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Timothy L. Vollmer, MD
Department of Neurology
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Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

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Weill Medical College of Cornell University

Clinical Attending in Neurology,
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
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Friday

 

My MS Stages


















By Meghan Pcsolyar

They say the five stages of grief are:

  1. Denial
  2. Anger
  3. Bargaining
  4. Depression
  5. Acceptance

Read more »

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Jack Osbourne Pens Touching Open Letter To De-stigmatise MS



























Jack Osbourne has written a heartfelt open letter about what it’s like to live with MS in order to raise awareness about the disease.
Read more »

 

Mary Jordan is fighting MS with dressage, an equestrian sport: VIDEO






















Mary Jordan often has a full day: train to become a Paralympian, and fight multiple sclerosis.
Read more »

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Fasting-like diet reduces MS symptoms




























Evidence is mounting that a diet mimicking the effects of fasting has health benefits beyond weight loss, with a new USC-led study indicating that it may reduce symptoms of multiple sclerosis.
Read more »

 

Multimodal evoked potentials follow up in MS patients under Gilenya (fingolimod) therapy






















Image Source: SEARCHHOMEREMEDY

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Thursday

 

Roanoke County man has message for people with MS: VIDEO






















Being diagnosed and living with Multiple Sclerosis is extremely tough, but one Roanoke County man has a message for those who have been recently diagnosed with the disease.
Read more »

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A Great Big World Addresses Fighting MS With Powerful Song: VIDEO























Rebecca Granet, Chad King and Ian Axel

A Great Big World is addressing the struggles of living with multiple sclerosis through a powerful ballad.
Read more »

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MS: experts speak about challenge of neurological disorder
























KARACHI: Hundreds of youngsters are getting disabled every year in Pakistan at the hands of rare neurological disorder, MS due to lack of diagnostic and treatment facilities at district hospitals in the country.
Read more »

 

JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML

































A mutation in a mouse model of the John Cunningham (JC) virus, which causes progressive multifocal leukoencephalopathy (PML), allows the virus to evade the host immune responses in people with MS, according to a study into the mechanisms of PML.
Read more »

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Difficulties in adjustment to MS: vulnerability and unpredictability of illness in the foreground: STUDY

























Image Source: SRXAWORDONHEALTH
Read more »

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Wednesday

 

Celebrating 30 Years of Collaboration, Research and Commitment to Change the Face of MS











By Cathy Chester

Collaboration. Teamwork. Focus. Dedication. Commitment. Influence. Accomplishments. Advocacy. Compassion. Leadership. Research. Professional Outreach. Education. Role Model. Purpose. Understanding.

I take great pride in my association with The Consortium of Multiple Sclerosis Centers (CMSC) which will be celebrating 30 years of serving the multiple sclerosis community. Through its support for clinical care, research, education, new and ongoing projects, advocacy, influence on healthcare policy, disseminating information to the community and building external relationships with like-minded sponsors, partners and professional organizations, the world of MS is changing for the better.
Read more »

 

ReWalk tech to help stroke, MS victims get moving























Prime Minister Benjamin Netanyahu (left) and US President Barack Obama look on as disabled IDF veteran Radi Kaiuf demonstrates the ReWalk exoskeleton system. Kaiuf, who was formerly nearly fully paralyzed, completed the Israel Marathon in 2012 using the system (Kobi Gideon / GPO /FLASH90)

Israeli-developed exoskeleton technology will be applied to help millions who can’t walk by themselves but are not paralyzed

The ReWalk system has done wonders for quadriplegics, providing them with a method of being able to walk again – or even run a marathon, as several paralyzed individuals have done while wearing the ReWalk exoskeleton suit. Now, a version of the system will be used to help a much larger cohort – individuals who have difficulty moving about due to stroke, MS, old age, or other reasons
Read more »

 

Relapses Prevented in MS Mouse Model





























Researchers at the University of Heidelberg, Germany, recently showed that peripheral blood cells loaded with a drug that resembles the myelin protein are able to inhibit harmful immune responses and prevent relapses in a mouse model of relapsing-remitting MS.
Read more »

