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Timothy L. Vollmer, MD
Department of Neurology
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Medical Director-Rocky Mountain MS Center
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Multiple Sclerosis Institute
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
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Wednesday

 

Why I Kept MS a Secret — and Why I Stopped
























Theresa Schwegel and her two children. | Theresa Schlegel

When I found out I was pregnant with my first child, I was terrified. Yes, the new-mom fears of inadequacy and vulnerability were in flux, but so was the fact I already felt inadequate and vulnerable, because I have MS.
Read more »

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Cladribine Tablets Are Only a Step Away from European Union Approval for Relapsing MS





























Merck’s cladribine tablets are now just one step away from obtaining European Union approval as a relapsing MS treatment.
Read more »

Tuesday

 

Living with MS – Why does the heat make MS worse? VIDEO





































Dealing with heat when you have multiple sclerosis is a big issue. You can check out some of our tips for dealing with multiple sclerosis heat intolerance here.
Story Source: The above story is based on materials provided by PATIENTTALK
Note: Materials may be edited for content and length

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CMSC: When is Aggressive MS Treatment Justifiable?





























Image Source: CBSNEWS

By Laura Kolaczkowski

Induction or Aggressive Treatment for MS: Is it Right for Most, Some or No Patients?  According to Dr. Brian Weinshenker, Mayo Clinic, the bottom line answer is it depends on the risk tolerance of the person being treated. Dr. Weinshenker delivered the Donald Paty Memorial Lecture  on Induction or Aggressive Treatment to his peers gathered for the annual meeting of the Consortium of MS Centers (CMSC),  the largest gathering in North America of clinicians, nurses, therapists, and others who provide medical care for people affected by MS.
Read more »

Monday

 

When Life With MS Feels Like 'It's Always Something'

















Accepting an MS diagnosis is difficult and it often takes people a while to come to terms with what it means for their future. Some people choose to tell others immediately about their MS diagnosis, while others may bide their time — there is no right or wrong way to approach it, it’s very much up to the individual and what they feel comfortable with. However, if you’re finding it difficult to tell the people closest to you about your multiple sclerosis, the Multiple Sclerosis Society UK has some useful advice.
Read more »

 

Getting Quality Sleep with MS



























People with MS often experience insomnia, obstructive sleep apnea and restless leg syndrome. (GETTY STOCK)

Americans are struggling with a sleep problem. More than a third of us aren’t getting the recommended seven hours per night, according to the Centers for Disease Control and Prevention, and 35 percent report poor sleep quality, according to the National Sleep Foundation. People with MS may fall into both categories. “Research suggests that 50 percent or more of patients with MS have some form of sleep disturbance,” says Abbey Hughes, a clinical psychologist and assistant professor at the Johns Hopkins University School of Medicine.
Read more »

Sunday

 

3 Things to Consider When Telling People You Have MS



























 



Accepting an MS diagnosis is difficult and it often takes people a while to come to terms with what it means for their future. Some people choose to tell others immediately about their MS diagnosis, while others may bide their time — there is no right or wrong way to approach it, it’s very much up to the individual and what they feel comfortable with. However, if you’re finding it difficult to tell the people closest to you about your multiple sclerosis, the Multiple Sclerosis Society UK has some useful advice.
Read more »

 

MS, Systemic Lupus Linked by Genetic Variant



















































 

Image Source: KENTUCKYFERTILITY

HealthDay News -- A genetic variant that is associated with both multiple sclerosis and systemic lupus erythematosus (SLE) has been identified, according to a study published in the New England Journal of Medicine.
Read more »

Saturday

 

Look Your Best With MS: Grooming Tips for Men and Women























The right equipment and a simplified look can make grooming easier when you have MS.Josef Lindau/Getty Images; Stocksy

Weakness, fatigue, and tremors can get in the way of maintaining your appearance, but these tips and techniques will help keep you looking good.

