding cuts MS treatments

Biogen Idec’s George Scangos said his company and others are stepping up but “can’t pick up all the slack.”

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You've heard the hype on Complementary and alternative medicine: Now get the facts from the Mayo Clinic

Complementary and alternative medicine has never been more popular. Nearly 40 percent of adults report using complementary and alternative medicine, also called CAM for short. Doctors are embracing CAM therapies, too, often combining them with mainstream medical therapies — spawning the new term "integrative medicine." But what is CAM? This guide explains the ABCs of CAM.

What are some examples of complementary and alternative medicine?

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Sunday

 

Connie Kennemer says her life has changed in unexpected ways since Nadine, a 2-year-old Labrador/golden retriever service dog, entered her life last fall

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Since being diagnosed with Debbie has needed aids for walking but it hasn't hampered her ability and willingness to perform

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My stem cell journey began in Rome, at a Vatican adult stem cell conference
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MORE than 30 years ago Bobby Bajram was diagnosed with multiple sclerosis, but at the same time he declared that one day he would climb Mt Everest. Now, at 46, he has recovered remarkably from his condition and is one hurdle away from taking on the world’s highest peak.
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MY THERAPIST DUMPED ME

 

HISTORY OF STEM CELLS: 15 PHOTO SLIDESHOW

 

Video

MOLLY, HER MOM & HER HUSBAND ALL HAVE MS







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Top Books for Docs: 2013 Booklist

Saturday

 

Beth Dean, Columnist, MS News Channel

I've written 14 Columns for you! 
Read them by clicking on my 
photo on the far left
side of this page

I HATE HOW DENTISTS HANDLE MY MS!
I have never particularly liked going to the doctor, but since my diagnosis with MS I LOATH IT! Of course they always make you fill out paper work each visit no matter what kind of doctor or visit it is. The usual questions….Name, birthday, do you smoke, kids, surgeries….and then the dreaded question. Have you been diagnosed with a illness in the past year? Dear God I hate answering this question!!! I know I have to…need to put yes, Multiple Sclerosis. But every inch of me wants to put NO…I’m FINE! But I suck it up and be a big girl and write my disease and all my medicines down in the little box provided. I set, and wait. Wait for the usual reaction that usually follows. By the time I’m called back to see the doctor, I have prepared myself for the bombardment that is soon to come. Yet as soon as the words leave my doctor’s mouth “ You have MS…You’re so young, how’d it happen? Awe I’m sorry. That’s sad…you have your whole life ahead of you” my face turns

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MSer WILL SWIM 11 HOURS ACROSS 22 MILE LENGTH OF LAKE








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I'm Your Doctor, What Is Your Email?

Getting the most out of any and all connections with our patients has proved somewhat problematic. Figuring out how to bring ourselves, and our patients, into the 21st-century world of electronics telecommunications and medical informatics has been a daunting challenge.
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Umbilical Cord Stem Cell Therapy Clinical Trial for Multiple Sclerosis Gets Green Light

 

Marijuana for MS. Now What?

 

Your Eyes Are the Window to Your... Health & MS

Some of the illnesses or disorders that affect us can cause eye changes that may first be seen by an eye doctor.
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Novartis debuts new auto-injector for MS

Read how its ergonomic shape leads patients to instinctively hold it correctly – which is vital for those who suffer from tremors, as having a firm grip is key to self-injecting safely.
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MEREDITH VIERA'S HUSBAND RICHARD COHEN SAYS HIS RECENT STEM CELL TREATMENT FOR MS DIDN'T CAUSE BLOOD CLOT  Meredith Vieira's husband describes 'touch and go' health scare The husband of former TODAY anchor Meredith Vieira said doctors pulled him “back from the brink” over the weekend after treating him for a blood clot in his lungs.
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Friday

 
"MY PASTOR SAID CUTTING MY DREADS WOULD HEAL ME"

Zara, who died this week at 28, speaks about her MS and how it affected her life and her dreams for the future in her last interview.

CLICK HERE TO WATCH THE INTERVIEW AND ZARA TALK ABOUT MS AND HER PASTOR:
http://www.mycelebrityandi.com/my-pastor-said-cutting-my-dreads-would-heal-me-zara-gretti/

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TECFIDERA DEMYSTIFIED

Although the mechanism of action of many multiple sclerosis treatments is unknown, scientists at Bad Nauheim’s Max Planck Institute for Heart and Lung Research and the University of Lübeck unlocked the mechanism for dimethyl fumarate (DMF), a multiple sclerosis drug that just received approval in Europe under the name Tecfidera. Dr. Nina Wettschureck’s and Dr. Markus Schwaninger’s research groups discovered the reason for immune function influence by DMF, which has also been used as a successful treatment for psoriasis.