 

International MS treatment allows Ga. woman to dance at son's wedding































A South Georgia woman's battle against her incurable, debilitating disease sent her to the other side of the globe looking for a cure. Saturday, her journey culminated as she danced at her son's wedding.
Read more »

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Predictors of Fatigue Impact in Persons With Long-Standing MS: STUDY

























Image Source: BETTERHEALTHPRACTICE
Read more »

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Tuesday

 

Sensational Headlines and False Hope

























Image Source: LIVELUVCREATE

By Stephanie Buxhoeveden, RN, MSCN

I think of myself as an optimistic-realist. I know that there is no cure for my MS, but I am certain that there will be one someday. I am confident that we will soon be able to treat all types of MS more effectively, and to even repair some of the damage that has been done. I am optimistic that, within my lifetime, we will learn why and how this disease has latched on to so many of us, and finally be able to protect future generations from it.
Read more »

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The Secret Life of Carla Basante: Fighting for independence, self-esteem on World MS Day: VIDEO






























Carla Basante gives her son Joseph 16, a hug at her home in Lebanon Township on May 11, 2016. Image Source: Alexandra Pais/Courier News

Lebanon Township woman feels empowered after participating in a Kessler Foundation study

Carla Basante may wake up and take her dog for a walk before returning home for a cup of tea, a gluten-free cookie and a little time in front of the Hallmark Channel.
Read more »

 

MS vs. stroke, differences in symptoms, causes, and treatments





























Multiple sclerosis and stroke may seem like they don’t have much in common, but they both affect the brain and the nervous system and so they have a lot more in common than you think. Multiple sclerosis is an autoimmune disease in which myelin becomes damaged. The nerves are exposed as a result, lending cause to the variety of symptoms to arise.
Read more »

 

In MS, urinary tract infection symptoms seen in more than half the patients: STUDY


























Image Source: BIANOTI

In multiple sclerosis (MS), urinary tract infection symptoms are seen in more than half of patients, according to research. The study found that nearly 70 percent of multiple sclerosis patients had urinary tract problems, adding to their disability.
Read more »

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Pregnancy outcomes in Lebanese women with MS (the LeMS study): a prospective multicentre study: STUDY

























Image Source: LEBANESEEXAMINER
Read more »

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Monday

 

Dealing with MS: One Man's Story
















































Dan Melfi, diagnosed with MS in 2009, is still getting the hook in the water and considers exercise to be part of his medicine. 
Image Source: NORTHAMERICANPRECISSYNDICATE

MS is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain and between the brain and body. More than 2.3 million people are living with MS worldwide.
Read more »

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MS doesn't keep Ohio congressman's chief of staff from making mark































Stacy Barton

Stacy Barton was 35 and a rising star on Capitol Hill when reality crashed down on her.
Read more »

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ReWalk and Wyss Institute Working to Develop Soft Exoskeletons for MS and Others with Limb Disabilities




























ReWalk Robotics, Ltd., announced it is partnering with the Wyss Institute for Biologically Inspired Engineering at Harvard University to further develop and test lightweight exoskeleton systems for people with disabilities affecting their lower limbs, including those with multiple sclerosis (MS).
Read more »

 

MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says























Previous studies suggested that multiple sclerosis (MS) and Hodgkin lymphoma might share underlying causes, including exposure to microorganisms in childhood, such as Epstein-Barr virus (EBV) infection. In the study “Multiple sclerosis and risk of young-adult-onset Hodgkin lymphoma,” published in the journal Neurology: Neuroimmunology and Neuroinflammation, researchers suggested that common inherited or acquired risks for these conditions do exist.
Read more »

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Gut microbiota in early pediatric MS: a case−control study: STUDY



































Image Source: UNIVERSIDADPABLODEOLAVIDE
Read more »

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Sunday

 