Kathleen Matuska, PhD, an occupational therapist and chair of the department of occupational science and occupational therapy at St. Catherine University in St. Paul, Minnesota, once worked with a patient with MS who almost quit a job that she valued and enjoyed. The reason: The woman found her morning grooming routine so exhausting that she felt wiped out by the time she got into her car to drive to work.
Read more »

 

Neuroprotection: A Possible Future Treatment for MS
























Research into new treatments for MS is ongoing and scientists are continuously discovering new ways to tackle the disease. There is one area of research that’s showing promising results: neuroprotection.
Read more »

Friday

 

Don’t Apologize For Having Fun




















For most people, despite appearances, living with MS isn’t easy.  We’re plagued by severe fatigue, pain, spasms, and a bunch of other invisible symptoms. Life with MS is also wildly unpredictable, so we never know when these symptoms will pop up suddenly and cause us to cancel plans.  In short, living with MS is like riding an unpleasant roller coaster with a lot of high points and low points.  Because of the deceptive nature of the disease, it’s easy to be (or at least feel) judged much of the time when we are at one of those high points, when we are able to at least appear “normal” and have fun.  With all that judgment, whether real or imagined, it’s easy to feel guilty for occasionally having a good time.  I’m here to say that you need to move past that and to tell everyone that you don’t need to apologize for having fun sometimes.  You’ve earned it!
Read more »

 

Bioengineers Use Quantum Dots to Help Develop New Therapies for MS


























The National Multiple Sclerosis Society estimates that MS affects more than 2.3 million people worldwide. [sleddogtwo/Getty Images]

Sounds of Science Podcasts

Team believes a rational therapeutic design approach will allow scientists to transform how the disease is tackled. Quantum dot technology also should be applicable to other autoimmune diseases as well.
Story Source: The above story is based on materials provided by GENETICENGINEERING&BIOTCHNOLOGYNEWS
Note: Materials may be edited for content and length

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Thursday

 

Involving Patients in Decision Making Improves MS Treatment




























Image Source: WORDPRESS

Shared decision-making between patients and their doctors and nurses is one of the cornerstones of multiple sclerosis treatment, according to a report in the journal Practical Neurology.
Read more »

 

Exosomes in Relapsing-Remitting MS Have Distinct RNA Profile



































Image Source: NEUROLOGYADVISOR

Circulating exosomes have a distinct RNA profile in relapsing-remitting multiple sclerosis (RRMS), according to a study published in the Annals of Neurology.
Read more »

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Wednesday

 

Hidden and invisible symptoms of MS: VIDEO

























Produced for MS Awareness Month 2016 this excellent video from Melly ManyLemons looks at the hidden and invisible symptoms of MS.
Story Source: The above story is based on materials provided bPATIENTTALK
Note: Materials may be edited for content and length

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MS study reveals possible trigger

























3D illustration of nerve cells via Shutterstock.com

Israeli scientists discover an abnormality in neurons’ protective membrane may enable the immune system to launch a mistaken attack.

Researchers have long speculated that MS is triggered by the body’s own immune system unleashing an uncontrolled attack on myelin sheaths that protect nerve cells (neurons).
Read more »

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Tuesday

 

National MS Society Highlights Diet, Lifestyle Research Focusing on Living Well With MS






















The National MS Society has selected research highlights from a recent MS conference in an effort to help make living with the disease less burdensome.
Read more »

 

Air Pollution May Trigger Relapses in MS Patients, French Study Finds























Air pollution, particularly tiny inhalable particles around 10 micrometers in diameter, is a likely trigger for relapses in MS patients, a French study reports.
Read more »

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Monday

 

Nanoparticle delivery of leukaemia inhibitory factor (LIF), of possible use in treating MS






