Simply stated by Dr. Schwaninger, “In mice [with a standard model of multiple
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April Barbosa, Columnist & Poet, MSnewsChannel.com

LOVE & MS

Look for my 14 past Columns and my poetry on the far left side of this page! I have read so many stories from people with MS who have had loved ones abandon them because of their illness.  I used to think MS is not bad: I got this I need no one but myself. Then the MS decided to show me its real power and it destroyed me from the inside out. My symptoms weren’t a big deal, at first. My legs hurt and I was a little bit forgetful. Then the Multiple Sclerosis decided to mess with my emotions and state of mind.  I began to think less of myself, I became angry and hateful.

Whenever I saw happy people I would instantly not like them, not because of anything to do with them it was because of me. I was jealous that everyone else was “normal” and didn’t feel shitty like I did. My anger began to show by the way I talked to people. I wouldn’t censor my words anymore. I said mean things just to hurt people. I thought hurting others made me feel better but in actuality it just hurt my relationships.
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A CHILD NAMED ROTEM WAS INSPIRATION FOR AN INVENTION THAT ALLOWS MOBILITY-CHALLENGED LITTLE ONES TO EXPERIENCE WALKING

Daniel Smyth, 5, Bethany Watson, 3, and Charlotte Taylor, 3, using a Firefly Upsee to walk with their parent. Photo courtesy of Leckey Firefly

Debby Elnatan’s Upsee's invention to help her own son walk tethered to an adult, could be the answer to many parents’ prayers for children with disabilities.
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Tracey is headed to Russia for stem cell treatment of her MS


A woman suffering from multiple sclerosis is headed to Russia in a bid to slow her MS.

In order to stop her body from deteriorating further, 47-year-old Tracey Stevenson and her partner Vivienne McNally will to travel to Russia in February to undergo stem cell treatment not yet available in Australia for MS patients.

There, Ms Stevenson will receive intense chemotherapy in what could be her final chance to beat MS.

“It is my last hope. If I don’t get this treatment I will get worse and worse – the doctors here have told me there is nothing more they can do to help me,” Ms Stevenson said.
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Rare, but serious clotting disorder developed in several people taking Rebif

 

The U.S. Supreme Court on Monday accepted a case involving patents for the multiple sclerosis drug Copaxone.

 

Endurance training is feasible in severely disabled patients with progressive multiple sclerosis

 

Pregnancy, sex and hormonal factors in multiple sclerosis

 

The impact of sexual dysfunction on health-related quality of life for MSers

 

Medical marijuana users with MS say they fear arrest under new federal pot regulations

Thursday

 

WATCH FOR PART 2 OF THIS STORY IN TOMORROW'S NEWS: ZARA'S LAST VIDEO: "My pastor said cutting my dreads would heal me (of MS)"

(Part 1)
"MS DID NOT KILL SINGER ZARA: IGNORANCE DID" HER FAMILY IS BLAMED
Singer, Zara Gretti has passed away  after battling with Multiple Sclerosis for over a year. Yemisi Ilo, has however condemned and blamed Zara’s family for her death. She blamed Zara’s family for feeding with her with “Agbo and herbs” instead of sending her to the hospital.

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UPDATE: Jeannine Everett, Columnist, MSnesChannel.com

Read my 6 articles by
 clicking on my photo
 in far left column
THE EVIL, UGLY TRUTH ABOUT CATHETERS
Yes, I am really saying this…. I’m telling you my ugly truth - Catheters, those evil expensive things.  I don’t have the same problem that everyone else has (leakage only); I have to use those devil things that I now must to learn to love.  UGH. I wanted to give them another name but nothing rhymed with UGH, so they are, you know, sticks.  But now, I have both issues, I leak and cant pee.  There has to be a place in hell for this.  OK, does this mean I can’t have those trips with the girls to the little girls’ room, together like the old days?  Do I now have to stand up and pee? DAM.


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TEXTURED INSOLES COULD HELP MSers: NEW STUDY

A $120,000 Multiple Sclerosis (MS) Research Australia grant will enable Dr Anna Hatton to examine the potential of an inexpensive insole to improve the mobility of Msers. Dr Hatton said many MSers have trouble walking, which made day-to-day activities difficult and often led to falls.

She said walking problems in MS could result from a combination of typical symptoms related to muscles, nerves and senses.

“The key to improving mobility is to use a range of different treatment techniques which address each of these symptoms,” she said. “Improving walking ability is of primary importance to maintaining health, independence and quality of life for people living with MS.”

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