Woman with PML Linked to MS Therapy Successfully Treated with IL-2 Cytokine




























A case report of a woman with relapsing-remitting MS, who developed progressive multifocal leukoencephalopathy (PML) after natalizumab therapy, found that the immune-boosting molecule interleukin-2 (IL-2) might be a viable therapeutic option to fight this life-threatening complication although further study is needed.
Read more »

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Understanding A Social Security Disability Denial






















Image Source: DISABILITYBENEFITSTODAY

By Mariah Z. Leach

After the long, confusing process of applying for Social Security disability benefits, it is understandably very frustrating to receive a denial. While the Social Security Administration (SSA) has no official policy to deny first-time applications, it is fairly easy to see why some people might think they do! Though the rate of denial varies from state to state, nationwide about 65% of all disability claims are denied on the first application.
Read more »

 

Inequalities in MS care leave Colchester patients feeling abandoned - the MS Trust discover

























IN 1993 Jay Denton’s life changed forever.
Read more »

 

Woman receives experimental treatment for MS: VIDEO























An afternoon by the pool is typical for Heather and her kids, but there was a time when  such an activity wouldn’t have been possible.   The mother of two didn’t feel comfortable watching her kids on her own.
Read more »

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Rationale and design of a randomized controlled clinical trial of functional electrical stimulation cycling in persons with severe MS: STUDY




























Image Source: AMSVANS
Read more »

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Saturday

 

Don't Believe the Media's Lies: Disability and Beauty Are Not Mutually Exclusive


























Before I was diagnosed, someone who thought she was being supportive said to me, "Don't worry. Pretty people don't get MS."
Read more »

 

This wearable exoskeleton could one day turn your grandparents into cyborgs: VIDEO

  

May has been a big month for personal robotics. Hyundai made titanic superpowered "Iron Man" exoskeletons, and now Harvard's Wyss Institute announced that it's teaming up with ReWalk, a robotics company, to make a soft exoskeleton for people suffering from lower body problems.
Read more »

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The Secret to Boosting Vitamin D Levels? Take a Vacation























Image Source: IVYEXEC

Forget the supplements and start booking a foreign vacation, because new research shows that could be the very thing to boost vitamin D levels.
Read more »

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MS risk higher in rosacea-affected women: Study




























Multiple sclerosis risk has been found to be higher in rosacea-affected women. The study was conducted by researchers from the University of Copenhagen who found a higher risk of multiple sclerosis in women with rosacea, compared to women without the skin condition.
Read more »

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Prescribed psychiatric medication among MS patients before and after disability pension: a register study with matched controls: STUDY


























Image Source: INQUISITR
Read more »

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Friday

 

MS and Jealousy
















By Devin Garlit

I recently wrote an article about the loneliness that those of us with MS or other chronic illnesses can experience. After talking with readers who also encounter this loneliness, I realized that there is another feeling that goes very much hand in hand with it: jealousy. This is, of course, something that I deal with as well. I feel a bit embarrassed talking about these feelings of jealousy I have, but I have always made it a point to be completely open about my experiences, so here we go.
Read more »

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Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses



























Researchers investigating immune B-cell response to the Epstein-Barr virus (EBV) and cytomegalovirus (CMV) found that it may correlate with the amount of brain-specific B-cells in the blood — a marker of multiple sclerosis (MS) — and with higher disease activity. The findings were published in the journal Viruses, in a study titled “The Correlation between the Virus- And Brain Antigen-Specific B cell Response in the Blood of Patients with Multiple Sclerosis.”
Read more »

 

Marijuana Treatment Aids in MS according to Neurologists


























Marijuana for medicinal use would contribute to the care of complications associated with multiple sclerosis, but not to treat the disease, neurologists explained.
Read more »

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An interview with Dr. Aaron Boster about MS: AUDIO




























Dr. Aaron Boster

Stacy speaks with Dr. Aaron Boster, a Board Certified Clinical Neuroimmunologist who specializes in Multiple Sclerosis, about the disabling disease of the central nervous system that disrupts the flow of information within the brain. Dr. Boster discusses the difficulty of diagnosing MS in addition to the signs and symptoms to look for.
Read more »