Image Source: MCCORMICK

Paragraph 2: The invention is in the field of compositions for neuroprotection, particularly compositions that promote and protect neural cells in the central nervous system of a mammal such as a human. Also described are methods for repairing tissues of the central nervous system of a mammal such as a human. Neurodegenerative diseases represent the largest area of unmet clinical need in the Western world. They are characterised by a progressive loss of the structure or function of neurons in the nervous system (neurodegeneration) and include Alzheimer's Disease (AD), Parkinson's Disease (PD) and a host of other rarer conditions such as Huntington's Disease (HD), Frontotemporal dementia (FTD) and Amyotrophic Lateral Sclerosis (ALS). The process of neurodegeneration is not well understood and so the diseases that stem from it have no effective cures, nor is it possible to slow down their progression, as yet. 
Read more »

 
























By combining an experimental stem cell treatment with a nanoparticle delivery system, researchers may eventually stop MS and other autoimmune diseases.

An innovative stem cell therapy could change how we treat MS, but are we any closer to a cure?

Read more »

Sunday

 

8 Tips for Dealing With the Heat When You Have MS






















Many people living with MS find that their symptoms become more pronounced when they are subjected to heat. With summer arriving in most parts of the country, many people with the condition will soon experience a temporary worsening of symptoms. (The same can happen if the person takes a bath or shower that’s too hot.) According to verywell.com, the symptoms affected could include blurred vision, fatigue, tremors, numbness, cognitive abilities, and general weakness. Thankfully, the symptoms ease off when the weather cools down.
Read more »

 

Manage MS after pregnancy by following this diet


























MUM'S THE WORD: Sharon Ni Chonchuir and her Milo at their home in Dingle, Co Kerry. Picture: Domnick Walsh

When MS sufferer Sharon Ní Chonchúir gave birth to her son in December she dropped her strict diet. She soon found the familiar symptoms returning.
Read more »

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Saturday

 

Pricing of Ocrevus and What it Means for MS Treatments















Image Source: DITCHCARB

By Laura Kolaczkowski

There were no big surprises in the March 2017 announcement of the Food and Drug Administration’s (FDA) approval of Ocrevus, the brand name for ocrelizumab, the latest disease modifying therapy (DMT)  for MS, Ocrevus is manufactured by Genentech Roche.  The FDA review process had been slow and even postponed for an additional 3 months, but very few people who have followed this drug’s development didn’t expect it to eventually get approval for use in relapsing remitting and progressive forms of MS.
Read more »

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MS research boosted by modeled brain cells
































 

Researchers at The Salk Institute have developed a way to grow vital brain cells called astrocytes from stem cells, a potential breakthrough for basic and clinical research into several diseases, including MS.
Read more »

Friday

 

Is a Cure for MS Just Around the Corner?































MS sufferer and campaigner Linda Jarrett

An expert from the University of Nottingham has given his views on claims that a cure for MS could be within our grasp.

A company in Cambridge called LIFNano is trying to cure MS using a protein in the body known as LIF, or Leukaemia Inhibitory Factor.
Read more »

 

SPMS Patients Have Higher Illness Burden than RRMS Patients, Kantar Health Study Shows






















Patients with secondary progressive MS (SPMS) have a higher burden of illness than patients with relapsing-remitting MS, a new study showed.
Read more »

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Thursday

 

Let’s Address The Elephant in the Room-Depression and MS
































Image Source: CUNTINGLINGUIST


By Calie Wyatt

I want to write about something that I feel is sadly, often swept under the rug and left to go unnoticed. It’s that giant elephant in the room that is often present, but most seem to look right past it. That something is depression. This is an issue I have dealt with the majority of my life. It is something that’s for some reason is often looked down upon and misconstrued. But, it’s something more people than we realize struggle with too. Depression is fairly common but still widely misunderstood and stigmatized. This stigma associated with depression can cause feelings of shame and embarrassment. But, we shouldn’t feel that way. I believe if less people were affected by the stigma associated with MS than more people would be open to talk about it and willing to get help.
Read more »

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