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Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe MS: STUDY


































Image Source: MARCIAKATZ
Read more »

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Thursday

 

Java Jive: MS and the Benefits of Coffee


















By Kim Dolce

Whether it’s a skinny latte or a simple cup of Folger’s, coffee has long been thought to provide more than just a morning eye-opener. For starters, coffee is the number one anti-oxidant in the US. Moreover, its superstar ingredient, caffeine, has been shown to increase fat-burning by as much as 29% in people of normal weight and 10% in obese people, as well as raise the metabolic rate in humans by 3-11%. It’s no wonder that caffeine is in virtually every fat-burning and weight loss product. And the benefits don’t stop there.
Read more »

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Woman with MS who fell over while walking praises Broadwater pupils who helped her



























Year 8 pupils Ted, Toshi, Sean, Spike and Toby from Broadwater School called to Barbara Keene asking if she needed help and then came to her aid after she lost her footing walking in Broadwater Park

Pupils who helped a lady with multiple sclerosis when she fell have been praised for their actions.
Read more »

 

UK Clinical Trials Testing Robotic Legs That Might Allow Patients to Walk Hands-Free






































The first U.K. clinical trials of robotic legs that might allow people with mobility impairment to move — hands-free — are underway at the University of Kent.
Read more »

 

Chance meeting on Banff ski trip sets in motion promising new MS therapies





















From left, University of Calgary trainees at the Hotchkiss Brain Institute (HBI) Khalil Rawji, James Rogers, Samuel Jensen, Michael Keough, Erin Stephenson, and Jason Plemel. Led by Keough, under the supervision of V. Wee Yong, the team recently published a study identifying a mechanism by which myelin, the protective covering surrounding nerve cells, can repair itself in multiple sclerosis lesions. Photos by Janelle Pan

Hotchkiss trainees' collaborative study finds new approach to repairing damaged nerve cells

A Hotchkiss Brain Institute (HBI) trainee looking for the next big discovery in multiple sclerosis (MS) research got a surprise break while on a ski trip to Banff with some new friends — unveiling a new approach to repair damaged nerve cells.
Read more »

 

A 12-month prospective, observational study evaluating the impact of disease-modifying treatment on emotional burden in recently-diagnosed MS patients: The POSIDONIA study: STUDY
























Image Source: THESMARTERBRAIN
Read more »

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Wednesday

 

How Do You Describe Your MS Eye Problems?

























A few years ago, I wrote a cheeky little blog listing the 12 things I’d learned from a dozen years of living with MS. In it, I quipped that “someone should write a symptom thesaurus for MS.”
Read more »

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Tecla: Hands-Free Access to Smartphones and Tablets: VIDEO



























In this video, meet Tecla.

Tecla connects to industry-standard switches or the driving controls of a wheelchair and enables its users to easily access their touchscreen smartphones to call or receive calls, text messaging, read ebooks, surf the web, and much more. All hands-free.
Read more »

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Episode 80 with Dr. Kaarina Kowalec on adverse MS drug reactions: AUDIO























Image Source: CENTREFORBRAINHEALTH

Approximately 1 in 50 people with MS in British Columbia, Canada, developed drug-induced liver injury with about three months of exposure to interferon-beta IFN-β. The study of adverse drug reactions will help minimize or prevent the toxicity of MS drugs, a major clinical objective.
Read more »

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Orkney has 'higher vitamin D levels than mainland' says study























MS disrupts messages from the brain to the rest of the body
Image Source: SCIENCE PHOTO LIBRARY

People in Orkney have higher levels of Vitamin D than people on mainland Scotland, a study has suggested.
Read more »

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Dynamic Imaging of Individual Remyelination Profiles in MS: STUDY
















































Image Source: MULTIPLE-SCLEROSIS-RESEARCH
Read more »

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